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Re: lactic acid - Laurie

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Maggie

I have had at least three exercise tests at various times. I didn't have an

arterial line - they just kept poking me which I was still pedaling the

bike. I know my heart rate and B/P went up, but I can't remember how much.

It was being monitored the entire time. The first one I had, I was exhausted

before having it. It was 1.5 hour drive and I was walking. They couldn't

decide where I was suppose to be and kept sending me to a different place,

so I was beat before starting. The next one was a few years later and I had

my scooter. I have also had lactic acid draws done randomly without a

tourniquet.

Laurie

>

> Reply-To:

> Date: Fri, 23 Jan 2004 21:06:28 -0000

> To:

> Subject: lactic acid - Laurie

>

>

> Laurie,

> Did you have to redo an excercise test each time with an arterial

> line in order to test your lactic acid levels?

> If you did the exercise test - was your heart rate and B/P normal?

>

> Maggie

>

>

>

>> Maggie

>>

>> Your results sound a lot like some of them I had. My lactic acid

> never when

>> up with exercise, and my pyruvate wasn't elevated, but the ratio

> was

>> significant. My carnitine tests also have varied, yet I certainly

> do better

>> when on it. I started it long before the mito testing had even

> been thought

>> of, based on the fact that it was a metabolic problem.

>> /> .

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

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Laurie,

I don't recall if you've mentioned where you were eventually

diagnosed. Do you know of anyone else that has normal lactic acid

and pyruvate w/exercise?

I'm having a lot of difficulty referring to information learned on

this board - as doctors don't like to hear about information gleaned

off the internet. Maybe if I could find a doctor that has seen

these same results in their patients, my doctor would consider it a

credible source.

Thanks.

Maggie

> Maggie

>

> I have had at least three exercise tests at various times. I

didn't have an

> arterial line - they just kept poking me which I was still

pedaling the

> bike. I know my heart rate and B/P went up, but I can't remember

how much.

> It was being monitored the entire time. The first one I had, I was

exhausted

> before having it. It was 1.5 hour drive and I was walking. They

couldn't

> decide where I was suppose to be and kept sending me to a

different place,

> so I was beat before starting. The next one was a few years later

and I had

> my scooter. I have also had lactic acid draws done randomly

without a

> tourniquet.

>

> Laurie

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Maggie

My exercise testing was done at large teaching hospitals in Michigan and

ordered by my MDA doctor. I was diagnosed by Dr. Shoffner 9 years ago

following a fresh biopsy. Because (my sister) had some strange

findings on her biopsy in Cleveland, mine was repeated there. The findings

were slightly different, but I was much more symptomatic when I had the one

in Cleveland and it showed greater disfunction. The two locations also used

different tests at that time. I know they are trying to standardize them. My

MDA doctor, who has many mito patients, sends his patients to Cleveland

Clinic for a fresh biopsy and testing and then any DNA testing is sent from

there to Dr. Shoffner's lab.

laurie

>

> Reply-To:

> Date: Fri, 23 Jan 2004 22:14:12 -0000

> To:

> Subject: Re: lactic acid - Laurie

>

> Laurie,

> I don't recall if you've mentioned where you were eventually

> diagnosed. Do you know of anyone else that has normal lactic acid

> and pyruvate w/exercise?

>

> I'm having a lot of difficulty referring to information learned on

> this board - as doctors don't like to hear about information gleaned

> off the internet. Maybe if I could find a doctor that has seen

> these same results in their patients, my doctor would consider it a

> credible source.

> Thanks.

> Maggie

>

>

>

>> Maggie

>>

>> I have had at least three exercise tests at various times. I

> didn't have an

>> arterial line - they just kept poking me which I was still

> pedaling the

>> bike. I know my heart rate and B/P went up, but I can't remember

> how much.

>> It was being monitored the entire time. The first one I had, I was

> exhausted

>> before having it. It was 1.5 hour drive and I was walking. They

> couldn't

>> decide where I was suppose to be and kept sending me to a

> different place,

>> so I was beat before starting. The next one was a few years later

> and I had

>> my scooter. I have also had lactic acid draws done randomly

> without a

>> tourniquet.

>>

>> Laurie

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

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