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Guest guest
Posted

HI everyone...

I am getting my 2 yr old son evaluated next week. I have been around

several boards, but a lot aren't very active.

My son started babbling when he was an infant. Everything seemed like he

was starting to go down the speech path. But it never did. He started to say

Da. Which then became the word for everyone. Me, his sisters, grandparents,

are all Da. He uses the word Ga, which is thank you and cat.

He says yay and whoa too. He will also count to 3 and say go it sounds

something like /g/ /g/ /g/- GO! Time went by and at about 20 mos EI came

out. A psychologist and ST were there. He was normal in everything except

speech. They said significant delay in speech. Since overall (he pointed

grunted, made eye contact) they said he was mildly delayed and would not

take him on. My son is fine except he won't talk! He follows directions,he

understands way more than he can talk, has a great attention span, he is

normal except no talking. He hasn't made progress since about 16 mos old.

My mom got him to say WOOF clearly- all letters. Within seconds of repeating

it became just the /w/ sound.

I am the worry wart mom. I asked my DH was he thought thinking he would be

the 'sane' one. He said yes I think something is wrong. Before we even read

about apraxia, my DH said its like his brain isn't getting to his mouth, the

road is broken. So he can't talk. At the time I was like uh, ok. Whatever!

I then purchased the book- the late talker. It talked about apraxia

(Verbal). I read it to my husband and said...see! I told you! A lot of the

symptoms/signs point towards my son. Its the only speech delay/disorder that

finally fit him.

I dont know for sure this is what he has. Afterall I read it takes most ST

at least a few sessions to determine if a kid has it, sometimes not even

until they are at least 3 yrs old.

My son has been learning a few signs to get his points across. He's been

doing pretty good with that. The one thing my husband noticed too is that

he seems to have problem doing things with his hands. Like it's hard for

him to make a fist - I guess he can't manipulate his hand right to get it

down. We have to do it for him.

I guess thats it. What do you think? Just worrying for nothing?

Thanks for reading!

I hope its not what he has.

Guest guest
Posted

Hi April-

I don't think you are worrying over nothing. I would get a second

opinion ASAP. A two year old should have lots of words. I would

definitely not wait until he turns three - the earlier you intervene

the better.

At least in my area, it seems that EI likes to take the " wait and see "

approach because they only serve children up to age 3. (Yes, I'm

cynical, but I have reason for it!).

good luck,

>

>

> HI everyone...

> I am getting my 2 yr old son evaluated next week. I have been around

> several boards, but a lot aren't very active.

> My son started babbling when he was an infant. Everything seemed

like he

> was starting to go down the speech path. But it never did. He

started to say

> Da. Which then became the word for everyone. Me, his sisters,

grandparents,

> are all Da. He uses the word Ga, which is thank you and cat.

> He says yay and whoa too. He will also count to 3 and say go it sounds

> something like /g/ /g/ /g/- GO! Time went by and at about 20 mos EI

came

> out. A psychologist and ST were there. He was normal in everything

except

> speech. They said significant delay in speech. Since overall (he

pointed

> grunted, made eye contact) they said he was mildly delayed and would

not

> take him on. My son is fine except he won't talk! He follows

directions,he

> understands way more than he can talk, has a great attention span,

he is

> normal except no talking. He hasn't made progress since about 16 mos

old.

> My mom got him to say WOOF clearly- all letters. Within seconds of

repeating

> it became just the /w/ sound.

> I am the worry wart mom. I asked my DH was he thought thinking he

would be

> the 'sane' one. He said yes I think something is wrong. Before we

even read

> about apraxia, my DH said its like his brain isn't getting to his

mouth, the

> road is broken. So he can't talk. At the time I was like uh, ok.

Whatever!

> I then purchased the book- the late talker. It talked about apraxia

> (Verbal). I read it to my husband and said...see! I told you! A

lot of the

> symptoms/signs point towards my son. Its the only speech

delay/disorder that

> finally fit him.

> I dont know for sure this is what he has. Afterall I read it takes

most ST

> at least a few sessions to determine if a kid has it, sometimes not

even

> until they are at least 3 yrs old.

> My son has been learning a few signs to get his points across. He's

been

> doing pretty good with that. The one thing my husband noticed too

is that

> he seems to have problem doing things with his hands. Like it's

hard for

> him to make a fist - I guess he can't manipulate his hand right to

get it

> down. We have to do it for him.

>

> I guess thats it. What do you think? Just worrying for nothing?

>

> Thanks for reading!

> I hope its not what he has.

>

Guest guest
Posted

HI, he did get evaluation from EI at 20 mos...which is when they said

significant speech delay, overall mild communication delay. Since overall

was mild they wouldn't take him on. I agree with saying that they are more

picky about who they help. I think for a few reasons. One being it's

basically a free service.

He is getting reevaluated on the 21st, this time by a private place. I am

still concerned b/c his lack of speech still exists while everything else

moves smoothly along! The place I called said EI will take over if there is

a problem. Which I am hoping somehow (I know its hard) to get my insurance

to pay. EI let me down the 1st time and I feel like they have wasted about 5

months worth of therapy! At the same time, if I can't get insurance to

cover- I guess its better than nothing!!

My next question is... I've been reading a little about vitamins/supplements

helping children with speech. I am very curious to try something like that.

What is best thing to do for a 2 yr old?

Thanks. to all!

>From: myra.bauza@...

>Reply-

>

>Subject: Re: [ ] Apraxia?

>Date: Mon, 13 Mar 2006 09:21:38 -0500

>

>I would have your son evaluated by a developmental pediatrician who has

>experience with Apraxia. My story: At 1 y.o., I had a feeling there was

>something wrong and my pediatrician said wait until 2 y.o. (he's a boy). At

>2 y.o., I had him evaluated by a Speech Pathologist that said his speech

>was at a 7-9 months level and so he qualified for the Early Intervention

>program run by the state. Most states have Early Intervention. He received

>both Speech & OT; Speech 2x a week and OT once a week. He made very little

>progress. At age 3, he qualified for the Speech Delay Preschool Program in

>our local public school where he would receive Speech 3x a week and OT 2x a

>week. I also had him seen by a developmental pediatrician and she

>immediately ruled out Autism and said he had Apraxia and slight Hyptonia in

>his forearms. She asked me to put him on EFA and a multi-vitamin and to get

>him additional speech therapy. Today, at 4 y.o., he has Speech 5x a week

>and OT 2x a week. The speech has improved tremendously. He is trying to

>speak in 3-5 word sentences. We understand him 70% of the time. We lose

>comprehension when he goes on and on......We are just grateful that he

>makes the attempt all the time now. I was so overanxious when he was so

>quiet. Saying all that, you too should have your son evaluated. At 2 y.o. ,

>he may too young to fully diagnose; however, he can qualify for Early

>Intervention in your state.

>

Guest guest
Posted

Hi,

I'm not all that familiar with the law, but I don't think that EI is

allowed to deny you because " overall " he is mild. I don't even

think they're allowed to combine receptive and expressive language

scores, much less all areas of development! Maybe someone who's

more knowledgable will be able to help you out with this...

Have you started your son on EFAs? That's where parents usually

start when it comes to vitamins and supplements.

Kerri

>

> HI, he did get evaluation from EI at 20 mos...which is when they

said

> significant speech delay, overall mild communication delay. Since

overall

> was mild they wouldn't take him on. I agree with saying that they

are more

> picky about who they help. I think for a few reasons. One being

it's

> basically a free service.

> He is getting reevaluated on the 21st, this time by a private

place. I am

> still concerned b/c his lack of speech still exists while

everything else

> moves smoothly along! The place I called said EI will take over

if there is

> a problem. Which I am hoping somehow (I know its hard) to get my

insurance

> to pay. EI let me down the 1st time and I feel like they have

wasted about 5

> months worth of therapy! At the same time, if I can't get

insurance to

> cover- I guess its better than nothing!!

>

> My next question is... I've been reading a little about

vitamins/supplements

> helping children with speech. I am very curious to try something

like that.

> What is best thing to do for a 2 yr old?

>

> Thanks. to all!

>

>

> >From: myra.bauza@...

> >Reply-

> >

> >Subject: Re: [ ] Apraxia?

> >Date: Mon, 13 Mar 2006 09:21:38 -0500

> >

> >I would have your son evaluated by a developmental pediatrician

who has

> >experience with Apraxia. My story: At 1 y.o., I had a feeling

there was

> >something wrong and my pediatrician said wait until 2 y.o. (he's

a boy). At

> >2 y.o., I had him evaluated by a Speech Pathologist that said his

speech

> >was at a 7-9 months level and so he qualified for the Early

Intervention

> >program run by the state. Most states have Early Intervention. He

received

> >both Speech & OT; Speech 2x a week and OT once a week. He made

very little

> >progress. At age 3, he qualified for the Speech Delay Preschool

Program in

> >our local public school where he would receive Speech 3x a week

and OT 2x a

> >week. I also had him seen by a developmental pediatrician and she

> >immediately ruled out Autism and said he had Apraxia and slight

Hyptonia in

> >his forearms. She asked me to put him on EFA and a multi-vitamin

and to get

> >him additional speech therapy. Today, at 4 y.o., he has Speech 5x

a week

> >and OT 2x a week. The speech has improved tremendously. He is

trying to

> >speak in 3-5 word sentences. We understand him 70% of the time.

We lose

> >comprehension when he goes on and on......We are just grateful

that he

> >makes the attempt all the time now. I was so overanxious when he

was so

> >quiet. Saying all that, you too should have your son evaluated.

At 2 y.o. ,

> >he may too young to fully diagnose; however, he can qualify for

Early

> >Intervention in your state.

> >

>

Guest guest
Posted

Essential Fatty Acids...Most use the brand from Nordic Naturals..

" Jon and April "

<jonaprilpow@...

> cc:

Sent by: Subject: Re:

[ ] Apraxia?

@yaho

ogroups.com

03/13/2006 01:24 PM

Please respond to

HI, he did get evaluation from EI at 20 mos...which is when they said

significant speech delay, overall mild communication delay. Since overall

was mild they wouldn't take him on. I agree with saying that they are more

picky about who they help. I think for a few reasons. One being it's

basically a free service.

He is getting reevaluated on the 21st, this time by a private place. I am

still concerned b/c his lack of speech still exists while everything else

moves smoothly along! The place I called said EI will take over if there

is

a problem. Which I am hoping somehow (I know its hard) to get my insurance

to pay. EI let me down the 1st time and I feel like they have wasted about

5

months worth of therapy! At the same time, if I can't get insurance to

cover- I guess its better than nothing!!

My next question is... I've been reading a little about

vitamins/supplements

helping children with speech. I am very curious to try something like that.

What is best thing to do for a 2 yr old?

Thanks. to all!

Guest guest
Posted

EI did NOT offer services b/c his overal communication skills were mildly

delayed. Here in upstate NY, they told me there has to be more than 33%

deficit for them to take anyone on OR 25% in 2 areas.

Since my son's only delay/disorder is speech and to them they averaged it

out with his overall communication abilities it put him only mildly delayed.

At about 20% deficit. His speech alone they noted was significantly delayed.

I would like to start him on EFA. What mg amount is typically given to small

children? Can i just buy regular old fishoil capsules? My hubby has some

here, it looks like it has all the things in it he needs, but its 1000mg

pill.

Thanks!

>From: " Jeff " <kerripat@...>

>Reply-

>

>Subject: [ ] Re: Apraxia?

>Date: Mon, 13 Mar 2006 19:29:37 -0000

>

>Hi,

>

>I'm not all that familiar with the law, but I don't think that EI is

>allowed to deny you because " overall " he is mild. I don't even

>think they're allowed to combine receptive and expressive language

>scores, much less all areas of development! Maybe someone who's

>more knowledgable will be able to help you out with this...

>

>Have you started your son on EFAs? That's where parents usually

>start when it comes to vitamins and supplements.

>

>Kerri

Guest guest
Posted

At 12:29 PM 3/13/2006, you wrote:

>Hi,

>

>I'm not all that familiar with the law, but I don't think that EI is

>allowed to deny you because " overall " he is mild. I don't even

>think they're allowed to combine receptive and expressive language

>scores, much less all areas of development! Maybe someone who's

>more knowledgable will be able to help you out with this...

>

>Have you started your son on EFAs? That's where parents usually

>start when it comes to vitamins and supplements.

>

>Kerri

I agree. Did I reply to this? I think I wrote something up and never hit

send! :( I was going to suggest outside evals if you can. In my state you

just need a 25% delay or greater in ANY area to get therapy. My son at 2

only qualified for speech, but by 2.5 he qualified for some OT and EI

services as well after we got an independent evaluation. I'd look into the

law for your state.

Miche

Guest guest
Posted

Landon almost didn't qualify for EI for speech when he was 19 months

old. Here in GA, you need a 30% delay for services. Landon didn't

qualify for under speech, but did qualify for language/communication

done by developmental eval. This last speech eval he had in Oct

(26mo) he was at a 25% delay for expresive communication. Which

makes no sense to me, but that is what it came out to. I do know if

you qualify for two things the % for qualification goes down. Maybe

you should try to get him evaluated for OT also.

Good luck

Tina

>

> Hi,

>

> I'm not all that familiar with the law, but I don't think that EI

is

> allowed to deny you because " overall " he is mild. I don't even

> think they're allowed to combine receptive and expressive language

> scores, much less all areas of development! Maybe someone who's

> more knowledgable will be able to help you out with this...

>

> Have you started your son on EFAs? That's where parents usually

> start when it comes to vitamins and supplements.

>

> Kerri

Guest guest
Posted

I don't know too much as I'm still learning the in and outs of this dx. I

can show you my sons test scores from July 05 and Feb 06 (he is transition

to the school district). You can see that his primary difficulties fall in

expressive and we have had no trouble receiving services for the last year

and half. You can see from the table we haven't made much progress either.

It seems you need a second opinion. I have a report from July 05 (same

month as the first test) from a developmental ped who said he is fine, no

neuro problems, just a late starter! I keep it for laughs!! My point is

that my son's scores were never combined to determine eligibility. A severe

delay in any area is worth investigating. Good luck, Karin

July 29, 2005 (27 months)

February 27, 2006 (34 months)

BDI Component

Percentile

Rank

Age Equivalent

Percentile

Rank

Age Equivalent

Personal-Social

1

19 mos.

73

35 mos.

Adaptive

1

19 mos.

30

26 mos.

Fine Motor

38

27 mos.

40

28 mos.

Gross Motor

27

28 mos.

61

35-38

mos.

Receptive Communication

11

21-22 mos.

27

25-26 mos.

Expressive Communication

1

11 mos.

1

15 mos.

Cognitive

25

23 mos.

38

28 mos.

BDI Total

1

22

42

29 mos.

[ ] Re: Apraxia?

Hi,

I'm not all that familiar with the law, but I don't think that EI is

allowed to deny you because " overall " he is mild. I don't even

think they're allowed to combine receptive and expressive language

scores, much less all areas of development! Maybe someone who's

more knowledgable will be able to help you out with this...

Have you started your son on EFAs? That's where parents usually

start when it comes to vitamins and supplements.

Kerri

Guest guest
Posted

Sounds like my son - 6 months ago, when he was 24 months...its not too

early. Yes apraxia CAN be diagnoses by age 2 (although no one will diagnose

it before 2...even if its suspected). Our first develop pediatrician told us

to wait a year until 3 - valuable time would have been lost...got the 2nd

opinion who diagnosied apraxia at 2 years, 1 month...and we were able to

increase private ST through EI to twice a week with this diagnosis. (We

bumped to 3 times a week out of pocket, and are making great strides).

Earlier is better. Sounds like he definitely needs ST - which you can get

through EI - but usually not sufficient sessions. He needs a SLP or

developmental pediatrician or ped neurologist eval to help you with the

diagnosis. But the trick is finding someone with apraxia/dyspraxia

experience, or its a waste of time. Difficulty with hands etc sounds like

there maybe more global apraxia? Was your son late on motor milestones like

sitting, crawling, walking? (Mine walked at 17.5 months - which is still on

the outer end of normal, but there was something not quite right - now we

know he has low trunkal and upper extremity tone - that contributed to poor

coordination...working with OT for that. If evidence for low tone

(hypotonia), your insurance will cover an OT evaluation with that diagnosis.

But the low tone may not be so obvious unless a skilled examiner is

evaluating for this.

Hard to say yes or no apraxia for sure based on this - but I also felt once

I had learned more about apraxia that it was the only diagnosis that made

sense of what we were seeing with my son. Good luck.

PS, at the risk of repeating myself...again. Just a suggestion, but try

omegas. Order Pro-EFA or omega 3/6/9 (cheaper but the same ingredients -

available from nordic naturals - order on line, in liquid or pill form; 2

pills = 1/2 tsp), and start giving your son 1/2 teaspoon in the AM. See if

you aren't pleasantly surprised. As you have read on this site, it doesn't

work for everyone, but when it does - its pretty amazing, and a safe, benign

intervention. We have had success with much higher doses, so you may want to

go to twice a day after a few weeks, but definitely worth getting started

while you are trying to find the right folks to evaluate your son, and

getting on the long waiting lists for the developmental pediatrician.

-

[ ] Apraxia?

HI everyone...

I am getting my 2 yr old son evaluated next week. I have been around

several boards, but a lot aren't very active.

My son started babbling when he was an infant. Everything seemed like he

was starting to go down the speech path. But it never did. He started to say

Da. Which then became the word for everyone. Me, his sisters, grandparents,

are all Da. He uses the word Ga, which is thank you and cat.

He says yay and whoa too. He will also count to 3 and say go it sounds

something like /g/ /g/ /g/- GO! Time went by and at about 20 mos EI came

out. A psychologist and ST were there. He was normal in everything except

speech. They said significant delay in speech. Since overall (he pointed

grunted, made eye contact) they said he was mildly delayed and would not

take him on. My son is fine except he won't talk! He follows directions,he

understands way more than he can talk, has a great attention span, he is

normal except no talking. He hasn't made progress since about 16 mos old.

My mom got him to say WOOF clearly- all letters. Within seconds of repeating

it became just the /w/ sound.

I am the worry wart mom. I asked my DH was he thought thinking he would be

the 'sane' one. He said yes I think something is wrong. Before we even read

about apraxia, my DH said its like his brain isn't getting to his mouth, the

road is broken. So he can't talk. At the time I was like uh, ok. Whatever!

I then purchased the book- the late talker. It talked about apraxia

(Verbal). I read it to my husband and said...see! I told you! A lot of the

symptoms/signs point towards my son. Its the only speech delay/disorder that

finally fit him.

I dont know for sure this is what he has. Afterall I read it takes most ST

at least a few sessions to determine if a kid has it, sometimes not even

until they are at least 3 yrs old.

My son has been learning a few signs to get his points across. He's been

doing pretty good with that. The one thing my husband noticed too is that

he seems to have problem doing things with his hands. Like it's hard for

him to make a fist - I guess he can't manipulate his hand right to get it

down. We have to do it for him.

I guess thats it. What do you think? Just worrying for nothing?

Thanks for reading!

I hope its not what he has.

Guest guest
Posted

You have to fight them to not " average " the results of different areas

evaluated. Its my understanding that a delay in expressive language of > 33%

qualifies for EI. So scoring in the 7-9 month arena for a 20 month old is a

severe delay and should qualify for EI. You've entered an area where we have

to learn our rights. Assuming everyone will " just do the right thing " -

which is where I started with our initial concerns that began when my son

was 5-6 months and not babbling...is the wrong approach. Less than 10 words

at 18 months, or 50 words at 24 months, or no 2-word utterances at 24 months

is reason for URGENT referral to a developmental pediatrician. You are

already there. I also posted about omega -3 supplements. I'm sure you will

hear more on the supplement issue. -

Re: [ ] Apraxia?

>Date: Mon, 13 Mar 2006 09:21:38 -0500

>

>I would have your son evaluated by a developmental pediatrician who has

>experience with Apraxia. My story: At 1 y.o., I had a feeling there was

>something wrong and my pediatrician said wait until 2 y.o. (he's a boy). At

>2 y.o., I had him evaluated by a Speech Pathologist that said his speech

>was at a 7-9 months level and so he qualified for the Early Intervention

>program run by the state. Most states have Early Intervention. He received

>both Speech & OT; Speech 2x a week and OT once a week. He made very little

>progress. At age 3, he qualified for the Speech Delay Preschool Program in

>our local public school where he would receive Speech 3x a week and OT 2x a

>week. I also had him seen by a developmental pediatrician and she

>immediately ruled out Autism and said he had Apraxia and slight Hyptonia in

>his forearms. She asked me to put him on EFA and a multi-vitamin and to get

>him additional speech therapy. Today, at 4 y.o., he has Speech 5x a week

>and OT 2x a week. The speech has improved tremendously. He is trying to

>speak in 3-5 word sentences. We understand him 70% of the time. We lose

>comprehension when he goes on and on......We are just grateful that he

>makes the attempt all the time now. I was so overanxious when he was so

>quiet. Saying all that, you too should have your son evaluated. At 2 y.o. ,

>he may too young to fully diagnose; however, he can qualify for Early

>Intervention in your state.

>

Guest guest
Posted

-

When he gets retested, also ask for a supplemental OT evaluation due

to coordination and fine motor concerns. Is he self feeding with his

fingers or utensils? If it shows as a problem, now you've a way to

qualify. Don't let the Special ed teacher or psychologist say that

the fine motor was ok, tell them you want an OT to evaluate the lack

of quality in the movement/possible motor planning difficulties

(excedingly common in apraxia).

How is his balance when standing or walking? Difficulty doing stairs

with handrail? Can he walk backwards? Can he kick/throw a ball?

Maintain a kneeling position without losing his balance? If he has

problems with any of thse activities, ask for a PT supplemental

evaluation.

A private agency will usually " push " harder for your child to receive

the appropriate services.

Good Luck and keep us informed

-- In , " maryebe " <eberlein@...>

wrote:

>

> Hi April-

>

> I don't think you are worrying over nothing. I would get a second

> opinion ASAP. A two year old should have lots of words. I would

> definitely not wait until he turns three - the earlier you intervene

> the better.

>

> At least in my area, it seems that EI likes to take the " wait and

see "

> approach because they only serve children up to age 3. (Yes, I'm

> cynical, but I have reason for it!).

>

> good luck,

>

>

>

> >

> >

> > HI everyone...

> > I am getting my 2 yr old son evaluated next week. I have been

around

> > several boards, but a lot aren't very active.

> > My son started babbling when he was an infant. Everything seemed

> like he

> > was starting to go down the speech path. But it never did. He

> started to say

> > Da. Which then became the word for everyone. Me, his sisters,

> grandparents,

> > are all Da. He uses the word Ga, which is thank you and cat.

> > He says yay and whoa too. He will also count to 3 and say go it

sounds

> > something like /g/ /g/ /g/- GO! Time went by and at about 20 mos

EI

> came

> > out. A psychologist and ST were there. He was normal in everything

> except

> > speech. They said significant delay in speech. Since overall (he

> pointed

> > grunted, made eye contact) they said he was mildly delayed and

would

> not

> > take him on. My son is fine except he won't talk! He follows

> directions,he

> > understands way more than he can talk, has a great attention span,

> he is

> > normal except no talking. He hasn't made progress since about 16

mos

> old.

> > My mom got him to say WOOF clearly- all letters. Within seconds of

> repeating

> > it became just the /w/ sound.

> > I am the worry wart mom. I asked my DH was he thought thinking he

> would be

> > the 'sane' one. He said yes I think something is wrong. Before we

> even read

> > about apraxia, my DH said its like his brain isn't getting to his

> mouth, the

> > road is broken. So he can't talk. At the time I was like uh, ok.

> Whatever!

> > I then purchased the book- the late talker. It talked about

apraxia

> > (Verbal). I read it to my husband and said...see! I told you! A

> lot of the

> > symptoms/signs point towards my son. Its the only speech

> delay/disorder that

> > finally fit him.

> > I dont know for sure this is what he has. Afterall I read it takes

> most ST

> > at least a few sessions to determine if a kid has it, sometimes

not

> even

> > until they are at least 3 yrs old.

> > My son has been learning a few signs to get his points across.

He's

> been

> > doing pretty good with that. The one thing my husband noticed

too

> is that

> > he seems to have problem doing things with his hands. Like it's

> hard for

> > him to make a fist - I guess he can't manipulate his hand right to

> get it

> > down. We have to do it for him.

> >

> > I guess thats it. What do you think? Just worrying for nothing?

> >

> > Thanks for reading!

> > I hope its not what he has.

> >

>

Guest guest
Posted

Hello

My daughter Andrianna has Dyspraxia which is very little amount of words and

she is 2.4 years old. I asked the Paedaetrician if she has Dyspraxia and he

said yes looks like she does have Dyspraxia. I had been reading on the

Internet. She was diagnosed with Global Developmental Delays in November 2004

which is all aspects of her development.

He asked her to say a few words but she did not speak but seem to understand

what you are saying to her.

I do hope that you have a nice day and take care and you are very welcome to

IM me on christinerowe63976@... or chrissylionhearted@... anytime.

I do hope you have a good outcome as I find having Andrianna in daycare has

improved all aspects of her development.

Chrissy

Jon and April <jonaprilpow@...> wrote:

HI everyone...

I am getting my 2 yr old son evaluated next week. I have been around

several boards, but a lot aren't very active.

My son started babbling when he was an infant. Everything seemed like he

was starting to go down the speech path. But it never did. He started to say

Da. Which then became the word for everyone. Me, his sisters, grandparents,

are all Da. He uses the word Ga, which is thank you and cat.

He says yay and whoa too. He will also count to 3 and say go it sounds

something like /g/ /g/ /g/- GO! Time went by and at about 20 mos EI came

out. A psychologist and ST were there. He was normal in everything except

speech. They said significant delay in speech. Since overall (he pointed

grunted, made eye contact) they said he was mildly delayed and would not

take him on. My son is fine except he won't talk! He follows directions,he

understands way more than he can talk, has a great attention span, he is

normal except no talking. He hasn't made progress since about 16 mos old.

My mom got him to say WOOF clearly- all letters. Within seconds of repeating

it became just the /w/ sound.

I am the worry wart mom. I asked my DH was he thought thinking he would be

the 'sane' one. He said yes I think something is wrong. Before we even read

about apraxia, my DH said its like his brain isn't getting to his mouth, the

road is broken. So he can't talk. At the time I was like uh, ok. Whatever!

I then purchased the book- the late talker. It talked about apraxia

(Verbal). I read it to my husband and said...see! I told you! A lot of the

symptoms/signs point towards my son. Its the only speech delay/disorder that

finally fit him.

I dont know for sure this is what he has. Afterall I read it takes most ST

at least a few sessions to determine if a kid has it, sometimes not even

until they are at least 3 yrs old.

My son has been learning a few signs to get his points across. He's been

doing pretty good with that. The one thing my husband noticed too is that

he seems to have problem doing things with his hands. Like it's hard for

him to make a fist - I guess he can't manipulate his hand right to get it

down. We have to do it for him.

I guess thats it. What do you think? Just worrying for nothing?

Thanks for reading!

I hope its not what he has.

Guest guest
Posted

Oops! my table did come through much like a table. I have to type it out.

Karin

July 29, 2005 (27 months)

Feb 27,206 (34 months)

BDI Component Percentile Rank Age Equivalent

Percentile Rank Age Equivalent

Personal-Social 1 19mos

73 35mos

Adaptive 1

19 30 26

Fine Motor 38 27

40 28

Gross Motor 27 28

61 35-38

Receptive Communication 11 21-22

27 25-26

Expressive Communication 1 11

1 11

Cognitive 25

23 38 28

BDI Total 1

22 42 29

..

RE: [ ] Re: Apraxia?

I don't know too much as I'm still learning the in and outs of this dx. I

can show you my sons test scores from July 05 and Feb 06 (he is transition

to the school district). You can see that his primary difficulties fall in

expressive and we have had no trouble receiving services for the last year

and half. You can see from the table we haven't made much progress either.

It seems you need a second opinion. I have a report from July 05 (same

month as the first test) from a developmental ped who said he is fine, no

neuro problems, just a late starter! I keep it for laughs!! My point is

that my son's scores were never combined to determine eligibility. A severe

delay in any area is worth investigating. Good luck, Karin

July 29, 2005 (27 months)

February 27, 2006 (34 months)

BDI Component

Percentile

Rank

Age Equivalent

Percentile

Rank

Age Equivalent

Personal-Social

1

19 mos.

73

35 mos.

Adaptive

1

19 mos.

30

26 mos.

Fine Motor

38

27 mos.

40

28 mos.

Gross Motor

27

28 mos.

61

35-38

mos.

Receptive Communication

11

21-22 mos.

27

25-26 mos.

Expressive Communication

1

11 mos.

1

15 mos.

Cognitive

25

23 mos.

38

28 mos.

BDI Total

1

22

42

29 mos.

Guest guest
Posted

Thanks for typing it out. :-)

Its interesting to see how they score.

I hope soon to have an answer...can't wait for Monday!

April

>From: " Jerry and Karin " <jkfeagles@...>

>Reply-

>< >

>Subject: RE: [ ] Re: Apraxia?

>Date: Tue, 14 Mar 2006 14:54:02 -0000

>

>Oops! my table did come through much like a table. I have to type it out.

>Karin

>

>

> July 29, 2005 (27 months)

>Feb 27,206 (34 months)

>

>BDI Component Percentile Rank Age Equivalent

>Percentile Rank Age Equivalent

>

>Personal-Social 1

>19mos

>73 35mos

>Adaptive 1

>19 30 26

>Fine Motor 38 27

>40 28

>Gross Motor 27 28

>61 35-38

>Receptive Communication 11 21-22

>27 25-26

>Expressive Communication 1 11

>1 11

>Cognitive 25

>23 38 28

>BDI Total 1

>22 42 29

>

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