re - how long did it take for you to be diagnosed - many thanks for your respon

July 17, 2004

Hi all

sorry for monopolising the board here for my replies to many of you

who replied to my postng.

Your replies made for very interesting reading. Your diagnoses ranged

from 1 month to 7 years. I am 7 years undiagnosed so maybe i will get

dx ed soon. but i am still holding on to the saying " that no news is

good news " . Also was interested in reading that some of you were

misdiagnosed and a few are still undiagnosed.

So it looks like a wait and see for me.

Many thanks to all of you who took the time to reply.

Best wishes

Maureen

July 17, 2004

Hi Maureen,

Its Sandy again, this group is a very supportive and careing group. We all pray,

cry, laugh and support each other. It is terrible we have this dogone disease,

but it is very nice to find such kind people that can relate to how you are

feeling. Thank you Maureen for being part of our friends. Sandy

re - how long did it take for you to be diagnosed -

many thanks for your respon