Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Does anyone know who or what the best resource is for looking at the link between Charge kids speaking and proprioception or balance issues? My sons speech therapist and OT want to take a closer look at this as everyone feels that my son Lucas should surely be speaking by now, but cannot seem to. His sign language is excellent, both receptively and expressively, and he is very bright - too bright the teachers say, for him to simply be choosing sign over talking. He hears well with this implant, and understands many spoken words, but when he tries to reprocduce them - well - its just no where whatsover even close (only in terms of number of syllables). So who should I talk to for a game plan, I really want him to speak if its possible for him. Ideas on resources would be appreciated. Lacey and Lucas 4 yrs old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Dear Lacey, There is a document about balance issues and walking and speaking. I'll find the reference. In the meantime, have apraxia and dysarthria been ruled out as possible causes for the difficulty speaking? Is it clear he is hearing each of the component sounds? The apraxia-kids website is one of the premier sites to ask questions about speech and language problems. The founder of the site is a parent who is now a Ph.D candidate in Communication Disorders. Many speech and language professionals participate in the list willingly offering advice about tests and treatment therapy options. http://www.apraxia-kids.org I assure you you will have many replies if you post this question on their listserve. Very best to you and Lucas, wendy :-) speaking and proprioception > Does anyone know who or what the best resource is for looking at the > link between Charge kids speaking and proprioception or balance > issues? My sons speech therapist and OT want to take a closer look at > this as everyone feels that my son Lucas should surely be speaking by > now, but cannot seem to. His sign language is excellent, both > receptively and expressively, and he is very bright - too bright the > teachers say, for him to simply be choosing sign over talking. He > hears well with this implant, and understands many spoken words, but > when he tries to reprocduce them - well - its just no where whatsover > even close (only in terms of number of syllables). So who should I > talk to for a game plan, I really want him to speak if its possible for > him. Ideas on resources would be appreciated. Lacey and Lucas 4 yrs > old > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
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