Re: stiffman syndrome - Arlene

July 4, 2004

Hi Arlene

So do you have Stiffman Syndrome and PLS??

I was actually first put on Atavan also before clonzapem and found

that it worked great but it is an addictive drug and found that it

didnt work after some time. from what i have been told, Atavan is

only for short term use. Clonzapam works very well for me and if i go

a day with out it, i notice it big time.

Do you go into the heavy duty painful spasms that are associated with

Stiffman Syndrome?? I have none of those. I am curious.

Maureen

PS thank you for the welcome!!

> Hi Maureen,

> This is from Arlene in Texas.

> Welcome to the best group of people on earth.

> I was first diagnosed with Stiffman by one of the best neuros in Houston

> for nearly 2 yrs. I tested negative on the Gad test but a large percent

> do. The EMG is the most important test and you shouldn't be on

> clonozapan when taking test. Clonozapan is the same as klonopin. After

> trying meds and no improvement they decided not Stiffman. I also tested

> normal on EMG. They ususally try diazapam first as this is sorta the

> wonder drug for stiffman. Wasn't a wonder for me in fact I wondered why

> I was on it! Got best results from atavin and then they added baclofen

> 20 mgs 3 times a day and I went downhill. Still take .25 klonopin and

> small amt of baclofen a day for PLS. Jankovic in Houston diagnosed

> Stiffman from lordosis and the startle affect.

> Good luck and keep us posted.

> Arlene

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