Need to Vent Even More; was: Re: need to vent a bit

[Guest guest]

- I did Elavil for 6 years.

- I did Neurontin for 8 years.

- I did Effexor for 3 years (bc VV specialist Dr. Libby said

that it was BETTER THAN ELAVIL)

- I did surgery. I had my f***ing vulvar vestibule surgically removed.

- Physical Therapy: pelvic floor is improved but it doesn't stop the

flareups.

- I tried Vicodin for a while but it is too addictive.

- Every diet under the sun. No-oxalate, No-carbohydrates, No-wheat,

eggs, or dairy.

- Estrace, on and off for 10 years.

- Hypnotherapy

None of that stuff worked.

Several well-known VV specialists such as Hope Haefner, Libby ,

Deniz Zolnoun have said that I will never get better. The Pudendal

nerve will never heal after 14 years of this.

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That is why I am incurable. I have tried everything already.

I have been on this list, on and off for about 8 years. I have always

counseled others to have hope and to never give up.

Yesterday I ran 6 miles (in NC heat) and then drank wine and vodka

till I passed out.

.... sorry, I am still very upset.

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> so I went with the elavil and oxycontin he prescribed for me. The

> elavil for the firing nerves and the oxycontin was the ONLY thing

that