Re: Re: Test post -- to Wayne

[Guest guest]

Welcome Wayne but it sounds as though you're not a stranger. If you have

been reading for a while, you've probably read where I encourage everyone to

register in the database at _http://www.geocities.com/freyerse/plsdb.html_

(http://www.geocities.com/freyerse/plsdb.html) . I check it out regularly. I

noticed in Texas there are 2 men who have registered that do say " ALS " . You've

also probably read that Doolen, who has HSP and lives in Austin and

is on the SPF Board of Directors, has Connections at least a couple of times a

year for all in our " community " . You can see her in the database.

I have PLS but my last EMG did reveal minimal LMN involvement so I " qualify "

for all ALS research studies (whoopee) but I gladly do all the research

studies offered. This whole disorder is so bizarre...my husband's aunt was

dx'd.

with ALS about 15 years ago and she still has no speech involvement or uses

no walking aids but 3 neurologists still claim ALS so if it is indeed ALS,

she is very fortunate and rare. I saw her last weekend and only her hands look

arthritic sooo... I have PLS and my symptoms are more than hers...and I'm

considered slow progressing. Go figure. Anyway, don't be a stranger.

Gentner

Fremont, CA

Alone we can do so little. Together we can do so much.

Helen Keller (1880-1968)