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Youth Leadership teleconference/increase in drug usage for ADHD

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IL NET Presents...

A National Teleconference & Webcast

YOUTH LEADERSHIP:

Creating Leaders for the Future of the IL Movement

July 7, 2004

Live Teleconference

6:00 pm Eastern 4:00 pm Mountain

5:00 pm Central 3:00 pm Pacific

DEADLINE FOR REGISTRATION: Friday June 4, 2004

Investing in methods to help youth with disabilities realize the importance

of independent living while they are still young could produce invaluable IL

leaders. Youthful leaders are likely to foster further youth participation,

provide a fresh perspective on the goals of the disability community, and

continue a life-long advocation for IL interests. The concerted effort of

today's advocates to successfully interest youth with disabilities in the IL

movement will ensure progress in the future. The youth you and your staff

recruit today could very well be a future CIL or SILC director, a

ground-breaking advocate, mentor or all of the above!

So Please, Register Now to Learn:

--Why youth are a vital part of the IL movement

--How to interest youth and retain them in your organization

--How to manage youth operating their own programs

--Necessary outreach and fundraising efforts for youth programs

--What resources already exist for youth with disabilities

Teleconference Logistics:

How Do I Connect with the Teleconference?

In the confirmation letter that you receive with your training material, you

will be given the access code and a site-specific PIN number. On the day of

the teleconference, you will need to call at least 10-15 minutes prior to

the start of the call. When you call, you will key in your access code and

pin number.

Training Materials:

Training materials will be provided to each site shortly after the

registration cut-off date of Friday June 4th, 2004. A hard copy as well as a

disk copy of the materials will be provided. NCIL must receive your

registration form and fee before your training materials can be mailed.

Alternate Formats:

For alternate formats at no charge, contact Braille Works at

brailleworks@... (email) or 813-689-8628 (fax). Alternate

formats must be ordered 7 days in advance to avoid shipping charges.

Webcast Logistics:

How Do I Sign Up?

Email June Sutherland at ilnet@... at least one hour before the call

(earlier notice is appreciated) and let her know that you plan to attend.

After the call, you must print out the evaluation form, fill it out, and

return it to the NCIL office.

What Do I Need?

A computer with RealOne Player®. If you do not have this plug-in, a free

version is available for download at: www.real.com/realone/. The webcast

consists of an audio broadcast of a live presentation. In addition,

real-time captioning of the presentation is displayed. No other images are

broadcast.

How Do I Access the Training Materials?

The training manual and evaluation form will be available online shortly

after the June 4th deadline. Simply go to

http://www.ilru.org/online/calendar.html and find " Youth Leadership " in the

calendar of events. Click on the underlined portion of the title to access

the materials.

What Do I Do the day of the Training?

At 5:45 PM Eastern, July 7th, simply go to

http://www.ilru.org/online/calendar.html and click on " Youth Leadership. "

Then click on the link provided to " go to the webcast. " For technical

assistance prior to or during the webcast, call Dawn Heinsohn at ILRU:

713-520-0232 (V) or 713-520-5136 (TTY) Ext. 130.

Your Trainers:

Mills is a nationally recognized youth leader. Currently she

works as the Systems Change Advocate for the Access Center of San Diego, Inc

and part time as a youth consultant for the KASA (Kids as Self Advocates)

Project. Since 1997 she has been a volunteer staff member of the Youth

Leadership Forum and for the past three years she has been the first youth

to facilitate the entire weeklong event. has been a guest

speaker/trainer at a variety of different conferences, trainings, workshops,

and seminars. In 2001 she was not only one of the G. Hearn Leadership

Award finalists, but was also appointed by the California Governor, Grey

, to represent the youth perspective on the Statewide Independent

Living Council. served one year as the Chair of the Youth Advisory

Council for the National Council on Disability. Most recently,

was elected Chair of the State Independent Living Center. was

born with a disability, Osteogenesis Imperfecta, and has been advocating for

herself and her peers for as long as she can remember. She has had over 200

fractures and has gone through over a dozen operations. Her area of

expertise is in youth transition, independent living, healthcare transition,

Medicaid, and SSI benefits.

Marissa : As the Education Policy Coordinator at Access Living of

Metropolitan Chicago, Marissa works to create a more inclusive

education system for disabled students in Chicago, Illinois, and the nation.

Prior to moving to Chicago, Marissa spent a year running youth leadership

programs for a Missouri Center for Independent Living after completing the

coursework for her Master's of Education in Deaf Education. In addition to

her education work, Marissa serves on many national committees related to

youth with disabilities, including the National Youth Leadership Network,

the National Disabled Students Network, and the National Council on

Independent Living. One of her passions is passing on our disability

heritage to young people and involving them in the disability rights

movement. In the future, she hopes to write and publish children's books

about the history of the disability rights movement to help give young

disabled children a sense of pride in their disability heritage and help all

children understand disability from a civil rights issue at a young age.

Agenda & Pre-Teleconference Discussion at sites:

5:15 pm Eastern 3:15 am Mountain

4:15 pm Central 2:15 am Pacific

Distribute training materials to participants

(download from ILRU website if necessary)

Discuss the following questions prior to the call:

1. How many youth are currently on your staff?

....On your Board of Directors?

2. If your organization does not offer direct youth programs, has your

organization collaborated with any local or regional organizations that do

offer such programs?

3. Has your CIL/SILC/ORG worked with any local or regional school

districts? If so, what and how much work was done?

Live Teleconference

6:00 pm Eastern 4:00 pm Mountain

5:00 pm Central 3:00 pm Pacific

Post-Teleconference activity

7:30 pm Eastern 5:30 pm Mountain

6:30 pm Central 4:30 pm Pacific

Teleconference OR Webcast?

Teleconference

$125 for unlimited number of participants

Hard copy and disk copy of training manual provided, as well as

alternate formats, free of charge, from Brailleworks

Audio tape of the training sent after the call

Can ask questions live during the training

Webcast

Free-of-charge

The webcast will feature the real time audio of the teleconference with

open captioning

Training manual available online

THIS TELECONFERENCE WILL BE AVAILABLE ONLINE AS A WEBCAST FREE OF CHARGE -

SEE ABOVE

DEADLINE FOR REGISTRATION: Friday June 4, 2004 (5PM, EST)

YES! Please register me for the National Teleconference, Youth Leadership:

Creating Leaders for the Future of the IL Movement, for only $125.

___I can't attend but would like to purchase the audio tapes and training

material for Youth Leadership: Creating Leaders for the Future of the IL

Movement for only $125

___I can't attend but would like to purchase the audio tapes only for Youth

Leadership: Creating Leaders for the Future of the IL Movement for only $25

PLEASE DO NOT SEND CREDIT CARD INFORMATION VIA EMAIL; IT IS NOT SECURE.

Credit Card #

(ONLY VISA and MasterCard are accepted)

Exp.

Amount $

Print name:

Authorizing Signature:

A $15.00 administrative fee will be charged for refunds.

Site Coordinator's Name:

Phone:

Organization:

E-Mail:

Mailing Address:

TTY:

City:

State:

Zip:

Fax:

Number of Participants:

Payment information: Please enclose a check, or money order, or Credit Card

information with your completed registration form and return it to:

NCIL, 1916 Blvd., Suite 209, Arlington, VA 22201

For more information, contact June Sutherland at 703-525-3406 (V),

703-525-3409 (Fax), 877-525-3400 (V/TTY), 703-525-4153 (TTY) or

ilnet@..., National Council on Independent Living,

1916 Blvd., Suite 209, Arlington, VA 22201

Next Teleconference & Webcast:

AFFORDABLE, ACCESSIBLE, INTEGRATED HOUSING:

Putting the Puzzle Together When the Pieces Don't Fit

Two-Part Training With Steve Gold!

Part I: 3pm EST August 9

Part II: 3pm EST August 11

EXPANDING THE POWER OF THE INDEPENDENT LIVING MOVEMENT

This material is being sent to you by the IL NET

(http://www.ilru.org/ilnet/), a national training and technical assistance

project spearheaded by ILRU (http://www.ilru.org) in partnership with the

National Council on Independent Living (http://www.ncil.org). All of our

publications are available at http://www.ilru.org/Publications/index.html

IL NET is funded through a special provisions cooperative agreement with the

U.S. Department of Education, Rehabilitation Services Administration,

Agreement No. H132B99002.

ILRU maintains an email list of persons in the IL-related fields that will

remain private. This information has been sent as a courtesy. If you wish to

stop receiving these messages, please contact Dawn Heinsohn at:

heinsohn@...

Dawn Heinsohn

ILRU Program

2323 S. Shepherd, Suite 1000

Houston, TX 77019

713.520.0232 ext. 130(v)

713.520.5136 (TTY)

713.520.5785 (fax)

Worldwide Web Site: http://www.ilru.org

ILRU is a program of TIRR (The Institute for Rehabilitation and Research), a

nationally recognized medical rehabilitation facility for persons with

disabilities in Houston.

http://www.tirr.org/

--ilru: over 25 years of creating a world of independence--

FYI

Awak(e)A-dvocacy

A small input-My Opinion - There is NO ONE WAY to treat ADD/ADHD

I personally think diagnosing/Medicating at 2 to 5 yrs of age is a dangerous

practice.

The Child Development Clinic in VA, would not diagnose my son until he was 5

yrs & 9 months of age, although they had started evaluateing [some] at age 4,

they COULD Not fully evauate at that age.

Mike Savory

The Associated Press

http://www.msnbc.msn.com/id/4993606/

Article:

TRENTON, N.J. - As more children pop pills for attention deficit and other

behavior disorders, new figures show spending on those drugs has for the first

time edged out the cost of antibiotics and asthma medications for kids.

A 49 percent rise in the use of attention deficit/hyperactivity disorder

drugs by children under 5 ? in the last three years contributed to a 23 percent

increase in usage for all children, according to an annual analysis of drug use

trends by Medco Health Solutions Inc.

(Aren't kids under 5 supposed to have short attention spans and be very

active, as in the " terrible twos " ?)

“Behavioral medicines have eclipsed the other categories this year,†said

Dr. Epstein, Medco’s chief medical officer. “It certainly reflects

the

concern of parents that their children do as well as they can.â€

Antibiotics still top the list of the most commonly used children’s drugs,

but parents are paying more for behavioral drugs, such as stimulants or

antidepressants, according to the analysis of drug use among 300,000 children

under

19.

Medco, the nation’s largest prescription benefit manager, was to release the

data culled from its customers’ usage on Monday.

More cash for costlier medicine The most startling change was a 369 percent

increase in spending on attention deficit drugs for children under five. TO

REPEAT, (Aren't kids under 5 supposed to have short attention spans and be very

active, as in the " terrible twos " ?)

That’s in part because of the popularity of newer, long-acting medicines

under patent, compared with

twice-a-day Ritalin and generic versions available for years.

But the use of other behavioral drugs also jumped in the last three years.

Antidepressant use rose 21 percent and drugs for autism and other conduct

disorders jumped 71 percent, compared to a 4.3 percent rise in antibiotics.

Epstein said 17 percent of total drug spending last year for the group of

children under 19 was for behavioral medicines, compared with 16 percent each

for

antibiotics and asthma drugs, 11 percent for skin conditions and 6 percent

for allergy medicines.

Use of such behavior medicines has been controversial, with some experts

questioning whether parents and school officials are too eager to medicate

disruptive children.

Some experts say no.

“It’s not necessarily a bad thing that these medicines are being used

more,â€

said Dr. McGough, associate professor of clinical psychiatry at the

UCLA Neuropsychiatric Institute.

McGough said kids on attention deficit drugs tend to avoid substance abuse

and other problems and do better in school.

However, McGough said increasing adolescent use of antidepressants is a

concern, because there’s little proof they work in young people and evidence

they

may increase suicidal tendencies.

For Full Article

http://www.msnbc.msn.com/id/4993606/

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