Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 We saw Dr Hersh yesterday.He feels that most of the problems she is having are due to more neurological involvement.He also does not want to change the Depakote,we've had so much trouble with the other seizure meds.We'll just keep a check on the level and liver function.He did want us to get a cooling blanket,she has some trouble regulating body temp.Also wants us to try a precussion vest,we tried the massager but she had such fit everytime we did it that I finally gave up. has some real spacial issues and telling her she's not falling is a waste of time.Hopefully if we just have to put the vest on her,she'll be allright with it.I would love to at least increase her lung capacity enough for her to be able to answer yes or no questions.Right now she can't get sounds out.It's VERY flustrating for both of us,I want her to be able to tell me what she wants and she can't. She has been very protective of her right arm lately,he felt she showed quite a bit of resistance in her shoulder so he sent her for x-rays.I haven't heard back on those yet. I do think is doing better on the Dantrium,her muscles are more relaxed.She is still sleeping to much to suit me but when she is awake she seems more awake (if that makes sense).She is still not eating much,but she does have a g-tube so I shouldn't worry about that.The only thing is I don't want her to forget HOW to eat. Every body is still in my prayers. ,Mom to Quote Link to comment Share on other sites More sharing options...
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