Just one more thing please

[Guest guest]

I am so sorry to be such a pest, but do ya'll mind sharing with me how you

get in the showers by yourself. I always help my husband get in the shower and

sit in his chair and let the shower pour on him and then I pull the electric

wheelchair up to bathtub and he sits down in it and then we back it up and then

he stands up at his superpole and I dry his back off and legs, of course he

tries to dry himself in the chair after shower as best he can, and then when he

stands by his superpole, I use my " hairdryer " and try to finish drying him

all the way which helps him some with the heat. If ya'll have any other

suggestions please let me know. And do ya'll dress yourself??? I always help

him

get his walking shorts on or his PJ's and his shirt on also and then he is set

to go. Please let me know what you do. Thanks ever so much. June

[Guest guest]

Thank you so much Sandy for your thoughts and caring and yes I am soooooo

tired but I don't dare stop and think about everything, anyway yes he has

therapy

here at home 3 times a week, a massage once a week (so do I) and his

therapist is great, she is going with us to Shands tomorrow to see his Dr. and

to tell

him what all she is doing and she is driving us thank goodness as I hate I-10

and I-75, and yes he has a seat in the tub and he also has what they call a

Superpole that is wonderful for support but I am really sorta tired for some

reason today, it is raining and when I get stressed I eat ice cream and etc and

I ate some a little bit ago and with all that sugar my energy has gone to

China - but he is sleeping now and I have to go let my daughters puppy out as

she

is out of town on a insurance case (work related) or I would be asleep tooooo.

We have someone who does the yard, but the house is at the mercy of the

world. It is getting to look like a museum (a messed up museum) with everything

on the piano, sofa's, tables so I am getting up right now and clean up, thank

you for caring sweetie, I think I would start crying if I stopped and thought

about all the things that are going on right now, but there is one good thing

for me is that I am dancing in a show with the other 5 women (we are called

the " Hot Flashes " next weekend. My daughter is the teacher in Apalachicola, Fl

and I use to teach her as I was a dance teacher for 16 yrs. so we are doing 5

numbers in her show. Jazz, tap (2 number) ballroom number, a cha cha number

and some of the ladies are clogging but not me, I would do it but I am just too

tired to dance that fast right now, I still have to learn the routine by

video as I live here and they all live in Apalachicola 70 miles away, but I

always

take Charlie with me or someone sits with him or my other daughter comes over

and checks on him, but he likes to be by himself and watch the ballgames, but

I know he is getting worse and I don't like to leave him alone. Love and

kisses to all of you June bug

[Guest guest]

My poor June,

You have got to be exhausted with all you do for your sweet hubby. Is there a

way you can hire a caregiver for a couple of days a week? My son is a caregiver

that helps out his clients from bathing, cooking, cleaning and yard work too.

Do you have a bath seat that he can sit on and rotate himself into the tub. I'm

sorry I cant remember the name of it.

I cant remember does Charlie go to a rehab facility? If so I would ask them

about different things for him to get dressed himself.

You really have to take care of yourself because it would be very hard on

Charlie and yourself if you had a break down.

Please dear friend look into about a care giver to help you.

If its a pride issue with Charlie, just let him know all of this is wearing you

out and you really need help.

Love ya, Sandy

Just one more thing please

I am so sorry to be such a pest, but do ya'll mind sharing with me how you

get in the showers by yourself. I always help my husband get in the shower

and

sit in his chair and let the shower pour on him and then I pull the electric

wheelchair up to bathtub and he sits down in it and then we back it up and

then

he stands up at his superpole and I dry his back off and legs, of course he

tries to dry himself in the chair after shower as best he can, and then when

he

stands by his superpole, I use my " hairdryer " and try to finish drying him

all the way which helps him some with the heat. If ya'll have any other

suggestions please let me know. And do ya'll dress yourself??? I always help

him

get his walking shorts on or his PJ's and his shirt on also and then he is set

to go. Please let me know what you do. Thanks ever so much. June

[Guest guest]

June bug you little whipper snapper. Jazz, Tap and the Cha cha, my goodness I

would have had a hard time keeping up with you even before this darn disease.You

call yourselves the hot flashes, well your making me have hot flashes just

thinking about it. I hope you have a great time with the girls. I am really glad

that you have something to look forward too. Let me know how it goes.

Love and kisses back at you, Sandy

Re: Just one more thing please

Thank you so much Sandy for your thoughts and caring and yes I am soooooo

tired but I don't dare stop and think about everything, anyway yes he has

therapy

here at home 3 times a week, a massage once a week (so do I) and his

therapist is great, she is going with us to Shands tomorrow to see his Dr. and

to tell

him what all she is doing and she is driving us thank goodness as I hate I-10

and I-75, and yes he has a seat in the tub and he also has what they call a

Superpole that is wonderful for support but I am really sorta tired for some

reason today, it is raining and when I get stressed I eat ice cream and etc

and

I ate some a little bit ago and with all that sugar my energy has gone to

China - but he is sleeping now and I have to go let my daughters puppy out as

she

is out of town on a insurance case (work related) or I would be asleep tooooo.

We have someone who does the yard, but the house is at the mercy of the

world. It is getting to look like a museum (a messed up museum) with

everything

on the piano, sofa's, tables so I am getting up right now and clean up, thank

you for caring sweetie, I think I would start crying if I stopped and thought

about all the things that are going on right now, but there is one good thing

for me is that I am dancing in a show with the other 5 women (we are called

the " Hot Flashes " next weekend. My daughter is the teacher in Apalachicola,

Fl

and I use to teach her as I was a dance teacher for 16 yrs. so we are doing 5

numbers in her show. Jazz, tap (2 number) ballroom number, a cha cha number

and some of the ladies are clogging but not me, I would do it but I am just

too

tired to dance that fast right now, I still have to learn the routine by

video as I live here and they all live in Apalachicola 70 miles away, but I

always

take Charlie with me or someone sits with him or my other daughter comes over

and checks on him, but he likes to be by himself and watch the ballgames, but

I know he is getting worse and I don't like to leave him alone. Love and

kisses to all of you June bug

[Guest guest]

HI JUNE,

MY NAME IS BONNIE, MY HUSBAND IS DON AND HE HAS ALS. DX. CHANGED FROM PLS.

EVEN WITH PLS WE WENT TO THE DEPT. OF SENIOR SERVICES AND ASKED ABOUT

PASSPORT. THEY HAVE QUAFY STANDARDS. FIRST OF WHICH IS AGE. IS YOUR

HUSBAND AGE 60 OR OLDER? IF SO CHECK INTO IT. THEY PAY FOR HOME HEALTH FOR

30 HOURS A WEEK. DON GETS A DAILY SHOWER, GOTTEN UP AND DRESSED AND THEN

WASHED UP AT NIGHT AND PUT TO BED. THE GIRL ALSO HELPS WITH SOME OF THE

HOUSE WORK. WE HAVE HAD SOME THAT WERE VERY BAD BUT THE ONE WE HAVE NOW IS

OUR ANGEL. THEY EVEN PROVIDE SUPPLIES WE NEED THAT MEDICARE OR MEDICAID

DOES NOT PAY FOR. THIS IS A FEDERAL PROGRAM SO CHECK IT OUT.

GOOD LUCK

LOVE

BONNIE

Re: Just one more thing please

> Thank you so much Sandy for your thoughts and caring and yes I am soooooo

> tired but I don't dare stop and think about everything, anyway yes he has

therapy

> here at home 3 times a week, a massage once a week (so do I) and his

> therapist is great, she is going with us to Shands tomorrow to see his Dr.

and to tell

> him what all she is doing and she is driving us thank goodness as I hate

I-10

> and I-75, and yes he has a seat in the tub and he also has what they call

a

> Superpole that is wonderful for support but I am really sorta tired for

some

> reason today, it is raining and when I get stressed I eat ice cream and

etc and

> I ate some a little bit ago and with all that sugar my energy has gone to

> China - but he is sleeping now and I have to go let my daughters puppy out

as she

> is out of town on a insurance case (work related) or I would be asleep

tooooo.

> We have someone who does the yard, but the house is at the mercy of the

> world. It is getting to look like a museum (a messed up museum) with

everything

> on the piano, sofa's, tables so I am getting up right now and clean up,

thank

> you for caring sweetie, I think I would start crying if I stopped and

thought

> about all the things that are going on right now, but there is one good

thing

> for me is that I am dancing in a show with the other 5 women (we are

called

> the " Hot Flashes " next weekend. My daughter is the teacher in

Apalachicola, Fl

> and I use to teach her as I was a dance teacher for 16 yrs. so we are

doing 5

> numbers in her show. Jazz, tap (2 number) ballroom number, a cha cha

number

> and some of the ladies are clogging but not me, I would do it but I am

just too

> tired to dance that fast right now, I still have to learn the routine by

> video as I live here and they all live in Apalachicola 70 miles away, but

I always

> take Charlie with me or someone sits with him or my other daughter comes

over

> and checks on him, but he likes to be by himself and watch the ballgames,

but

> I know he is getting worse and I don't like to leave him alone. Love and

> kisses to all of you June bug

>

>

>

[Guest guest]

Thanks for the e-mail and my husband is receiving therapy 3 times a week from

American Home Patient and yes we have Medicare and Blue Cross - Blue Shield

insurance from the State of Florida. Thanks, Jun e

[Guest guest]

Ms. Sandy, you are soooooooooo sweet - I am sitting at this computer thinking

" how in the world am I gonna be able to refresh and learn 5 routines by this

Friday and Sat PM for my daughter;s show, but since I use to teach her long

time agon in the 50's and 60's she thinks I am suppose to learn it over night,

but it is so hard to do when I am taking care of Charlie first and Primary.

When I thnk I can look at the video and practise it is almost 1:00 am in the

morning and then he wakes up with his legs jumping and etc. so there we go -

forget the practise which is what I do with no hard feelings cause I have

enjoyed

dancing for so long its ok and poor Charlie has always been so active I feel

so bad for him. We went to Shands Hospital Thursday and his neurologist was

really pleased with him, we carried his therapist with us and she showed the dr.

what all she was doing for him which was nice. We go back in December.

Anyway back to my dancing, it is good therapy for me to do the tap and Jazz and

etc and we are going to National Competition in July and Charlie will go with

us or I do not go. Please forgive me everyone, I really am not crazzy yet I

hope, I just have danced all my life (taught and etc) but the " Hot Flashes "

which is my group of women are so cute and funny and sweet. they have never had

dancing before and they are like the movie " Stepping Out " so we do have a lot

of fun. Love to you Sandy and I am so sorry about your Hubby. My husband was

in the hospital 1 1/2 yrs ago with a bleeding ulcer about the size of a half

dollar that they had to do surgery on and my Mom had had a stroke at the same

time so I was running up and down floors for both of them. God Bless. June

bug