Re: Arimidex to Jan from Darlene

[Guest guest]

Hi Jan,

Wierd, but my pain started right after finishing chemo... I started having

massive pain in my back....there is where it all started......little by little

it worsend thru rad......it has continued since..........it was SO bad at one

point that I couldn't dress/take care of myself...Imagine.......through every

test there was...there was no dx. except for " long term side effects of tx....go

figure.......I was put on Femera and the doc's thought maybe that was

it.......yet the pain had started before so I don't know why they thought that

was it......anyway ...went off that..........no change..........ended up on

Arimidex.........had stopped that for a spell and didn't help. It's just

constant, period......on a scale of 1 to 10 I run about a 5 on a good

day...imagine? And that's with meds for pain.........I'm on

oxycodone........5mg. I usually take 4 a day..that's the average....(I've tried

SO many things for pain and this is the only thing that has helped

me).......some

days more cuz the pain is unbearable.........I just don't get it..neither do

any of my doc's. They all say it's from agressive treatment that I had and how

it affected me.......No wonder I am depressed is what I say........My

physicality is limited to a great degree. Something I am NOT used to.......and

continue to struggle with.......UGH!!!!!

If it wasn't for the mind stuff and the pain........I'd feel

better........DAH!!!!

Dunno.......take each day as it comes......

Through all this I have not had any swelling though........thank goodness

there.

As I said just taking each day as it comes........

Sorry to be such a drag........my glass ALWAYS used to be

halffull.........Don't know what to do with myself anymore...

Darlene

Jan Koelsch jkoelsch1950@...> wrote:

Hi, Darlene:

The pain started for me a little at a time about the third day after starting

Arimidex. It started in my left knee for some strange reason. Then it started in

my left hip and back on the left side. Just this past week the pain started in

my right knee and had progressed to my hands and fingers. I have experienced

swelling in my calf of the left leg and thigh. The worst pain, almost

unbearable, is in the left knee. It feels like someone is trying to put a hot

searing fire poker through my knee cap from the side.

What kind of things are you experiencing?

Jan K

andwemet03 andwemet03@...> wrote:

Hi,

Can I ask a couple questions? When did your pain start? Was it only after

starting the Arimidex? And does your pain travel to different places in the

body? Like: sometimes it's worse in the back, them maybe worse somewhere else?

I'm surious because I too have pain issues. I'll be watching the posts to

follow......

thanks,

Darlene

jkoelsch1950 jkoelsch1950@...> wrote:

I did contact my new oncologist yesterday because the pain in my

knees, hips, back and the new pains and swelling in my hands and legs

were getting worse. The doctor told me to discontinue the Arimidex for

one or two weeks. He wants to see if it is the medication or something

else. At least he is listening to my concerns. I hope that the pain

eases.

---------------------------------

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[Guest guest]

Darlene,

I had a friend who suffered from Lupus for many years. They put a pump in her

back somewhere that she could press something and get an extra does of morphine,

I think it was. Of course you couldn't keep pumping away. Only so amny times in

an hour. Continued prayers.

Hugs

nne

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Re: Arimidex to Jan from Darlene

Hi Jan,

Wierd, but my pain started right after finishing chemo... I started having

massive pain in my back....there is where it all started......little by little

it worsend thru rad......it has continued since..........it was SO bad at one

point that I couldn't dress/take care of myself...Imagine.......through every

test there was...there was no dx. except for " long term side effects of tx....go

figure.......I was put on Femera and the doc's thought maybe that was

it.......yet the pain had started before so I don't know why they thought that

was it......anyway ...went off that..........no change..........ended up on

Arimidex.........had stopped that for a spell and didn't help. It's just

constant, period......on a scale of 1 to 10 I run about a 5 on a good

day...imagine? And that's with meds for pain.........I'm on

oxycodone........5mg. I usually take 4 a day..that's the average....(I've tried

SO many things for pain and this is the only thing that as helped me).......some

days more cuz the pain is unbearable.........I just don't get it..neither do

any of my doc's. They all say it's from agressive treatment that I had and how

it affected me.......No wonder I am depressed is what I say........My

physicality is limited to a great degree. Something I am NOT used to.......and

continue to struggle with.......UGH!!!!!

If it wasn't for the mind stuff and the pain........I'd feel

better........DAH!!!!

Dunno.......take each day as it comes......

Through all this I have not had any swelling though........thank goodness

there.

As I said just taking each day as it comes........

Sorry to be such a drag........my glass ALWAYS used to be

halffull.........Don't know what to do with myself anymore...

Darlene

Jan Koelsch jkoelsch1950@...> wrote:

Hi, Darlene:

The pain started for me a little at a time about the third day after starting

Arimidex. It started in my left knee for some strange reason. Then it started in

my left hip and back on the left side. Just this past week the pain started in

my right knee and had progressed to my hands and fingers. I have experienced

swelling in my calf of the left leg and thigh. The worst pain, almost

unbearable, is in the left knee. It feels like someone is trying to put a hot

searing fire poker through my knee cap from the side.

What kind of things are you experiencing?

Jan K

andwemet03 andwemet03@...> wrote:

Hi,

Can I ask a couple questions? When did your pain start? Was it only after

starting the Arimidex? And does your pain travel to different places in the

body? Like: sometimes it's worse in the back, them maybe worse somewhere else?

I'm surious because I too have pain issues. I'll be watching the posts to

follow......

thanks,

Darlene

jkoelsch1950 jkoelsch1950@...> wrote:

I did contact my new oncologist yesterday because the pain in my

knees, hips, back and the new pains and swelling in my hands and legs

were getting worse. The doctor told me to discontinue the Arimidex for

one or two weeks. He wants to see if it is the medication or something

else. At least he is listening to my concerns. I hope that the pain

eases.

---------------------------------

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[Guest guest]

Hey, Girlfriend, I fully understand about the pain. Does seem strange that this

started after finishing chemo. Have you thought about a pain management type

doctor? My oncologist brought in a doctor of that nature at my next to the last

appointment. I don't think his recommendation helped but maybe the new

oncologist will figure something out. My pain on a good day, on a 1 to 10

scale, is about 7. Funny how the little things can be so appreciated when we

don't have them, like a pain free day.

I can't imagine being on oxycodone 4x a day at any dosage. I wonder if there

is any meds in the arthritis or rumathoid (sp?) arthritis field that would help.

I would be tempted to contact the manufacturer of Arimidex to see if there is

anything they suggest to ease the " bone pain " problem.

I may try that tomorrow. I will let you know what I find out.

Have you looked at any websites on Arimidex for further information? I found

with food allergies that the more I read and the more information I gathered the

more it helped me. And besides that, it took my mind off the problems with the

allergies.

I do know with Arimidex I have less appetite. And for me that is a good

thing.

You take care of yourself and maybe together with suggestions from other

people we can make life with Arimidex viable.

Jan K

andwemet03 andwemet03@...> wrote:

Hi Jan,

Wierd, but my pain started right after finishing chemo... I started having

massive pain in my back....there is where it all started......little by little

it worsend thru rad......it has continued since..........it was SO bad at one

point that I couldn't dress/take care of myself...Imagine.......through every

test there was...there was no dx. except for " long term side effects of tx....go

figure.......I was put on Femera and the doc's thought maybe that was

it.......yet the pain had started before so I don't know why they thought that

was it......anyway ...went off that..........no change..........ended up on

Arimidex.........had stopped that for a spell and didn't help. It's just

constant, period......on a scale of 1 to 10 I run about a 5 on a good

day...imagine? And that's with meds for pain.........I'm on

oxycodone........5mg. I usually take 4 a day..that's the average....(I've tried

SO many things for pain and this is the only thing that has helped

me).......some

days more cuz the pain is unbearable.........I just don't get it..neither do any

of my doc's. They all say it's from agressive treatment that I had and how it

affected me.......No wonder I am depressed is what I say........My physicality

is limited to a great degree. Something I am NOT used to.......and continue to

struggle with.......UGH!!!!!

If it wasn't for the mind stuff and the pain........I'd feel

better........DAH!!!!

Dunno.......take each day as it comes......

Through all this I have not had any swelling though........thank goodness there.

As I said just taking each day as it comes........

Sorry to be such a drag........my glass ALWAYS used to be halffull.........Don't

know what to do with myself anymore...

Darlene

Jan Koelsch jkoelsch1950@...> wrote:

Hi, Darlene:

The pain started for me a little at a time about the third day after starting

Arimidex. It started in my left knee for some strange reason. Then it started in

my left hip and back on the left side. Just this past week the pain started in

my right knee and had progressed to my hands and fingers. I have experienced

swelling in my calf of the left leg and thigh. The worst pain, almost

unbearable, is in the left knee. It feels like someone is trying to put a hot

searing fire poker through my knee cap from the side.

What kind of things are you experiencing?

Jan K

andwemet03 andwemet03@...> wrote:

Hi,

Can I ask a couple questions? When did your pain start? Was it only after

starting the Arimidex? And does your pain travel to different places in the

body? Like: sometimes it's worse in the back, them maybe worse somewhere else?

I'm surious because I too have pain issues. I'll be watching the posts to

follow......

thanks,

Darlene

jkoelsch1950 jkoelsch1950@...> wrote:

I did contact my new oncologist yesterday because the pain in my

knees, hips, back and the new pains and swelling in my hands and legs

were getting worse. The doctor told me to discontinue the Arimidex for

one or two weeks. He wants to see if it is the medication or something

else. At least he is listening to my concerns. I hope that the pain

eases.

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.