Anxiety and Children with CHARGE

January 15, 2007

Hi Everyone,

I am looking for an article or paper written about Anxiety and

children with CHARGE. is being teased by students in his class

and our director of Special Ed does not feel that 's fear of going

to school, going out because he might run into them and asking to move

has a negative impact on his education. She feels this is a regular

Ed problem not disability related and the school counselor is using

this book about 5 incredible steps. They are sure will be fine

when using these steps.

The director feels I am exaggerating 's meltdowns. holds it

together until he gets home because the kids tease him if he cries

So if anyone has any articles they can direct me to it would be

greatly appreciated

Thanks

Ellen mom to 9

January 16, 2007

Ellen,

While I don't have any personal experience w/ my children, I can tell you

about a program they did at my son's school called " bully Busters " . It

seemed like a worthwhile program that went over well.(it even made the local

news). I believe that( and Dr Dobson says this too) that the adults

must be the ones to stop bullying at the source. After all, they're the

adults.

If you think they would be open to this suggestion, I could have his school

counselor get me this info for you. I really feel for your son and will keep

him in our prayers. No child should have to go through that. Adults who

stand by and do nothing infuriate me. Please don't let them wear you down on

this. Let me know and I'll be happy to get this to you. She may even have

some other ideas. I wish your son could be with my son's class, 4th grade.

They have been the most lovable accepting group of friends to my son that I

could ever wish for.

Good luck to you and your son. Give yourselves hugs from us all:)

Corrie Young

mom to Peyton 10 CHARGE, Cy 7, 4 and Tate5 mos. CHARGE

>

> Hi Everyone,

> I am looking for an article or paper written about Anxiety and

> children with CHARGE. is being teased by students in his class

> and our director of Special Ed does not feel that 's fear of going

> to school, going out because he might run into them and asking to move

> has a negative impact on his education. She feels this is a regular

> Ed problem not disability related and the school counselor is using

> this book about 5 incredible steps. They are sure will be fine

> when using these steps.

> The director feels I am exaggerating 's meltdowns. holds it

> together until he gets home because the kids tease him if he cries

> So if anyone has any articles they can direct me to it would be

> greatly appreciated

> Thanks

> Ellen mom to 9

>

January 16, 2007

Ellen and , im one to kinda lean towards a non charge thing for the

anxiaty... however, the Dx of charge must be considered when helping

with his problems. I think your wanting to find an article will be helpfull.

Both the reg ed and the special ed program need to work together. All the

books and reg ed stuff isnt gonna help if you dont consider the fact that he

does have charge and processing issues can be an issue. I think the kids

need to be educated on no teasing and what charge is about. Maby could

do a little talk about what charge is (with the help of say a deaf blind

specialist to teach the kids about what he has.) The school needs to take

responcibility for stoping the teasing too. Good on alex for telling you

about it

Chantelle

>

> Hi Everyone,

> I am looking for an article or paper written about Anxiety and

> children with CHARGE. is being teased by students in his class

> and our director of Special Ed does not feel that 's fear of going

> to school, going out because he might run into them and asking to move

> has a negative impact on his education. She feels this is a regular

> Ed problem not disability related and the school counselor is using

> this book about 5 incredible steps. They are sure will be fine

> when using these steps.

> The director feels I am exaggerating 's meltdowns. holds it

> together until he gets home because the kids tease him if he cries

> So if anyone has any articles they can direct me to it would be

> greatly appreciated

> Thanks

> Ellen mom to 9

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

January 16, 2007

Hi Ellen,

My daughter (5yo) has CHaRGE and is starting kindergarten

in a few weeks. She also gets anxious and is a major handflapper

when excited or anxious. Teasing is my biggest fear for her at

school because their confidence makes such a huge difference in their

education and bullying or teasing is terror for kids. I don't have a

shred of advice for you, but I really hope that things work out for

you and , the school should have zero tolerance for such

behaviour. Good luck and please let us know if there is any

improvement and if anything helps.

all the best

Sydney Australia

http://begasfamily.blogspot.com

>

> Hi Everyone,

> I am looking for an article or paper written about Anxiety and

> children with CHARGE. is being teased by students in his

class

> and our director of Special Ed does not feel that 's fear of

going

> to school, going out because he might run into them and asking to

move

> has a negative impact on his education. She feels this is a

regular

> Ed problem not disability related and the school counselor is using

> this book about 5 incredible steps. They are sure will be

fine

> when using these steps.

> The director feels I am exaggerating 's meltdowns. holds

it

> together until he gets home because the kids tease him if he cries

> So if anyone has any articles they can direct me to it would be

> greatly appreciated

> Thanks

> Ellen mom to 9

>

January 16, 2007

Hi All,

Thanks for understanding....

The director said she has tools for me to use to help at home....sadly

their answer to the breakdown during homework time was to eliminate

homework...it is not necessarily the homework but home is a safe place for

to release....whether or not there is homework would still be crying...

This morning asked if he could stay home another day....he said he is

feeling shouty. and he will have an attitude. He thinks attitude will get him

sent to the Nurse and I will be called... Now he is going to act out to get

away...This is sad...

never had these issues in school before..this year, this class and this

teacher...Bad combo

Thanks again

Ellen

January 16, 2007

Hi ,

Can we incorporate this whole post into the 'files' section?

January 16, 2007

Ellen-

This is troubling. From what you've said of up til now, this sounds

very unlike him. I have no suggestions beyond what's already been provided.

In IL, I'd be looking to my Parent Training and Info Center for some

guidance. Do you know who that is in your state?

Michele W

Aubrie's mom

January 16, 2007

Hi Ellen,

You won't find any articles on anxiety in CHARGE. But anxiety would be

a pretty normal reaction to coping with a world through sensory deficits

and having had to cope with multiple surgeries and frequent pain. So I

think Chantelle is correct that it is not caused by having CHARGE, but I

believe it can be the result of having some of the challenges that go

with having CHARGE. Obsessive Compulsive Disorder is considered in

psychiatry to be an anxiety disorder. Engaging in certain rituals is a

way to manage anxiety. So I believe that the OCD we see in CHARGE is

anxiety and stress related. Anything that we as parents, and also

teachers and counselors, can do to reduce stress and anxiety would be

very helpful. Of course there are also medications one can take to

reduce OCD. What they do is to inhibit the anxiety receptors in the

brain so that the child does not feel anxiety.

Tim

S. Hartshorne

Professor of Psychology

Sloan Hall 215

Central Michigan University

Mount Pleasant, MI 48859

(989)774-6479 office

(989)774-2553 fax

tim.hartshorne@...

January 16, 2007

Hi Ellen,

I thought about how I would approach this...

1. Find out why he is being teased. Is it the CHARGE features,

hearing aids. etc ?

2. When is this happening Lunch, recess...( Talk to the supervising

teachers that this is occuring and have them keep an eye out.

3. Talk to . See if he can verbalize why he is having these

meltdowns. are you scared? angry? about what is happening in school?

etc type of questions.Talk directly and frankly with him about it

and it may help him feel better.

4. Have a meeting with all the teachers that deal with him in school

incl the counselor after school or something where they will focus

on this prob. explain that he is anxious and why's and what's.

explain that you are concerned about the attitude of the other

students and the teasing.take notes. they will know that you are

serious about this. See if together you can up with some kind of

buddy system or smething to help him at that time when he is being

teased.

Hope this helps.

Deepta

>

> Hi Everyone,

> I am looking for an article or paper written about Anxiety and

> children with CHARGE. is being teased by students in his

class

> and our director of Special Ed does not feel that 's fear of

going

> to school, going out because he might run into them and asking to

move

> has a negative impact on his education. She feels this is a

regular

> Ed problem not disability related and the school counselor is

using

> this book about 5 incredible steps. They are sure will be

fine

> when using these steps.

> The director feels I am exaggerating 's meltdowns. holds

it

> together until he gets home because the kids tease him if he cries

> So if anyone has any articles they can direct me to it would be

> greatly appreciated

> Thanks

> Ellen mom to 9

>

January 16, 2007

Ellen,

Here are a few resources related to bullying and harrassment. I have

included some excerpts.

Bullying Should Not Be Part of Growing Up: What Parents Need to Know

http://www.ldaamerica.org/aboutld/parents/help/bullying.asp

<http://www.ldaamerica.org/aboutld/parents/help/bullying.asp>

Evidence of Bullying

The warning signs of a child being bullied are many. Without

intervention by a caring adult, there are often tragic results. Parents

and school staff need to be aware of what to look for if they think a

child has become the victim of a bully (Beane, 1999):

* frequent illness

* sudden changes in behavior

* anxiety, fearfulness, moodiness

* reluctance to attend school

* changes walking route to school

* wants to change busses

* possessions are often lost or damaged

* needs extra money for lunch and supplies

* talks about or attempts to run away

* talks about or attempts suicide

* carries or wants to carry protection such as a kitchen knife, a

gun, or a box opener

* has started bullying or is aggressive to other children and younger

siblings ...

What Parents Can Do if Their Child Has Been Bullied?

If you suspect that your child has been bullied, or has witnessed

bullying at school, talk with your child and listen to his/her concerns.

Listening gives your child a feeling of value. Let your child know it is

not his/her fault and does not deserve to be treated in that manner.

Tell your child that you will make sure he/she is protected and you will

work with the school to get the issue resolved. ...

Ten years ago bullying was treated like a part of life, that if ignored

would go away. Thanks to public concern and research on this topic,

there is now a national awareness about bullying and the disastrous life

long effects that this behavior can have on children who are bullied,

and on those children who are bullies. This awareness has resulted in

the development of many excellent anti-bullying programs that are now

available to help community agencies, school systems and families work

together to get the message across that bullying is no longer considered

to be a part of growing up.

Bullying and children with disabilities

Journal of Instructional Psychology

<http://findarticles.com/p/articles/mi_m0FCG> , Dec, 2004

<http://findarticles.com/p/articles/mi_m0FCG/is_4_31> by W.

Flynt <http://findarticles.com/p/search?tb=art & qt=%22+W.+Flynt%22>

, Rhonda Morton

<http://findarticles.com/p/search?tb=art & qt=%22Rhonda++Morton%22>

http://findarticles.com/p/articles/mi_m0FCG/is_4_31/ai_n8590245

<http://findarticles.com/p/articles/mi_m0FCG/is_4_31/ai_n8590245>

Bullying and Teasing Youth with Disabilities: Creating Positive School

Environments for Effective Inclusion

http://www.ncset.org/publications/issue/NCSETIssueBrief_2.3.pdf

<http://www.ncset.org/publications/issue/NCSETIssueBrief_2.3.pdf>

http://www.wrightslaw.com/law/pubs/ocr.harassment.pdf

<http://www.wrightslaw.com/law/pubs/ocr.harassment.pdf>

Bullying & Harassment

Schoolwide Prevention of Bullying

<http://www.nwrel.org/request/dec01/index.html> (Northwest Regional

Educational Library). 30 percent of American children are involved in

bullying, as bullies, victims, or both. Approximately 15 percent are

" severely traumatized or distressed " by bullies . . . Despite

these numbers, bullying behavior is rarely detected by teachers, and is

even less frequently taken seriously. This booklet provides an overview

of what is known about bullying behavior and successful efforts to

address it; profiles anti-bullying programs and offers resources.

Download in pdf <http://www.nwrel.org/request/dec01/index.html> (28

pages)Protecting Students from Harassment and Hate Crimes: A Guide for

Schools <http://www.wrightslaw.com/law/pubs/ocr.harassment.pdf> (U. S.

Department of Education & Office for Civil Rights & National Association

of Attorneys General). Many children experience sexual, racial and

ethnic harassment at school. This Guide provides step-by-step guidance

about how to protect students from harassment and violence.

Feel free to share with 's teachers.

Betsy

Betsy L. McGinnity

DB-LINK, NCDB

January 16, 2007

when heath went to kindergarten the school made the

kids aware of his problems and they discussed it

openly with the children they also did some games

involving putting a scarf over the childrens eyes and

so on

as he got older and the new kids came in they would

tease but the other kids would tell them not to

it is very effective to inform the children to prevent teasing

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January 16, 2007

Betsy,

This is important information. I'm glad you sent it t the list. It's alarming

to read that even in the not so distant past, bullying was often ignored. The

suggestions here are good for all of us to know. Bullying anywhere is not

acceptable.

Thanks for your input., as always.

Mom to Kendra, and Camille

Re:Anxiety and Children with CHARGE