We went to the ER

October 4, 2006

Last night at around 10pm I took Eva to the ER. They took blood and

took x-rays. They looked in her ears and said she has an ear

infection and they gave her some meds by IV and we were sent home at

about 3am. At 6am came in my room because Eva was crying, well

I figured she was hungry so I told him to give her a bottle and

tried to go back to sleep I was so tired. She kept crying so I went

in her room to get her and bring her in with me. I turned on my

light and her lips were blue and so were her hands and feet. I was

freaking out!!!! I called my husband at work and he said he would be

on his way home. I couldnt wait that long and I called 911 because

she was shaking all over and her color was off. I called Dan back at

work and my mil and they came here ASAP. My fil watched the boys and

we were in the ER again. The nurse that took care of her and the

doctor were surpised to see her back. They redid some blood work and

took a urine sample and the new doctor looked at her x-ray which I

dont think they did last night. He thinks she may have pnemoenia. So

they gave her more meds and they are keeping her over night to watch

her. My mil is there with her now and Dan is going back soon. I need

a shower and a nap since I am running on about 2 hours of sleep. SO

that is the update and I will let you know more later.

Thanks,

Crystal mom to (10), (3), and Eva (17 month old CHARGEr)

wife to Dan

October 4, 2006

I am so sorry about what you had to go through. I am sure she will be ok.

You were right to bring her into ER and to bring her back. My son is now 16

years old but I still remember the midnight runs to the ER and running on no

sleep. I used to have a friend, nurse or husband stay with him at the

hospital for a few hours after he was admitted so that I could come back

home, nap and wash up.

It will get better but I do know how you feel. My thoughts are with you. ck

>

>Reply-To: CHARGE

>To: CHARGE

>Subject: We went to the ER

>Date: Wed, 04 Oct 2006 18:30:50 -0000

>

>Last night at around 10pm I took Eva to the ER. They took blood and

>took x-rays. They looked in her ears and said she has an ear

>infection and they gave her some meds by IV and we were sent home at

>about 3am. At 6am came in my room because Eva was crying, well

>I figured she was hungry so I told him to give her a bottle and

>tried to go back to sleep I was so tired. She kept crying so I went

>in her room to get her and bring her in with me. I turned on my

>light and her lips were blue and so were her hands and feet. I was

>freaking out!!!! I called my husband at work and he said he would be

>on his way home. I couldnt wait that long and I called 911 because

>she was shaking all over and her color was off. I called Dan back at

>work and my mil and they came here ASAP. My fil watched the boys and

>we were in the ER again. The nurse that took care of her and the

>doctor were surpised to see her back. They redid some blood work and

>took a urine sample and the new doctor looked at her x-ray which I

>dont think they did last night. He thinks she may have pnemoenia. So

>they gave her more meds and they are keeping her over night to watch

>her. My mil is there with her now and Dan is going back soon. I need

>a shower and a nap since I am running on about 2 hours of sleep. SO

>that is the update and I will let you know more later.

>

>Thanks,

>Crystal mom to (10), (3), and Eva (17 month old CHARGEr)

>wife to Dan

>

>CHARGE SYNDROME LISTSERV PHOTO PAGE:

>http://www.imagestation.com/album/?id=2117043995

>

>Membership of this email support group does not constitute membership in

>the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

>Foundation or to become a member (and get the newsletter),

>please contact marion@... or visit

>the web site at http://www.chargesyndrome.org

>

>8th International

>CHARGE Syndrome Conference, July, 2007. Information will be available at

>www.chargesyndrome.org or by calling 1-.

>

October 4, 2006

Crystal give her a big hug, hope shes home soon, its no fun!! and my worst

nightmare!! is it winter where you live???

love Les x

>

> I am so sorry about what you had to go through. I am sure she will be

> ok.

> You were right to bring her into ER and to bring her back. My son is now

> 16

> years old but I still remember the midnight runs to the ER and running on

> no

> sleep. I used to have a friend, nurse or husband stay with him at the

> hospital for a few hours after he was admitted so that I could come back

> home, nap and wash up.

> It will get better but I do know how you feel. My thoughts are with you.

> ck

>

> >From: " supermama95 " <supermama95@... <supermama95%40yahoo.com>>

> >Reply-To: CHARGE <CHARGE%40yahoogroups.com>

> >To: CHARGE <CHARGE%40yahoogroups.com>

> >Subject: We went to the ER

> >Date: Wed, 04 Oct 2006 18:30:50 -0000

> >

> >Last night at around 10pm I took Eva to the ER. They took blood and

> >took x-rays. They looked in her ears and said she has an ear

> >infection and they gave her some meds by IV and we were sent home at

> >about 3am. At 6am came in my room because Eva was crying, well

> >I figured she was hungry so I told him to give her a bottle and

> >tried to go back to sleep I was so tired. She kept crying so I went

> >in her room to get her and bring her in with me. I turned on my

> >light and her lips were blue and so were her hands and feet. I was

> >freaking out!!!! I called my husband at work and he said he would be

> >on his way home. I couldnt wait that long and I called 911 because

> >she was shaking all over and her color was off. I called Dan back at

> >work and my mil and they came here ASAP. My fil watched the boys and

> >we were in the ER again. The nurse that took care of her and the

> >doctor were surpised to see her back. They redid some blood work and

> >took a urine sample and the new doctor looked at her x-ray which I

> >dont think they did last night. He thinks she may have pnemoenia. So

> >they gave her more meds and they are keeping her over night to watch

> >her. My mil is there with her now and Dan is going back soon. I need

> >a shower and a nap since I am running on about 2 hours of sleep. SO

> >that is the update and I will let you know more later.

> >

> >Thanks,

> >Crystal mom to (10), (3), and Eva (17 month old CHARGEr)

> >wife to Dan

> >

> >CHARGE SYNDROME LISTSERV PHOTO PAGE:

> >http://www.imagestation.com/album/?id=2117043995

> >

> >Membership of this email support group does not constitute membership in

> >the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> >Foundation or to become a member (and get the newsletter),

> >please contact marion@... <marion%40chargesyndrome.org> or

> visit

> >the web site at http://www.chargesyndrome.org

> >

> >8th International

> >CHARGE Syndrome Conference, July, 2007. Information will be available at

> >www.chargesyndrome.org or by calling 1-.

> >

October 4, 2006

Crystal-

Prayers to you as we wait for more news. Hang in there.

Michele W

October 5, 2006

She does have pnemonia and she should be coming home tomorrow

morning. Dan is with her now and as long as her fever stays down she

should be fine. I took her baby to her and I took Dan some food and

we had dinner together, then my mil calls and asked when I was

coming to get the boys....DUH!! I am in the hospital with my baby!!!

Why is it my mom is the only one that can keep my kids and not

complain. I will let you know how tommorrow goes.

Thanks for the prays!

Crystal mom to (10), (3), and Eva (17 month old CHARGEr)

wife to Dan

>

> Crystal-

>

> Prayers to you as we wait for more news. Hang in there.

>

> Michele W

>

October 5, 2006

I'm so sorry! You did make me laugh though. We were in the hospital after

's heart repair and called my in-laws to see if they could take my older

daughter for thanksgiving and the days before (we had many offers from friends

but wanted her with family) - she said no because she had to get ready for

thanksgiving. They are the only ones who have ever said no when we've asked for

help! Oh well! My parents do whatever we need them to do - thank goodness -

and we have so many wonderful supportive friends!

Good luck. Prayers from Dallas, Texas!

Lori Myers

Re: We went to the ER

She does have pnemonia and she should be coming home tomorrow

morning. Dan is with her now and as long as her fever stays down she

should be fine. I took her baby to her and I took Dan some food and

we had dinner together, then my mil calls and asked when I was

coming to get the boys....DUH!! I am in the hospital with my baby!!!

Why is it my mom is the only one that can keep my kids and not

complain. I will let you know how tommorrow goes.

Thanks for the prays!

Crystal mom to (10), (3), and Eva (17 month old CHARGEr)

wife to Dan

>

> Crystal-

>

> Prayers to you as we wait for more news. Hang in there.

>

> Michele W

>

October 5, 2006

id of shouted at her and sizad ok how would you feel if eva died coz i didtn

take her to hsotpital LOL i no im tactelss but those kind of peopel annoy me

hopeshe ges better soon and u get a good sleep

>

> I'm so sorry! You did make me laugh though. We were in the hospital

> after 's heart repair and called my in-laws to see if they could take

> my older daughter for thanksgiving and the days before (we had many offers

> from friends but wanted her with family) - she said no because she had to

> get ready for thanksgiving. They are the only ones who have ever said no

> when we've asked for help! Oh well! My parents do whatever we need them to

> do - thank goodness - and we have so many wonderful supportive friends!

>

> Good luck. Prayers from Dallas, Texas!

>

> Lori Myers

>

> Re: We went to the ER

>

> She does have pnemonia and she should be coming home tomorrow

> morning. Dan is with her now and as long as her fever stays down she

> should be fine. I took her baby to her and I took Dan some food and

> we had dinner together, then my mil calls and asked when I was

> coming to get the boys....DUH!! I am in the hospital with my baby!!!

> Why is it my mom is the only one that can keep my kids and not

> complain. I will let you know how tommorrow goes.

> Thanks for the prays!

>

> Crystal mom to (10), (3), and Eva (17 month old CHARGEr)

> wife to Dan

>

> >

> > Crystal-

> >

> > Prayers to you as we wait for more news. Hang in there.

> >

> > Michele W

> >

October 5, 2006

How scary, Crystal! I hope Eva is well soon and that it's nothing serious.

Please keep us updated on her. She'll be in our thoughts and prayers.

, mom to (4)

---------------------------------

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

October 5, 2006

Crystal,

I hope Eva feels better soon. Just a thought-when Patty was younger her

hands, feet and lips went blue often when she was ill with things like the ever

fun pneumonia. They said she had really poor circulation and her body needed to

focus on getting better. Ask about it.

Yea for by the way.

Bonnie

October 6, 2006

Crystal - I'm so sorry to hear that Eva is sick and your hospital experiences.

Do you have a saturation monitor at home so when she is sick, you can check her

oxygen levels? Before Ethan had the trach, he was monitored all day long and

when he numbers went down, we knew there were problems. Hope she gets better

soon.

Jody

Jody - mom to Ethan (ChARGE) and

---------------------------------

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October 6, 2006

We dont have a monitor and I thought it was always strange that we

didnt because she is on O2 at night. I think I will talk to the

doctor tommorrow about that.

Thanks.

Crystal and Eva

-- In CHARGE , Jody Wolfe wrote:

>

> Crystal - I'm so sorry to hear that Eva is sick and your hospital

experiences. Do you have a saturation monitor at home so when she

is sick, you can check her oxygen levels? Before Ethan had the

trach, he was monitored all day long and when he numbers went down,

we knew there were problems. Hope she gets better soon.

>

> Jody

>

> Jody - mom to Ethan (ChARGE) and

>

> ---------------------------------

> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

October 6, 2006

I highly recommend having a monitor (pulse oximeter). We only put Evan's on now

when he is sleeping, or during the day if he is sick. There are plenty of false

alarms. But when the alarms are real...I really shudder to think of all the

apnea episodes Evan has had, and what might have happened had we not heard an

alarm to go in and suction him, or turn him over, or just rub his back.

(mom to Evan 14.5 months)

supermama95 wrote:

We dont have a monitor and I thought it was always strange that we

didnt because she is on O2 at night. I think I will talk to the

doctor tommorrow about that.

Thanks.

Crystal and Eva

-- In CHARGE , Jody Wolfe wrote:

>

> Crystal - I'm so sorry to hear that Eva is sick and your hospital

experiences. Do you have a saturation monitor at home so when she

is sick, you can check her oxygen levels? Before Ethan had the

trach, he was monitored all day long and when he numbers went down,

we knew there were problems. Hope she gets better soon.

>

> Jody

>

> Jody - mom to Ethan (ChARGE) and

>

> ---------------------------------

> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

October 6, 2006

eva is home coz im tal;king to cris on yahoo messanger

>

> I highly recommend having a monitor (pulse oximeter). We only put Evan's

> on now when he is sleeping, or during the day if he is sick. There are

> plenty of false alarms. But when the alarms are real...I really shudder to

> think of all the apnea episodes Evan has had, and what might have happened

> had we not heard an alarm to go in and suction him, or turn him over, or

> just rub his back.

>

> (mom to Evan 14.5 months)

>

> supermama95 <supermama95@... <supermama95%40yahoo.com>> wrote:

> We dont have a monitor and I thought it was always strange that we

> didnt because she is on O2 at night. I think I will talk to the

> doctor tommorrow about that.

> Thanks.

> Crystal and Eva

>

> -- In CHARGE <CHARGE%40yahoogroups.com>, Jody Wolfe

> wrote:

> >

> > Crystal - I'm so sorry to hear that Eva is sick and your hospital

> experiences. Do you have a saturation monitor at home so when she

> is sick, you can check her oxygen levels? Before Ethan had the

> trach, he was monitored all day long and when he numbers went down,

> we knew there were problems. Hope she gets better soon.

> >

> > Jody

> >

> > Jody - mom to Ethan (ChARGE) and

> >

> > ---------------------------------

> > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

> 30+ countries) for 2¢/min or less.

> >

October 6, 2006

LOL and cris says shes rolling on the floor how funny you can tell when our

chargers r feelign better cant you

>

> eva is home coz im tal;king to cris on yahoo messanger

>

> >

> > I highly recommend having a monitor (pulse oximeter). We only put

> > Evan's on now when he is sleeping, or during the day if he is sick. There

> > are plenty of false alarms. But when the alarms are real...I really shudder

> > to think of all the apnea episodes Evan has had, and what might have

> > happened had we not heard an alarm to go in and suction him, or turn him

> > over, or just rub his back.

> >

> > (mom to Evan 14.5 months)

> >

> > supermama95 <supermama95@... <supermama95%40yahoo.com>> wrote:

> > We dont have a monitor and I thought it was always strange that we

> > didnt because she is on O2 at night. I think I will talk to the

> > doctor tommorrow about that.

> > Thanks.

> > Crystal and Eva

> >

> > -- In CHARGE <CHARGE%40yahoogroups.com>, Jody Wolfe

> > wrote:

> > >

> > > Crystal - I'm so sorry to hear that Eva is sick and your hospital

> > experiences. Do you have a saturation monitor at home so when she

> > is sick, you can check her oxygen levels? Before Ethan had the

> > trach, he was monitored all day long and when he numbers went down,

> > we knew there were problems. Hope she gets better soon.

> > >

> > > Jody

> > >

> > > Jody - mom to Ethan (ChARGE) and

> > >

> > > ---------------------------------

> > > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

> > 30+ countries) for 2¢/min or less.

> > >

October 6, 2006

Crystal, I'm so sorry to hear that! How scary that must have been! Please

keep us posted...

, mommy to Meagan (CHaRgE) and 23 3/4 month twins, and big

brother 4 years, married to the best daddy in the world for 9 years!

-- We went to the ER