Guest guest Posted April 20, 2006 Report Posted April 20, 2006 Thanks Loretta, for sharing this. I wonder if Sotalol would be that much different than my two propranolol I take each day. It seems many of us find meds that work really well for some period of time (some do very well for long periods of time) and then the meds quit. Very frustrating. Lil In a message dated 4/20/2006 6:19:58 PM Pacific Standard Time, cleaner@... writes: I originally took 80 mg Sotalol BID and it kept me out of afib for 2 3/4 years. I recently had three episodes in four weeks and was increased to 160 mg BID by my cardiologist contrary to the opinion of my EP. He would like me to change to Rhythmol or Tikosyn because I have vagal afib, although I have done so well with Sotalol that I am afraid to change. I had no side effects with the 80 mg. but I do notice not being as alert and feeling tired with doubling the dosage. Beats afib, though! Quote
Guest guest Posted April 20, 2006 Report Posted April 20, 2006 Does anyone here LIKE Sotalol? Because it seems Sotalol, for want of a > better word, sucks pretty much across the board. My EP mentioned it to me in case > my NSR turns back into afib. (I don't think he will do another cardiovert > without putting me on pills.) From my readings here, if and when I have to go > on antiarrhythmics ... he can stuff his Sotalol in his back pocket - sounds > like some of the others -dofetilide seems pretty popular here - are better. > Lil xxxxxxxxxxxxxxxxxxxxxxxxxxx Lil, I originally took 80 mg Sotalol BID and it kept me out of afib for 2 3/4 years. I recently had three episodes in four weeks and was increased to 160 mg BID by my cardiologist contrary to the opinion of my EP. He would like me to change to Rhythmol or Tikosyn because I have vagal afib, although I have done so well with Sotalol that I am afraid to change. I had no side effects with the 80 mg. but I do notice not being as alert and feeling tired with doubling the dosage. Beats afib, though! Loretta Quote
Guest guest Posted April 21, 2006 Report Posted April 21, 2006 At the moment I am doing well on just two propranolol a day, and a half a digoxin in the am. But if/when the time comes that I flip into afib, I am sure my EP is going to want to put me on something and it helps to be prepared and know which medicine seems to work best for most, although it seems something of a crap shoot, doesn't it since we are all different. Lil In a message dated 4/21/2006 7:03:28 P.M. Pacific Standard Time, david.wicker@... writes: If i had an attack, a swift 2*60mg would convert me in 3-4 hours what other meds are you considering? Quote
Guest guest Posted April 21, 2006 Report Posted April 21, 2006 > > Does anyone here LIKE Sotalol? Because it seems Sotalol, for want > of a > > better word, sucks pretty much across the board. My EP mentioned it > to me in case > > my NSR turns back into afib. (I don't think he will do another > cardiovert > > without putting me on pills.) From my readings here, if and when > I have to go > > on antiarrhythmics ... he can stuff his Sotalol in his back > pocket - sounds > > like some of the others -dofetilide seems pretty popular here - > are better. > > Lil > xxxxxxxxxxxxxxxxxxxxxxxxxxx > Lil, > > I originally took 80 mg Sotalol BID and it kept me out of afib for 2 3/4 years. I recently had three episodes in four weeks and was increased to 160 mg BID by my cardiologist contrary to the opinion of my EP. He would like me to change to Rhythmol or Tikosyn because I have vagal afib, although I have done so well with Sotalol that I am afraid to change. I had no side effects with the 80 mg. but I do notice not being as alert and feeling tired with doubling the dosage. Beats afib, though! > > Loretta > > Quote
Guest guest Posted April 22, 2006 Report Posted April 22, 2006 Sotolol, like other drugs, has side effects. These side effects seem to bother some people but not others. It has been proven to keep people in normal sinus rhythm, but like everything, it works for some people (most) but not others. weeewillie david.wicker@...> wrote: > > Does anyone here LIKE Sotalol? Because it seems Sotalol, for want > of a > > better word, sucks pretty much across the board. My EP mentioned it > to me in case > > my NSR turns back into afib. (I don't think he will do another > cardiovert > > without putting me on pills.) From my readings here, if and when > I have to go > > on antiarrhythmics ... he can stuff his Sotalol in his back > pocket - sounds > > like some of the others -dofetilide seems pretty popular here - > are better. > > Lil > xxxxxxxxxxxxxxxxxxxxxxxxxxx > Lil, > > I originally took 80 mg Sotalol BID and it kept me out of afib for 2 3/4 years. I recently had three episodes in four weeks and was increased to 160 mg BID by my cardiologist contrary to the opinion of my EP. He would like me to change to Rhythmol or Tikosyn because I have vagal afib, although I have done so well with Sotalol that I am afraid to change. I had no side effects with the 80 mg. but I do notice not being as alert and feeling tired with doubling the dosage. Beats afib, though! > > Loretta > > Quote
Guest guest Posted April 22, 2006 Report Posted April 22, 2006 > >I have been on sotalol for 3 1/2 years and it has worked pretty well. I have not had any bad effects from it. I started out 40/40 to 80/40 to 80/80 to 120/80 to 120/120. Each time I went into afib my cardio increased the dose. I had an ablation 5 months ago and the EP has kept me on sotalol. I have had a number of afib events, but they are very mild and I convert on my own. I hope I will be able to come off of the meds in the near future. Earl Does anyone here LIKE Sotalol? Because it seems Sotalol, for want > of a > > better word, sucks pretty much across the board. My EP mentioned it > to me in case > > my NSR turns back into afib. (I don't think he will do another > cardiovert > > without putting me on pills.) From my readings here, if and when > I have to go > > on antiarrhythmics ... he can stuff his Sotalol in his back > pocket - sounds > > like some of the others -dofetilide seems pretty popular here - > are better. > > Lil > xxxxxxxxxxxxxxxxxxxxxxxxxxx > Lil, > > I originally took 80 mg Sotalol BID and it kept me out of afib for 2 3/4 years. I recently had three episodes in four weeks and was increased to 160 mg BID by my cardiologist contrary to the opinion of my EP. He would like me to change to Rhythmol or Tikosyn because I have vagal afib, although I have done so well with Sotalol that I am afraid to change. I had no side effects with the 80 mg. but I do notice not being as alert and feeling tired with doubling the dosage. Beats afib, though! > > Loretta > > Quote
Guest guest Posted April 22, 2006 Report Posted April 22, 2006 I am really getting the impression that people that do with best with Sotalol are the ones that their doctors change the doses gradually, as was done in Earl's case below. Jo Anne Re: Sotalol > >I have been on sotalol for 3 1/2 years and it has worked pretty well. I have not had any bad effects from it. I started out 40/40 to 80/40 to 80/80 to 120/80 to 120/120. Each time I went into afib my cardio increased the dose. I had an ablation 5 months ago and the EP has kept me on sotalol. I have had a number of afib events, but they are very mild and I convert on my own. I hope I will be able to come off of the meds in the near future. Earl Quote
Guest guest Posted April 23, 2006 Report Posted April 23, 2006 I went straight onto 80/80 with Sotalol and had some weird effects for a month or so which then settled down. It has dampened down the AFib and made it less noticeable, but I am still in AF one day out of 3 on average. I've beeing keeping an AF diary, as I have just started on Atorvastatin as a test to see what sort of an impact it has. I was surprised I was in AF so much as it hadn't been particularly noticeable. There is some interesting research just published at http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=16620720&itool=iconabstr& query_hl=1&itool=pubmed_DocSum which compares amiodarone and sotalol Conclusion: There is no significant difference between amiodarone and sotalol in converting atrial fibrillation to sinus rhythm. However, amiodarone is more effective in maintenance of sinus rhythm than sotalol. The adverse reaction of amiodarone on heart is less severe than that of sotalol. In the study 20% of the sotalol patients got atrial ventricular block and severe bradycardia and had to be stopped. Mark > > I am really getting the impression that people that do with best with Sotalol are the ones that their doctors change the doses gradually, Quote
Guest guest Posted April 23, 2006 Report Posted April 23, 2006 Hi I have taken Sotolol for 9 years and although there are some unpleasant side effects: Visual disturbance, lack of energy, weight gain, etc, I do not know how I would have coped without it. When I was first diagnosed, I was taken off Sotolol and put on Flecainide alone. That gave me a heart rate of 90 to 100 bpm at rest and no sleep. I pleaded with my Cardio to put me back on it. He refused. I went to my GP at my wits end and pleaded with him and he gave it to me. I have been pretty good ever since although I do relapse now and again depending on activity, diet, stress levels etc. But I am back at work and reasonably active. Sue > > > >I have been on sotalol for 3 1/2 years and it has worked pretty > well. I have not had any bad effects from it. I started out 40/40 > to 80/40 to 80/80 to 120/80 to 120/120. Each time I went into afib > my cardio increased the dose. I had an ablation 5 months ago and the > EP has kept me on sotalol. I have had a number of afib events, but > they are very mild and I convert on my own. I hope I will be able to > come off of the meds in the near future. > > Earl > > Does anyone here LIKE Sotalol? Because it seems Sotalol, for want > > of a > > > better word, sucks pretty much across the board. My EP mentioned > it > > to me in case > > > my NSR turns back into afib. (I don't think he will do another > > cardiovert > > > without putting me on pills.) From my readings here, if and > when > > I have to go > > > on antiarrhythmics ... he can stuff his Sotalol in his back > > pocket - sounds > > > like some of the others -dofetilide seems pretty popular here - > > are better. > > > Lil > > xxxxxxxxxxxxxxxxxxxxxxxxxxx > > Lil, > > > > I originally took 80 mg Sotalol BID and it kept me out of afib for > 2 3/4 years. I recently had three episodes in four weeks and was > increased to 160 mg BID by my cardiologist contrary to the opinion of > my EP. He would like me to change to Rhythmol or Tikosyn because I > have vagal afib, although I have done so well with Sotalol that I am > afraid to change. I had no side effects with the 80 mg. but I do > notice not being as alert and feeling tired with doubling the > dosage. Beats afib, though! > > > > Loretta > > > > Quote
Guest guest Posted April 23, 2006 Report Posted April 23, 2006 I would be very interested to know the long term effects of this 20% who developed ventricular block and severe bradycardia as this is what happened to me. I persevered with sotalol hoping it would work, but the doctors were so concerned with the problems they found on the holter monitor, that they admitted me into hospital and stopped sotalol immediately. I don't think I would have needed a pacemaker (or at least not yet anyway) or the afib would not have been so bad. Before treatment I never had any symptoms prior to the TIA I had, since stopping sotalol I have had lots of symptoms and tried different drugs. I am very apprehensive of trying new drugs as I am not sure that the side effects are because the drug is OK or because it is not OK and is making things worse. ine Re: Sotalol In the study 20% of the sotalol patients got atrial ventricular block and severe bradycardia and had to be stopped. Mark > > I am really getting the impression that people that do with best with Sotalol are the ones that their doctors change the doses gradually, Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote
Guest guest Posted April 24, 2006 Report Posted April 24, 2006 Hi,I WAS JUST STARTED ON SOTALOL ABOUT 7 DAYS AGO,i WENT INTO A-FIB AND WENT TO SEE MY DR.CAN ANYONE TELL ME WHAT I HAVE TO LOOK FORWARD TO,ON SOTALOL.FRAN __________________________________________________ Quote
Guest guest Posted April 25, 2006 Report Posted April 25, 2006 I just started on Sotalol today. I am supposed to be having a cardioversion next week, or the week after. > > Hi,I WAS JUST STARTED ON SOTALOL ABOUT 7 DAYS AGO,i > WENT INTO A-FIB AND WENT TO SEE MY DR.CAN ANYONE TELL > ME WHAT I HAVE TO LOOK FORWARD TO,ON SOTALOL.FRAN > > > __________________________________________________ > Quote
Guest guest Posted April 25, 2006 Report Posted April 25, 2006 Bradycardia, bronchospasm (if asthmatic), low blood pressure, low blood sugar, fatigue, weakness. It is recommended that patient's be admitted and monitored when sotolol is initiated to rule out any significant conduction abnormalities or arrhythmias such as ventricular tachycardia or ventricular fibrillation which may occur at the start of therapy. Also need f/u with an ECG in a week to be sure there's no heart block or prolonged QT syndrome developing . Fred Blauer fblauer@...> wrote: I just started on Sotalol today. I am supposed to be having a cardioversion next week, or the week after. > > Hi,I WAS JUST STARTED ON SOTALOL ABOUT 7 DAYS AGO,i > WENT INTO A-FIB AND WENT TO SEE MY DR.CAN ANYONE TELL > ME WHAT I HAVE TO LOOK FORWARD TO,ON SOTALOL.FRAN > > > __________________________________________________ > Quote
Guest guest Posted April 26, 2006 Report Posted April 26, 2006 Hi Fran, No two persons may respond the same way but sotalol will take your BP lower along with your pulse; whether that's acceptable for you probably depends on where you start from. Some other stuff I've noticed: tiredness, cold hands/feet, and (I think) that the insomnia I deal with is caused in part by the sotalol. Finally, with several of my heart medicines over the years (including sotalol), I've found that adding prunes to the diet can be a marvelous aid to quality of life!! The flip side for me: it seems to regulate my pulse and keep me out of A-fib better than anything else I've ever taken. Just FYI for comparison's sake: I'm on 120 mg BID and have been for four years; I also take metoprolol 50mg BID. An earlier response mentioned starting on sotalol in the hospital, that certainly was the case for me. Very best to you, Brent > > Hi,I WAS JUST STARTED ON SOTALOL ABOUT 7 DAYS AGO,i > WENT INTO A-FIB AND WENT TO SEE MY DR.CAN ANYONE TELL > ME WHAT I HAVE TO LOOK FORWARD TO,ON SOTALOL.FRAN > > > __________________________________________________ > Quote
Guest guest Posted April 27, 2006 Report Posted April 27, 2006 Hi! Brent: I found your statement very interesting: " I've found that adding prunes to the diet can be a marvelous aid to quality of life!! " I believe certain food may keep me away from getting into AF, I am still looking for those foods . Could you please share some details on how the prunes work for you? Thank you. Yi Brent magnerbn@...> wrote: Hi Fran, No two persons may respond the same way but sotalol will take your BP lower along with your pulse; whether that's acceptable for you probably depends on where you start from. Some other stuff I've noticed: tiredness, cold hands/feet, and (I think) that the insomnia I deal with is caused in part by the sotalol. Finally, with several of my heart medicines over the years (including sotalol), I've found that adding prunes to the diet can be a marvelous aid to quality of life!! The flip side for me: it seems to regulate my pulse and keep me out of A-fib better than anything else I've ever taken. Just FYI for comparison's sake: I'm on 120 mg BID and have been for four years; I also take metoprolol 50mg BID. An earlier response mentioned starting on sotalol in the hospital, that certainly was the case for me. Very best to you, Brent > > Hi,I WAS JUST STARTED ON SOTALOL ABOUT 7 DAYS AGO,i > WENT INTO A-FIB AND WENT TO SEE MY DR.CAN ANYONE TELL > ME WHAT I HAVE TO LOOK FORWARD TO,ON SOTALOL.FRAN > > > __________________________________________________ > Quote
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