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Re: Our Story

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>

> Kathi, thanks for writing this up.

> There are a few incorrect dates.

> Joe Alberstadt had a couple of casual connections in Florida that

brought about a connection in Vienna, Va.

Hi Ronnie,

Yep, you are right. I had that in my notes but in putting together

such a vast amount of details, overlooked it. Sorry Joe! Joe was

the " first " to organize a PLS Casual Connection. Dolores was

the " first " to organize more of a Conference event.

There are others who helped in our early years, but I'm trying to

record the " firsts " for each type of thing that contributed to our

community building. Although the email groups (PLS Friends and HSP

List) were the first things to connect people and give birth to our

communities, those wouldn't have happened without the websites that

were created, so I look at the websites that and Cheryl created

as the very first " firsts " .

There is a briefer highlight of the key " firsts " at the About our

History webpage with photos of those important pioneers here:

http://sp-foundation.org/about.htm

Thanks, Ronnie, you are a champion for sure, too.

best,

Kathi

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It is still not quite right-- Cecere had already done the preliminary

planning for the first conference type gathering before I met him. So, I

joined him as his co-chairman and we did the rest of the planning together

for the October 2000 Connecticut Connection. Up to the time I met ,

quite by accident (I prefer to think of it as divine intervention), I didn't

know anyone else with PLS.

During the summer of 2001, when I was recuperating from my radiation

treatments, along with TV coverage I sent hundreds of letters to CT, MA, NY,

and RI neurologists, physical therapists and newspapers announcing my

intention to form a support group. With 's permission, I called my

group " CT Connection " . We were officially registered on September 10, 2001.

Dolores Carron

Re: Our Story

>

> >

> > Kathi, thanks for writing this up.

> > There are a few incorrect dates.

> > Joe Alberstadt had a couple of casual connections in Florida that

> brought about a connection in Vienna, Va.

>

> Hi Ronnie,

>

> Yep, you are right. I had that in my notes but in putting together

> such a vast amount of details, overlooked it. Sorry Joe! Joe was

> the " first " to organize a PLS Casual Connection. Dolores was

> the " first " to organize more of a Conference event.

>

> There are others who helped in our early years, but I'm trying to

> record the " firsts " for each type of thing that contributed to our

> community building. Although the email groups (PLS Friends and HSP

> List) were the first things to connect people and give birth to our

> communities, those wouldn't have happened without the websites that

> were created, so I look at the websites that and Cheryl created

> as the very first " firsts " .

>

> There is a briefer highlight of the key " firsts " at the About our

> History webpage with photos of those important pioneers here:

> http://sp-foundation.org/about.htm

>

> Thanks, Ronnie, you are a champion for sure, too.

>

> best,

> Kathi

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