Re: Dennis & Connie new members

[Guest guest]

Hello Connie and Dennis, welcome to our group of fellow PLS'ers. I don't

think we've had two new PLS'ers in one day. There is much to learn from us so

ask away either openly or directly which ever you feel comfortable with. There

are several sites which will help you find information one is

www.sp-foundation.org which is Mark Weber and Kathi Geisler main site, click on

my name and

picture and read my story there. Connie there is information from many

PLS'ers that have bacolfen pumps. When you get on to the site (Sp-Foundation)

on

the left hand side click on patient forum and then click on the bacolfen pump

survey. There is loads of information there. Another site is

Thomson's web site http://www.als-pls.org that has well over a 100 PLS'ers data

that

each of us have submitted to her. Reyerse site also at

http://geocities.com/freyerse/index.html. One more is Thurza 's

" Synapse " site at

http://www.synapsepls.org which has our PLS Community news. What I have given

you is more then enough information for now but please feel free to e-mail me

directly or to the local members who have a vast amount of knowledge about

themselves to give.

Flora Brand/St sburg,Florida