Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Kim- Positive! Yay! It's like the 'overnight success " who's been at it for years behind the limelight. But to finally get to the payoff.... Sweet! So these thoughts came to mind from our own experience. I know you already have this down, but I'll post it anyway and you can add to it, in case someone else is approaching a school transition. Certainly, reps from his next school will need to sit in on meetings starting early next year. And whether they want to or not, I would want someone from the new placement spending observation days. And forget the IEP. I'd write my own very specific lists of supports and services of physical, educational, social, behavioral protocols that are tried and true, and MUST be in place. (I know you have yours written), and make them commit early as to whether they are going to be able to provide or not. No " we'll try it " or " let's see how it goes " . You'll need time to go " Program Shopping " , if you have to. And he should spend time in the new school next spring, and a summer program there would be even better. -- is taking a psychology course at a local community college, starting this coming Monday night. Her math teacher is going to go with her. They'll take a cab to and fro. It's a 3 hour lecture each week. So the teacher will be able to identify what supports is going to need to succeed at that level in what will be an incredibly challenging environment after so many years at familiar and supportive Perkins. I'm so relieved she'll be with somebody, and we'll have that assessment of what's necessary for her success. -- Now add to this. We're trying to get some info down so each parent doesn't have to start from scratch. Michele has awesomely volunteered to put her organization skills to it, so we should have a beautiful product when all's said and done. Congratulations to both you and Dylan, in Ma. (, 21 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Well we had Dylan's staffing today. It was attended by 12 people in addition to me and Dylan. I facilitated, covered the numerous positive things we have seen, then individually brought up concerns that have been raised throughout the year at other meetings. In each situation we either found a positive next step to focus on or felt what we were doing was good for now. We even found ways to begin addressing middle school transistion even though that is 1 1/2 years away. No one raised strong concerns about any subject, particularly Dylan's safety and the safety of others, which has been an underlying concern throughout the year. It was acknowledged that by shifting focus back to letting Dylan's state guide us, rather than expectations about what other kids that age are doing, that we have fewer frantic episodes and clearly he is learning. It seems that the " Dylan " training I was able to do in October has made some impact. The only issue not fully resolved is how to find an appropriate classroom placement for Dylan that allows for his individual needs to be met, but also allows for being part of the group and so on, and allows for the teacher to also understand deafblindness. I am so thankful there were no unwelcome surprises. -- Kim Certified HANDLE Screener and Intern Mom to Dylan 10 CHaRGE, Kayla 16, Tyler 18 and wife to Roy who makes all things possible in our lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 cool that is good > > Well we had Dylan's staffing today. > It was attended by 12 people in addition to me and Dylan. > I facilitated, covered the numerous positive things we have seen, then > individually brought up concerns that have been raised throughout the > year at other meetings. In each situation we either found a positive > next step to focus on or felt what we were doing was good for now. We > even found ways to begin addressing middle school transistion even > though that is 1 1/2 years away. No one raised strong concerns about > any subject, particularly Dylan's safety and the safety of others, > which has been an underlying concern throughout the year. It was > acknowledged that by shifting focus back to letting Dylan's state > guide us, rather than expectations about what other kids that age are > doing, that we have fewer frantic episodes and clearly he is learning. > It seems that the " Dylan " training I was able to do in October has > made some impact. > The only issue not fully resolved is how to find an appropriate > classroom placement for Dylan that allows for his individual needs to > be met, but also allows for being part of the group and so on, and > allows for the teacher to also understand deafblindness. > > I am so thankful there were no unwelcome surprises. > -- > Kim > Certified HANDLE Screener and Intern > Mom to Dylan 10 CHaRGE, Kayla 16, Tyler 18 > and wife to Roy who makes all things possible in our lives. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Hi , Overnight success, more like another day of negotiating, documenting, and gently pushing forward towards the next step. As for transition, it is almost certain that Dylan would stay at ASDB through all of his school years - at least that is what I work so hard for, to keep relationships positive for 18 years of schooling.... His support staff remains very much the same, it is teachers and admin that change. Through some of the activities we are setting up to start now, (taking orders for someone in elementary, going over to the middle school Java Jut, then purchasing and delivering) he will meet the Middle School teachers and get comfortable with that building on campus. The Java Hut is part of the functional education program for School for the Deaf, but some students from School for the Blind participate with it. It is always the goal to switch Dylan from School for the Blind to School for the Deaf when he can visually handle a signing environment, so this is a way to get some of those connections started. Wow going to community college - what a great plan to have someone else go with as part of her transition. What information does Michele need? Kim Certified HANDLE Screener and Intern Mom to Dylan 10 CHaRGE, Kayla 16, Tyler 18 and wife to Roy who makes all things possible in our lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 Kim, WOW! It sure sounds like you are on a roll!! This sounds like it was a really wonderful staffing and that everyone was on the same page; I hope you are savoring the feeling, the success, and the hope. I think you are smart to start thinking of the transition now--it can give everyone a plan and ways to work on it to make it a successful move for everyone, most especially the man of the hour, Dylan himself. I will be looking forward to the progress reports and the implementation of the plan for transition. pam RELIEF Well we had Dylan's staffing today. It was attended by 12 people in addition to me and Dylan. I facilitated, covered the numerous positive things we have seen, then individually brought up concerns that have been raised throughout the year at other meetings. In each situation we either found a positive next step to focus on or felt what we were doing was good for now. We even found ways to begin addressing middle school transistion even though that is 1 1/2 years away. No one raised strong concerns about any subject, particularly Dylan's safety and the safety of others, which has been an underlying concern throughout the year. It was acknowledged that by shifting focus back to letting Dylan's state guide us, rather than expectations about what other kids that age are doing, that we have fewer frantic episodes and clearly he is learning. It seems that the " Dylan " training I was able to do in October has made some impact. The only issue not fully resolved is how to find an appropriate classroom placement for Dylan that allows for his individual needs to be met, but also allows for being part of the group and so on, and allows for the teacher to also understand deafblindness. I am so thankful there were no unwelcome surprises. -- Kim Certified HANDLE Screener and Intern Mom to Dylan 10 CHaRGE, Kayla 16, Tyler 18 and wife to Roy who makes all things possible in our lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 said: " Now add to this. We're trying to get some info down so each parent doesn't have to start from scratch. Michele has awesomely volunteered to put her organization skills to it, so we should have a beautiful product when all's said and done. " Ok - that's putting on a bit of pressure!!! I'm not sure how quickly I'll get to it. And I hope we don't find that the task is so cumbersome as to not yield the results we're looking for. You guys, keep coaxing me so that I don't keep it on the back burner. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2012 Report Share Posted February 27, 2012 mistake. I meant to say patient's with BP family members. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2012 Report Share Posted February 27, 2012 Congrats on things going smoother and getting some healing for yourself, after initiating Low Contact. Taking firm control of the relationship " rules " with the bpd parent (becoming the " manager " in a gentle but assertive way) seems to me to be a viable way of handling some bpd parent/adult child relationships. And yes, isn't it great and validating to find someone in real life who understands completely and can share a little empathy and humor with you. I find that very endearing, myself. -Annie > > It's been a long time since I posted or even read up here. My life is going much better now. It's been years since I've been low contact. I feel much more in touch with my emotions, and making progress in my ability to respect and nurture the part of me that feels them. > > I wanted to relate a positive interaction I had the other day. I was talking with a friend of mine who also had a father with BP like symptoms. A mutual friend and medical doctor talked about her experience with patients who had BP, and how they split/oscillated between different doctors being all good and all bad. Her matter of fact attitude, eye rolling, and flippancy at the ridiculousness of the BP behavior was so refreshing! > > To continue along the lines of laughter, I want to use the dada generator below to create random BP rants. http://www.elsewhere.org/pomo/ > > I think it would be funny to use it to troll BP people using such generator. (I realize this sounds a little sadistic, and BP people are suffering too, but the humor I get from thought of my BP dad having a BP shit fit back and forth with a computer is very cathartic.) > Quote Link to comment Share on other sites More sharing options...
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