(No subject)

[Guest guest]

What state are you in? Why is it being taken away? Can she appeal

the decision to discontinue her coverage?

Is she a student and possibly covered on your or her father's

insurance plan (if any)? Is she able to work full-time? (IF she is,

she could get a job with medical coverage and not be denied if her

state insurance is in effect on her date of hire.)

If she cannot work due to her health, has she considered applying for

social security insurance for disability?

If none of this pans out, be aware that she may be able to receive

free care from her cf clinic if it is part of a hospital if her

income meets certain guidelines. She can ask about recieving samples

of medications at clinic (if she tells them she's uninsured they will

likely give her some samples to go home on.) Also, pharmaceutical

companies often have programs to provide free medication for those

who are uninsured and cannot afford to pay for the meds. She can

call her clinic social worker for leads on what to do first.

Good luck!

~

> my 20 year old daughter insurance from the state is being taking

> away from her.. i am ready to rip my hair out .. please

> help!!!!!!!!!!!!!!!!!!!!patty mom of 2 daughters with cf

>

>

>

[Guest guest]

they were saying itis because she works 2 days a week.. and that they did not

think she needs all this meds to function daily.. i was ready to lose it. my

youngest daughter has the same insurance but she does not work.. my oldest

daughter only works so she can feel like she has her own money. she is in her

3rd year of college. patty

[Guest guest]

Hi Patty,

It is horrible that they want to take away her independence like that, so I

am assuming that if she sat at home and did nothing with her life then it

would be acceptable and they would insure her, I wonder if the people who

decide whether or not a person needs meds ever had to deal with anything

worse than a hang nail. I hate insurance companies almost as much as I hate

CF. Hoping all works out for her, and for you, this has to be extremely

stressful.

Take care,

, mommy of 4, (17), and now a permitted driver, oh I am either

getting old or just prematurely gray, Caleb (7) and still bossing the others

around thinking he is the man of the house even though his daddy is home,

(6) she is gonna be my artist and support her momma, since none of them

are ever leaving home so they say, and (2 1/2) I believe he will be a

baseball player, has the best throw of anyone I know, and I have the bruises

to prove it, a big ole attitude, bright blue eyes and a devlish little grin,

oh yeah, and he has CF.

[Guest guest]

linda, thanks so much..i will let you no how things turn out.. patty

[Guest guest]

FYI

>> > > Passing on healthy info.

>> > >

>> > > I just wanted to pass some information on to you.

>> > > I was watching Channel 2 this morning. They had a Dr.

Fujimoto

>> > from

>> > > Castle Hospital on the program.

>> > > He is the manager of the Wellness Program at the hospital. He was

>> > talking

>> > > about dioxins and how bad they are for us. He said that we should

>not

>> be

>> > > heating our food in the microwave using plastic containers.

>> > >

>> > > This applies to foods that contain fat. He said that the combination

of

>> > > fat, high heat and plastics releases dioxins into the food and

>> ultimately

>> > > into the cells of the body.

>> > >

>> > > Dioxins are carcinogens and highly toxic to the cells of our

>bodies.

>> > > Instead, he recommends using glass, Corning Ware, or ceramic

containers

>> > for

>> > > heating food. You get the same results without the dioxins. So such

>> > things

>> > > as TV dinners, instant sandwiches and soups, etc. should be removed

>> from

>> > > the container and heated in something else. Paper isn't bad but you

>> don't

>> > > know what is in the paper.

>> > >

>> > > Just safer to use tempered glass, Corning Ware, etc.

>> > > He said we might remember when some of the fast food

>> > > restaurants moved away from the foam containers to paper. The

>dioxin

>> > > problem is one of the reasons.

>> > >

>> > > Pass this on to your friends.

>> > >

[Guest guest]

FYI

>> > > Passing on healthy info.

>> > >

>> > > I just wanted to pass some information on to you.

>> > > I was watching Channel 2 this morning. They had a Dr.

Fujimoto

>> > from

>> > > Castle Hospital on the program.

>> > > He is the manager of the Wellness Program at the hospital. He was

>> > talking

>> > > about dioxins and how bad they are for us. He said that we should

>not

>> be

>> > > heating our food in the microwave using plastic containers.

>> > >

>> > > This applies to foods that contain fat. He said that the combination

of

>> > > fat, high heat and plastics releases dioxins into the food and

>> ultimately

>> > > into the cells of the body.

>> > >

>> > > Dioxins are carcinogens and highly toxic to the cells of our

>bodies.

>> > > Instead, he recommends using glass, Corning Ware, or ceramic

containers

>> > for

>> > > heating food. You get the same results without the dioxins. So such

>> > things

>> > > as TV dinners, instant sandwiches and soups, etc. should be removed

>> from

>> > > the container and heated in something else. Paper isn't bad but you

>> don't

>> > > know what is in the paper.

>> > >

>> > > Just safer to use tempered glass, Corning Ware, etc.

>> > > He said we might remember when some of the fast food

>> > > restaurants moved away from the foam containers to paper. The

>dioxin

>> > > problem is one of the reasons.

>> > >

>> > > Pass this on to your friends.

>> > >

[Guest guest]

,

My prayers are with you.

(((HUGS)))

KimNY

[Guest guest]

,

My prayers are with you.

(((HUGS)))

KimNY

[Guest guest]

,

My prayers are with you.

(((HUGS)))

KimNY

[Guest guest]

keep me informed . I hope your swelling goes down soon

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

(no subject)

> Hello Joan and everyon else, I was just writing to Mark, I had a bad

attack

> last night and went to the ER in an ambulance, I forgot to tell him i had

a

> fever, it broke, thank God, they gave me some strong meds that knocked me

out

> and I just woke up 30 minutes ago, i am sore but, can walk and think now,

i

> will keep everyone posted, they said my lipase levels are high but, my

> amilase (sp?) are fine, they said my pancreas is swollen and inflamed and

> they do not know why that is why they are going to run all these tests

today,

> well, i have to get going to the hospital, i will talk to you later.

HUGS,

>

>

>

>

[Guest guest]

keep me informed . I hope your swelling goes down soon

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

(no subject)

> Hello Joan and everyon else, I was just writing to Mark, I had a bad

attack

> last night and went to the ER in an ambulance, I forgot to tell him i had

a

> fever, it broke, thank God, they gave me some strong meds that knocked me

out

> and I just woke up 30 minutes ago, i am sore but, can walk and think now,

i

> will keep everyone posted, they said my lipase levels are high but, my

> amilase (sp?) are fine, they said my pancreas is swollen and inflamed and

> they do not know why that is why they are going to run all these tests

today,

> well, i have to get going to the hospital, i will talk to you later.

HUGS,

>

>

>

>

[Guest guest]

keep me informed . I hope your swelling goes down soon

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

(no subject)

> Hello Joan and everyon else, I was just writing to Mark, I had a bad

attack

> last night and went to the ER in an ambulance, I forgot to tell him i had

a

> fever, it broke, thank God, they gave me some strong meds that knocked me

out

> and I just woke up 30 minutes ago, i am sore but, can walk and think now,

i

> will keep everyone posted, they said my lipase levels are high but, my

> amilase (sp?) are fine, they said my pancreas is swollen and inflamed and

> they do not know why that is why they are going to run all these tests

today,

> well, i have to get going to the hospital, i will talk to you later.

HUGS,

>

>

>

>

[Guest guest]

Thankyou very much Kim! HUGS,

[Guest guest]

Thankyou very much Kim! HUGS,

[Guest guest]

Thankyou very much Kim! HUGS,

[Guest guest]

Kathy,

That is so cute!! It is really neat how the sibling that don't have CF will

try to do all they can to help there siblings that do have CF. Deb A

[Guest guest]

Kathy,

That is so cute!! It is really neat how the sibling that don't have CF will

try to do all they can to help there siblings that do have CF. Deb A

[Guest guest]

Kathy Jo,

Alysun is certainly going to make a great cf doctor when she is older!

Aunt B ----------------- to Rodney 11 wcf

[Guest guest]

Kathy Jo,

Alysun is certainly going to make a great cf doctor when she is older!

Aunt B ----------------- to Rodney 11 wcf

[Guest guest]

Kathy -

From the mouths of babes, heh? Maybe we should

let some of those genetic researchers know about

this!

hugs,

C

Mommy to Mick and Alli, 2 yo twins wcf

--- Kathybrad@... wrote:

>

>

> Hello all, I hope you are all doing well. Below is

> what Alysun came up with

> to cure her sisters CF, she is set on finding the

> cure, but she is okay with

> someone finding the cure before her.

> The Cure

>

>

>

> My name is Alysun Braddock, I am ten years old,

> I have a sister who is

> eleven years old with Cystic Fibrosis and I figured

> out a way to cure Cystic

> Fibrosis. You take the genes of a regular person and

> put it in a Cystic

> Fibrosis child, the genes will grow inside of them

> to become a regular

> person. Thank you for your time.

>

> Respectfully,

> Alysun Braddock

>

>

> Kathy JoMom of Aimee11wcf and Alysun10wocf

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Kathy -

From the mouths of babes, heh? Maybe we should

let some of those genetic researchers know about

this!

hugs,

C

Mommy to Mick and Alli, 2 yo twins wcf

--- Kathybrad@... wrote:

>

>

> Hello all, I hope you are all doing well. Below is

> what Alysun came up with

> to cure her sisters CF, she is set on finding the

> cure, but she is okay with

> someone finding the cure before her.

> The Cure

>

>

>

> My name is Alysun Braddock, I am ten years old,

> I have a sister who is

> eleven years old with Cystic Fibrosis and I figured

> out a way to cure Cystic

> Fibrosis. You take the genes of a regular person and

> put it in a Cystic

> Fibrosis child, the genes will grow inside of them

> to become a regular

> person. Thank you for your time.

>

> Respectfully,

> Alysun Braddock

>

>

> Kathy JoMom of Aimee11wcf and Alysun10wocf

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hope she's on the right track for a cure.

(no subject)

>

>

> Hello all, I hope you are all doing well. Below is what Alysun came up

with

> to cure her sisters CF, she is set on finding the cure, but she is okay

with

> someone finding the cure before her.

> The Cure

>

>

>

> My name is Alysun Braddock, I am ten years old, I have a sister who is

> eleven years old with Cystic Fibrosis and I figured out a way to cure

Cystic

> Fibrosis. You take the genes of a regular person and put it in a Cystic

> Fibrosis child, the genes will grow inside of them to become a regular

> person. Thank you for your time.

>

> Respectfully,

> Alysun Braddock

>

>

> Kathy JoMom of Aimee11wcf and Alysun10wocf

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hope she's on the right track for a cure.

(no subject)

>

>

> Hello all, I hope you are all doing well. Below is what Alysun came up

with

> to cure her sisters CF, she is set on finding the cure, but she is okay

with

> someone finding the cure before her.

> The Cure

>

>

>

> My name is Alysun Braddock, I am ten years old, I have a sister who is

> eleven years old with Cystic Fibrosis and I figured out a way to cure

Cystic

> Fibrosis. You take the genes of a regular person and put it in a Cystic

> Fibrosis child, the genes will grow inside of them to become a regular

> person. Thank you for your time.

>

> Respectfully,

> Alysun Braddock

>

>

> Kathy JoMom of Aimee11wcf and Alysun10wocf

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hope she's on the right track for a cure.

(no subject)

>

>

> Hello all, I hope you are all doing well. Below is what Alysun came up

with

> to cure her sisters CF, she is set on finding the cure, but she is okay

with

> someone finding the cure before her.

> The Cure

>

>

>

> My name is Alysun Braddock, I am ten years old, I have a sister who is

> eleven years old with Cystic Fibrosis and I figured out a way to cure

Cystic

> Fibrosis. You take the genes of a regular person and put it in a Cystic

> Fibrosis child, the genes will grow inside of them to become a regular

> person. Thank you for your time.

>

> Respectfully,

> Alysun Braddock

>

>

> Kathy JoMom of Aimee11wcf and Alysun10wocf

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hello ,does any one know where I can get info for a child with down syndrom.

thanks