PLS is generally a holding ground???

[Guest guest]

The suggestion that a PLS diagnosis is generally a " holding ground " for an

eventual ALS or HSP diagnosis is a doubtful one and can be misleading

especially to the newer members of this group. In some cases, incorrect

diagnoses have been made--both ways around, but for the majority (I think),

PLS is PLS is PLS. I've had it for at least 19 years and some others on this

list, for even longer than that. I'd hate for the newly diagnosed, who may

already be discouraged and frightened of the future, to worry needlessly.

None of us likes this disease but we come to acceptance and move on,

confident in our diagnoses and reassured that we can cope.

There are lots of reasons why people are misdiagnosed with PLS, not the

least of which are

1)physician incompetence and 2)lack of measurable diagnostic criteria.

Dolores (PLSer in CT)

Re: diagnosis confirmed

> PLS is generally a " holding ground " for several years, as the true disease

> often turns out to be ALS or HSP. That's the reason that a lot of people

are

> intially diagnosed with PLS.