Re: New member/Chris

[Guest guest]

It was the genetics department at the University of Michigan. They

said he has a long arm translocation between chromosme 12 and 16. I

got the impresion that they didn`t know what that would mean as far

as his development. They all thought he had syndrome thats

why they were testing his chromosomes. Tina

[Guest guest]

In a message dated 5/13/2005 9:18:33 PM Central Daylight Time,

lynnie53@... writes:

I'm hoping we can chat if you dont mind offlist re: Syndrome. My

neice was recently diagnosed and my sister isnt really wanting to accept the

fact that she is going to be a special needs child.

Hello Jodi-

The world is getting smaller and smaller. How old is your neice?

I would happy to chat offlist. Feel free to e-mail me privately anytime.

My W.S. daughter is now 14 years old. Most of her classmates have Down

Syndrome. She is reading at a first grade level, and writing just isn't

happening. She is EXTREMELY friendly, and very cute, too! She did have open

heart

surgery when she was 2 years old. Like I said, please feel free to be in

touch. Sounds like we can help each other!

~

[Guest guest]

Welcome to our little clan! My names Jodi, I have SMA Type2. Never walked and

think its overrated =0)

I'm hoping we can chat if you dont mind offlist re: Syndrome. My neice

was recently diagnosed and my sister isnt really wanting to accept the fact that

she is going to be a special needs child.

I'd appreciate any insite, advice, or website I could use to gain knowledge of

the illness.

Thank you,

Jodi & Maggie May

Accessible Travel

Disability Travel Specialist and Service Dog

" Making a way for YOU to get away! "