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Posted

I've had vulvar vestibulitis for 17 years. I developed VVS after

the birth of my first son. Unfortunately, I wasn't properly

diagnosed until 3 years later. I was determined to find out what

was wrong. I spent one year with my first gyn doctor, who basically

told me there was nothing wrong and it was all in my head. I kept

going back, stating there definately was something wrong. I was in

excrutiating pain. The pain kept getting worse. To make a long

story short. I saw 10 doctors in the process of 3 years to search

for a diagnosis. It was exhausting. I finally found a doctor, who

was knowledgable regarding vulvar disorders. He put me on many

different treatments and at the end of the year with many failed

treatments. I opted for surgery. I was scared but felt I didn't

have any other choice. I was unable to have sex with my husband. I

had a 3year old son, who needed his mother. I was very depressed and

lonely. No one to talk to about vvs but my family, who was very

tired of hearing me talk about it. I had surgery in 1994 and slowly

started feeling better. I went on to have 2 more children. I do

have recurrent vvs usually every three years or so. I had a bad

yeast infection last week and now my s/s of vvs are back. I am

excited about this website because I have never spoken to anyone

with vvs. I would love to hear from others with vvs. Thanks

Posted

,

Hi, I'm 24 years old, I have Vulvar Vestibulitis and was diagnosed late last year.

**

Hi, I'm New here

I've had vulvar vestibulitis for 17 years. I developed VVS after

the birth of my first son. Unfortunately, I wasn't properly

diagnosed until 3 years later. I was determined to find out what

was wrong. I spent one year with my first gyn doctor, who basically

told me there was nothing wrong and it was all in my head. I kept

going back, stating there definately was something wrong. I was in

excrutiating pain. The pain kept getting worse. To make a long

story short. I saw 10 doctors in the process of 3 years to search

for a diagnosis. It was exhausting. I finally found a doctor, who

was knowledgable regarding vulvar disorders. He put me on many

different treatments and at the end of the year with many failed

treatments. I opted for surgery. I was scared but felt I didn't

have any other choice. I was unable to have sex with my husband. I

had a 3year old son, who needed his mother. I was very depressed and

lonely. No one to talk to about vvs but my family, who was very

tired of hearing me talk about it. I had surgery in 1994 and slowly

started feeling better. I went on to have 2 more children. I do

have recurrent vvs usually every three years or so. I had a bad

yeast infection last week and now my s/s of vvs are back. I am

excited about this website because I have never spoken to anyone

with vvs. I would love to hear from others with vvs. Thanks

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