Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 10:27:55 AM Eastern Daylight Time, PLS-FRIENDS writes: > Since you are in contact with so many HSPers it would be wonderful if > you could ask them. Hi Maureen, Hey, why not put a post out to the HSPList and ask? Curious minds wanna know... It's very common for people to get a Spastic Paraplegia diagnosis (no " Hereditary " ). That means it's probably HSP but there's no obvious family history to proove it and so the neuro don't want to use the H-word. Dr. Fink, the SPF Medical Advisor, uses the term Apparently Sporadic Spastic Paraplegia when there's no obvious family history. He's a geneticist as well as a neurologist, so he wants to be precise. He estimates about 30% of the people with " all the signs and symptoms of HSP " don't have a family history. That's the big reason that people can end up with other diagnoses. best, Kathi Quote Link to comment Share on other sites More sharing options...
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