Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hi, Again I forward this on FYI for anybody interested in more info on a company already using Cord Blood Stem Cell Therapy. I have no interest in pursuing this treatment YET?? but there are others out there whose conditions are progressing rapidly and who may be grateful for any such info, so this is for them. * Biomark Thank you for your interest in BioMark International. Attached please find an information package regarding Cord Blood Stem Cell Therapy which provides more detailed information. After reading the information package, if you have further questions or wish to proceed with the therapy, please email or contact us at either of the numbers below to schedule a telephone consultation. We look forward to hearing from you. Sincerely, Roxy Kote' Patient Affairs Co-ordinator BioMark International www.biomark-intl.com <http://www.biomark-intl.com/> US Tel: + 1 UK Tel: +44 This information is intended for the sole use of the individual or entity to whom it is sent, and may contain information that is privileged and confidential. Any dissemination, disclosure, copying or distribution of this information is strictly prohibited. If you have received this communication in error, please notify the sender immediately and destroy any copies of the original message. -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Duuuh!! :-( Forgot for a sec that unlike the other groups I am in PLS-FRIENDS (for good reason) rejects attachments. The attachment I refer to was a 19 page well spread out Word document from Biomark. If anybody wants me to send it directly to them just email me at covo@... with Biomark or PLS-FRIENDS in the subject somewhere so it isn't treated as spam. I will wait a day or two before sending it out so I get most people in one hit rather than doing them individually. C wrote: > Hi, > > Again I forward this on FYI for anybody interested in more info on a > company already using Cord Blood Stem Cell Therapy. I have no interest > in pursuing this treatment YET?? but there are others out there whose > conditions are progressing rapidly and who may be grateful for any such > info, so this is for them. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 As of last week, I was looking into this company very seriously because I was diagnosed with ALS. I'm thrilled to report that both Dr. Siddique in Chicago and Dr. Rosenfeld at the Carolinas ALS center have told me that I do NOT have ALS, but do have PLS. I never thought I'd be happy to have PLS, but heck, it's better than ALS. I spoke to Brown in London and got some other info, so if anyone wants to talk to me, just email edith@.... There may also be a way to negotiate a lower price for the treatment. Edith -- In PLS-FRIENDS , C <covo@m...> wrote: > Hi, > > Again I forward this on FYI for anybody interested in more info on a > company already using Cord Blood Stem Cell Therapy. I have no interest > in pursuing this treatment YET?? but there are others out there whose > conditions are progressing rapidly and who may be grateful for any such > info, so this is for them. > > > > > * Biomark > > Thank you for your interest in BioMark International. > > > > Attached please find an information package regarding Cord Blood Stem > Cell Therapy which provides more detailed information. > > > > After reading the information package, if you have further questions or > wish to proceed with the therapy, please email or contact us at either > of the numbers below to schedule a telephone consultation. > > > > We look forward to hearing from you. > > > > Sincerely, > > > Roxy Kote' > Patient Affairs Co-ordinator > BioMark International > www.biomark-intl.com <http://www.biomark-intl.com/> > US Tel: + 1 > UK Tel: +44 > > > This information is intended for the sole use of the individual or > entity to whom it is sent, and may contain information that is > privileged and confidential. Any dissemination, disclosure, copying or > distribution of this information is strictly prohibited. If you have > received this communication in error, please notify the sender > immediately and destroy any copies of the original message. > > -- > . > ,-._|\ Covington > / Oz \ > \_,--.x/ > v > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Hi Edith: GREAT NEWS!! (Well not great - but better than ALS) How did they come to the point that they determined it was PLS rather than ALS? Jo. * Biomark > > > > Thank you for your interest in BioMark International. > > > > > > > > Attached please find an information package regarding Cord Blood > Stem > > Cell Therapy which provides more detailed information. > > > > > > > > After reading the information package, if you have further > questions or > > wish to proceed with the therapy, please email or contact us at > either > > of the numbers below to schedule a telephone consultation. > > > > > > > > We look forward to hearing from you. > > > > > > > > Sincerely, > > > > > > Roxy Kote' > > Patient Affairs Co-ordinator > > BioMark International > > www.biomark-intl.com <http://www.biomark-intl.com/> > > US Tel: + 1 > > UK Tel: +44 > > > > > > This information is intended for the sole use of the individual or > > entity to whom it is sent, and may contain information that is > > privileged and confidential. Any dissemination, disclosure, > copying or > > distribution of this information is strictly prohibited. If you > have > > received this communication in error, please notify the sender > > immediately and destroy any copies of the original message. > > > > -- > > . > > ,-._|\ Covington > > / Oz \ > > \_,--.x/ > > v > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Excellent news Edith! :-) Like you said and as we all know, it isn't all that crash hot to have PLS but it is one heck of a lot better than ALS! Apparently Biomark do group discounts as there was a woman from the lowdosenaltrexone group who was trying to organise a few Aussies to get it done together because then (from memory) the price dropped from US$21,000 to around US$10,000 each. Edith wrote: > As of last week, I was looking into this company very seriously > because I was diagnosed with ALS. I'm thrilled to report that both > Dr. Siddique in Chicago and Dr. Rosenfeld at the Carolinas ALS > center have told me that I do NOT have ALS, but do have PLS. I never > thought I'd be happy to have PLS, but heck, it's better than ALS. > > I spoke to Brown in London and got some other info, so if > anyone wants to talk to me, just email edith@.... There may also > be a way to negotiate a lower price for the treatment. > Edith -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Dr. Siddique examined me and I had another EMG. His colleage, Dr. Sufit told me that I did not have ALS. I also went to the Carolinas Neuromuscular/ALS Center in Charlotte, NC for a 2-day evaluation and consults with its director, Dr. Rosenfeld. He tested 3 muscles to check against the first EMGs and confirmed that I do not have ALS but do have PLS. It's been a long haul, but I believe I can stop now and enjoy my life. By the way, the Carolinas clinic is wonderful and I would recommend them highly. I guess the message from all this is Don't give up and find the best expert in neuro disorders, especially ALS and PLS. It may be costly to travel but in the end, it could be worth it. Edith > > > Hi, > > > > > > Again I forward this on FYI for anybody interested in more info on > > a > > > company already using Cord Blood Stem Cell Therapy. I have no > > interest > > > in pursuing this treatment YET?? but there are others out there > > whose > > > conditions are progressing rapidly and who may be grateful for any > > such > > > info, so this is for them. > > > > > > > > > > > > > > > * Biomark > > > > > > Thank you for your interest in BioMark International. > > > > > > > > > > > > Attached please find an information package regarding Cord Blood > > Stem > > > Cell Therapy which provides more detailed information. > > > > > > > > > > > > After reading the information package, if you have further > > questions or > > > wish to proceed with the therapy, please email or contact us at > > either > > > of the numbers below to schedule a telephone consultation. > > > > > > > > > > > > We look forward to hearing from you. > > > > > > > > > > > > Sincerely, > > > > > > > > > Roxy Kote' > > > Patient Affairs Co-ordinator > > > BioMark International > > > www.biomark-intl.com <http://www.biomark-intl.com/> > > > US Tel: + 1 > > > UK Tel: +44 > > > > > > > > > This information is intended for the sole use of the individual or > > > entity to whom it is sent, and may contain information that is > > > privileged and confidential. Any dissemination, disclosure, > > copying or > > > distribution of this information is strictly prohibited. If you > > have > > > received this communication in error, please notify the sender > > > immediately and destroy any copies of the original message. > > > > > > -- > > > . > > > ,-._|\ Covington > > > / Oz \ > > > \_,--.x/ > > > v > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Yep, that's how the price gets lower. I met someone on line who had the treatment (from Washington state) and she also promised a group and paid $10K. If I went, I would be part of her group. Edith > > > As of last week, I was looking into this company very seriously > > because I was diagnosed with ALS. I'm thrilled to report that both > > Dr. Siddique in Chicago and Dr. Rosenfeld at the Carolinas ALS > > center have told me that I do NOT have ALS, but do have PLS. I never > > thought I'd be happy to have PLS, but heck, it's better than ALS. > > > > I spoke to Brown in London and got some other info, so if > > anyone wants to talk to me, just email edith@v... There may also > > be a way to negotiate a lower price for the treatment. > > Edith > > -- > > . > ,-._|\ Covington > / Oz \ > \_,--.x/ > v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 That is fantastic news Edith, I bet you are very much releived that its not ALS. Sandy * Biomark > > > > > > Thank you for your interest in BioMark International. > > > > > > > > > > > > Attached please find an information package regarding Cord Blood > > Stem > > > Cell Therapy which provides more detailed information. > > > > > > > > > > > > After reading the information package, if you have further > > questions or > > > wish to proceed with the therapy, please email or contact us at > > either > > > of the numbers below to schedule a telephone consultation. > > > > > > > > > > > > We look forward to hearing from you. > > > > > > > > > > > > Sincerely, > > > > > > > > > Roxy Kote' > > > Patient Affairs Co-ordinator > > > BioMark International > > > www.biomark-intl.com <http://www.biomark-intl.com/> > > > US Tel: + 1 > > > UK Tel: +44 > > > > > > > > > This information is intended for the sole use of the individual or > > > entity to whom it is sent, and may contain information that is > > > privileged and confidential. Any dissemination, disclosure, > > copying or > > > distribution of this information is strictly prohibited. If you > > have > > > received this communication in error, please notify the sender > > > immediately and destroy any copies of the original message. > > > > > > -- > > > . > > > ,-._|\ Covington > > > / Oz \ > > > \_,--.x/ > > > v > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Edith, I am so happy you do not have ALS. Jane Anne Re: Fw: Biomark (Stem Cell Therapy) Quote Link to comment Share on other sites More sharing options...
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