uroxatral? fed up with urologist

[Guest guest]

Hey guys,

Just got back from my urologist and he's really iffy about putting me on several of the meds for interstitial cystitis and neurogenic bladder. We already tried detrol LA (pil form) and then the patch (cant remember the name but similar to detrol). Both of these gave me probs with my dysmotility. He has me on urostat which helps me some with the burning and frequency but not enough with urgency and it seems my kidneys aren't processing it the way it should be processed (it should work pretty quickly and for 8 hrs but for me it takes 4-5 hrs to work and only works 2 hrs- dr thinks that since it doesnt color my urine orange right away- but takes several hours that my kidneys are having probs with it.) Anyways......he really wants to treat this conditions and says that if we don't get them treated well that I will keep having reoccuring kidney and bladder infections which of course aren't good cuz they throw off all my other probs. He wanted to try elmiron which is for interstitial cystitis but since I have liver probs he said that I can't take it until my liver enzymes are normal for at least 2 months (which hasnt happened in over a year). So now he gives me this med called uroxatral. But I research it and its only used in men supposively for prostate issues! It does talk about how it helps the smooth muscles of the bladder wall also but it keeps talking about how its not intended for use in women. It also supposively can cause postural hypotension which I already deal with sometimes. I'm really scared to try this med but this urologist seems fed up with my issues with meds- he kept repeating how i was a difficult case for him and last time I had probs with the meds he gave me and paged him- he never called back! I dont know what I should do. I'm thinking about changing urologist- maybe trying to find one that primarily sees women (my gyno said there was one in the area) but I'm so sick of going to new drs and repeating my complicated history. I saw a new gastro friday and that just was loads of fun- specially him saying 'but you look so healthy!" At least he is going to do some needed tests this week and is interested in all my records, some drs just throw their hands up. Oh, and this urologist does know some stuff about mito- I'm afraid to find another one that doesnt know a thing but I cant keep taking chances with these weird meds. He also gave me macrobid which flared up my periphrial neuropathy. I told him I had it and he just doesnt seem to know enough about these meds. Argh, anyways, sorry for the long vent.....I just wanted to get some imput here, specially with those that said they had IC and other uro probs. (I know yall posted before and I should of responded- sorry for not keeping up.) Any suggestions would be much appreciated.

take care,

Adrienne