New Member - Ernae

[Guest guest]

I take Tikosyn too. It did not ever work very well for me. Although it

worked better than the Sotalol that I was taking previously. However,

I went to the Cleveland Clinic in December and they added a small dose

of Cardizem to my dose of Tikosyn. This combination works really well

for me. For me, this combination provides me with the most time in NSR

that I have experienced in several years.

Also, I don't know where you live in Alaska, but when I lived there I

came to Seattle for cardiology care. I live in Seattle now and I have

an excellent EP. His name is Fellows and he is at Virginia

Mason Hospital in Seattle. He also has been doing ablasion surgeries

for about 8 years.

Good luck.

Lori

> >

> >

> > >

> > > Hi, I am a new member and would like to talk to others with afib

> > that have had it for awhile. My heart has been in and out of

> rhythm

> > for the past 8-10 years. I have had cardioversion 4 times with it

> > staying in rhythm for various amounts of time. I am currently in

> > afib and have been out of rhythm since last October. I have been

> on

> > a antirythmatic drug called Tikosyn for 2 years. When I first

> > started the drug my heart stayed in rhythm for 1 year. I do not

> have

> > allot of symptoms, but general out of breath and tiredness all the

> > time. I don't know what my next move should be. My doctors are

> > saying that I might need to just live with it. I have heard some

> > good and some bad things about ablation. What have your

> experiences

> > been with getting your afib under control?

> > > nae in Alaska

> >

> > Nae: It sounds like the Tikosyn " pooped out " on you as many meds

> do

> > after a period of time. I wonder why you're still taking it if

> your

> > continually in afib; as it certainly isn't doing you any good.

> >

> > You could try other rhythm and/or rate control meds like Amiodarone

> > or Flecainide or one of the beta blockers. If they work for you,

> > fine, but if they don't it may be time to consult an EP to see if

> > your heart is sturcturally sound and if you might be a candidate

> for

> > a mini-maze or an ablation.

> >

> > You definitely should be seeing a specialist, preferably an

> > electrophysiologist. I doubt any internist

> >

>

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> Nothing in this message should be considered as medical advice, or

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