Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Geo, Here we are on city water but I did live on a farm as a child for three years and as a child I was all over the place and this was in Fort Colorado. Then lived in Rapid City So Dakota and there was a pond that we played in. Never was sick as a child just normal things like measles, chicken pox. Got polio shot stuff like that. In 1995 I was checked out by an internist because of my voice problems and I was anemic and put on iron pills for a while.......thats all I can think of...Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Flora Did they check to see if you were low or high on Manganese did you see the article on Manganese i sent ? If you read it it shows ways you can get Manganese Poisoning .Through inhalation ,skin absorbtion , or digestion so if a well is found to have eccess Manganese or you were around places where they spray for bugs .You had a horse right ?also Manganese can be in soil Anemia is noted as people likely to be more susseptible to Manganese poisoning .If you read the article it states slowed movement , speech difficulty, clumsy movements , mood swings, one article was on the MMT they put in gasoline one was on Manganism one was on the link between Soy based Baby formula and ADHD .If you didnt get these articles E-Mail me seperately and ile send them to you as we cant send them to the group as Attachments GEO (ps )be there Thursday Re: Check for Iron & Manganese,Antimony > Geo, Here we are on city water but I did live on a farm as a child for three > years and as a child I was all over the place and this was in Fort > Colorado. Then lived in Rapid City So Dakota and there was a pond that we played > in. Never was sick as a child just normal things like measles, chicken pox. > Got polio shot stuff like that. In 1995 I was checked out by an internist > because of my voice problems and I was anemic and put on iron pills for a > while.......thats all I can think of...Flora > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Sorry no wells or farm here. Sandy Check for Iron & Manganese,Antimony Hey Group Im curious. How many in this PLS group have wells? And how many that do have ,have iron problems.Also how many have had their wells checked for purity ? How many are garden lovers? How many like working in the yard?or did like working in the yard?How many had hobbies that took you into the country?How many live in the country? How many live around farms?How many have had in their lifetime Anemia of some kind? Just Curious GEO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 How about working in a factory,near a factory , spraying for bugs and not using a resperator?Inhalation is suppose to be the most Dangerous form as it doesnt go through the digestive tract .goes directly into the brain through Blood Brain Barrier.this way the body cant break it down as is the normal case Manganese is an essential .but in eccess is alway bad and Inhalation is bad look up MMT ,it's used in the gas we use in our cars you inhale fumes from cars MMT is used to " make better combustion " Look up Baby Formula using Soy and the link to ADHD(Manganese) The links are there just need to get them nailed down GEO Check for Iron & Manganese,Antimony > > > Hey Group > Im curious. How many in this PLS group have wells? And how > many that do have ,have iron problems.Also how many have had their > wells checked for purity ? How many are garden lovers? How many like > working in the yard?or did like working in the yard?How many had > hobbies that took you into the country?How many live in the country? > How many live around farms?How many have had in their lifetime > Anemia of some kind? Just Curious GEO > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Geo, we had a well from 1965 to 1976. We had it checked periodically and it was always okay. And we were living in the country (more like the foothills) but not on a farm although we did raise some animals - chickens, pigs, a calf one, had a horse etc. Also I quite often had anemia during menstrating years (quite common for women I think). Susieq in Northern Calif > Hey Group > Im curious. How many in this PLS group have wells? And how > many that do have ,have iron problems.Also how many have had their > wells checked for purity ? How many are garden lovers? How many like > working in the yard?or did like working in the yard?How many had > hobbies that took you into the country?How many live in the country? > How many live around farms?How many have had in their lifetime > Anemia of some kind? Just Curious GEO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Geo, Yes I did live in the country for a while. We did have a well and no it was not checked. I love the garden and to work in them and still do. Yes when I lived in the city and young I did have anemia. Where we live now is in the country although it does not look like it as houses are close like the city and all of us had one well for all of the houses here. We did get one notice to all of us that the water was not just right and I have always said I bet this is what gave me Apparently Sporadic Spastic Paraphesis. I love water and drink lot of it. Now a question for you did you craw backward before you crawled forward when you were small? Jane Anne King Check for Iron & Manganese,Antimony > Hey Group > Im curious. How many in this PLS group have wells? And how > many that do have ,have iron problems.Also how many have had their > wells checked for purity ? How many are garden lovers? How many like > working in the yard?or did like working in the yard?How many had > hobbies that took you into the country?How many live in the country? > How many live around farms?How many have had in their lifetime > Anemia of some kind? Just Curious GEO > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Hi Jane No cant remember if i did?LOL have you had a blood test to check for Manganese ? GEO Check for Iron & Manganese,Antimony > > > > Hey Group > > Im curious. How many in this PLS group have wells? And how > > many that do have ,have iron problems.Also how many have had their > > wells checked for purity ? How many are garden lovers? How many like > > working in the yard?or did like working in the yard?How many had > > hobbies that took you into the country?How many live in the country? > > How many live around farms?How many have had in their lifetime > > Anemia of some kind? Just Curious GEO > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 When you say ok did you get a written report showing they tested for what ? If you look up Manganese poisoning you can see where can get it Inhalation is the worst goes directly to the brain .It ok ? through diet ,goes through the digestive tract ,I figure that we are or were more suseptible to it as there are so many of us and ive heard this is rare ? there seems to be more and more of us GEO Re: Check for Iron & Manganese,Antimony > Geo, we had a well from 1965 to 1976. We had it checked periodically > and it was always okay. And we were living in the country (more like > the foothills) but not on a farm although we did raise some animals - > chickens, pigs, a calf one, had a horse etc. Also I quite often had > anemia during menstrating years (quite common for women I think). > Susieq in Northern Calif > > > > Hey Group > > Im curious. How many in this PLS group have wells? And > how > > many that do have ,have iron problems.Also how many have had their > > wells checked for purity ? How many are garden lovers? How many > like > > working in the yard?or did like working in the yard?How many had > > hobbies that took you into the country?How many live in the country? > > How many live around farms?How many have had in their lifetime > > Anemia of some kind? Just Curious GEO > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Geo, No I have not. But when I go back for check up I will. Jane Anne Check for Iron & Manganese,Antimony > > > > > > > Hey Group > > > Im curious. How many in this PLS group have wells? And how > > > many that do have ,have iron problems.Also how many have had their > > > wells checked for purity ? How many are garden lovers? How many like > > > working in the yard?or did like working in the yard?How many had > > > hobbies that took you into the country?How many live in the country? > > > How many live around farms?How many have had in their lifetime > > > Anemia of some kind? Just Curious GEO > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Wow, that's a long list of inquiries. What is the association you are trying to make? Dolores Check for Iron & Manganese,Antimony > Hey Group > Im curious. How many in this PLS group have wells? And how > many that do have ,have iron problems.Also how many have had their > wells checked for purity ? How many are garden lovers? How many like > working in the yard?or did like working in the yard?How many had > hobbies that took you into the country?How many live in the country? > How many live around farms?How many have had in their lifetime > Anemia of some kind? Just Curious GEO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Good for you did you read about the symptoms? GEO Check for Iron & Manganese,Antimony > > > > > > > > > > Hey Group > > > > Im curious. How many in this PLS group have wells? And how > > > > many that do have ,have iron problems.Also how many have had their > > > > wells checked for purity ? How many are garden lovers? How many like > > > > working in the yard?or did like working in the yard?How many had > > > > hobbies that took you into the country?How many live in the country? > > > > How many live around farms?How many have had in their lifetime > > > > Anemia of some kind? Just Curious GEO > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Gee, I lived in a small town in IN. I grew up without indoor plumbing. I was in Boy Scouts for 5 years and did some camping. Did a lot of fishing and camping in the small lake for which my home town was named. It is the farthest southern lake in IN made by the glaciers. I went to elementary school and then to a high school 15 miles away. That means I rode a school bus. I also drove and rode in several cars without seat belts and did my share of riding in the back of trucks and wagons, the latter usually during a hay ride. I played basketball and baseball in high school. During that time I was exposed to chemicals during Chemistry Class. The same thing happened in college. I have also gone through a divorce, which caused me a lot of grief for several years. This marriage produced children, which means I had sex. I wonder if any of these things could be considered as a cause? Kids give you insanity, remember. They can also be a great source of stress. I believe the house I grew up in was once painted with lead based paint. Good thing that paint was gone before we moved in. Perhaps the house would have lasted longer if it had been repainted. I was bitten annually by at least one thousand mosquitoes. Maybe one of them carried something that caused this. One did carry the viral encephalitis I got in 1972. Maybe if some of us had that, it could be considered as a factor. Has been in my case. I also worked for a Gas company during three summers of college and was exposed to a lot of sun and other dangerous chemicals and rays. I got blown out of a hole by a stupid high school student who thought he could make me finish digging out the hole once we found the gas leak. He lite a cigaratte while I was telling him to stop. BOOM! I rolled out of the hole unharmed, but was ready to take a shovel to him when other workers stopped me. Wonder if any of you have experienced that? The water I drank growing up was loaded with minerals, especially limestone. It came from the Teays river, a large (larger than the Mississipi) underground river that is over a mile wide and runs for hundreds of miles opposite the flow of most rivers. Maybe several of us get our water from that source and that may cause some of our problems. Let's get back to the mosquitoes. I think they have no purpose on Earth except to spread diseases. Look at my encephalitis, the West Nile virus and malaria, among others. Maybe they are behind this. Anyone else ever been bitten by a mosquito? May be something there. Bees are nasty, too and so are wasps. Anyone else been stung by either? I have. Coincidence? I don't know. Just asking. AND JUST JOKING! It's nice to spend time looking for a cause, but let's find a cure and from there we can look at the etiology of the sucky disease. Please take this in the light-hearted manner in which it was written, Mike Gray geoofpeo wrote: > Hey Group > Im curious. How many in this PLS group have wells? And how >many that do have ,have iron problems.Also how many have had their >wells checked for purity ? How many are garden lovers? How many like >working in the yard?or did like working in the yard?How many had >hobbies that took you into the country?How many live in the country? >How many live around farms?How many have had in their lifetime >Anemia of some kind? Just Curious GEO > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Hi Delores Manganese poisoning go to google and write in Manganese or Manganism .The association between the manganese and PLS is so striking that when someone tells you we have a rare disease and you keep seeing more people having it . you have to wander the symptoms are exactly the same .Also if you wander why your child gets in trouble at school for not paying attention in class maybe ADHD .Look up soy milk and ADHD Manganese again shows up Look up MMT that they put in our gasoline again Manganese shows up.Manganese taken in eccess is not good at all inhalation seems to be the worst instead of going through the digestive process it goes directly to the brain . GEO Check for Iron & Manganese,Antimony > > > > Hey Group > > Im curious. How many in this PLS group have wells? And how > > many that do have ,have iron problems.Also how many have had their > > wells checked for purity ? How many are garden lovers? How many like > > working in the yard?or did like working in the yard?How many had > > hobbies that took you into the country?How many live in the country? > > How many live around farms?How many have had in their lifetime > > Anemia of some kind? Just Curious GEO > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Yes, we got a written report but don't still have any of them. We would look at the reports to see if anything was out of the acceptable range. From what I read from other PlS cites there are about 500 reported cases of PLS in the US - that seems pretty rare. I never heard of it before and anyone I mention it to has never heard of it. Susieq > > > Hey Group > > > Im curious. How many in this PLS group have wells? And > > how > > > many that do have ,have iron problems.Also how many have had their > > > wells checked for purity ? How many are garden lovers? How many > > like > > > working in the yard?or did like working in the yard?How many had > > > hobbies that took you into the country?How many live in the country? > > > How many live around farms?How many have had in their lifetime > > > Anemia of some kind? Just Curious GEO > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 I just remember something.........we had the well water checked for many, many things prior to our approval for foster parenting. That was a few years ago, but the water seems the same now as it was then. I would assume they checked the manganese then. Laurel Re: Check for Iron & Manganese,Antimony Geo, we had a well from 1965 to 1976. We had it checked periodically and it was always okay. And we were living in the country (more like the foothills) but not on a farm although we did raise some animals - chickens, pigs, a calf one, had a horse etc. Also I quite often had anemia during menstrating years (quite common for women I think). Susieq in Northern Calif > Hey Group > Im curious. How many in this PLS group have wells? And how > many that do have ,have iron problems.Also how many have had their > wells checked for purity ? How many are garden lovers? How many like > working in the yard?or did like working in the yard?How many had > hobbies that took you into the country?How many live in the country? > How many live around farms?How many have had in their lifetime > Anemia of some kind? Just Curious GEO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Hi Geo, I'm glad you are doing these surveys, I too would like to find out what causes PLS, while we are waiting for the cure. I think Yolanda is right that there is a cure right around the corner. I was reading the paper yesterday, and there was a very intersting article on the front page regarding stem cell research here in New Jersey at UMDNJ. In answer to your questions I don't have a well. For quite a few years we used our local resevoir, which eventually found out was contaminated with chlomines, which were by-products of chlorine build-up. We have been using spring water for the last 15 years. I love being outdoors working in the yard/garden,can't do much anymore. I don't live on a farm, just the suburbs. We do have mountains and fields across the road. We also see alot of air traffic flying in and out of 3 major airports (1 in N.J. & 2 for New York). I have noticed quite bit of soot like substance that gets on patio furniture and porch that we didn't get years ago. I think it comes from the jet fuel from the planes that are taking off and landing about 35 miles or so from here. That can't be so good either, I don't know what chemicals jet fuel or diesel fuel have in them. Yes, I have had anemia quite a few times in my life. Keep up the good work, you never know what you may stumble upon in your research. Take care.....Jeannie/N.J. Check for Iron & Manganese,Antimony Hey Group Im curious. How many in this PLS group have wells? And how many that do have ,have iron problems.Also how many have had their wells checked for purity ? How many are garden lovers? How many like working in the yard?or did like working in the yard?How many had hobbies that took you into the country?How many live in the country? How many live around farms?How many have had in their lifetime Anemia of some kind? Just Curious GEO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Thanks Jeannie Her something interesting .Noise Abaitment at Airports in 2 Cities ive been to the Airports have gone in and bought out whole subdivisions Indianapolis and St. Louis now they say the reason is Noise Abaitment ? but one has to wander if thats all if they use MMT in gasoline ?i wander about Jet Fuel ?ive heard the worst time for a jet as far as pollution is take offs and landings .What height are they at when going over are they in an Approach in low alltitude ? Ile write you when i get back from Fla. GEO Check for Iron & Manganese,Antimony > > > Hey Group > Im curious. How many in this PLS group have wells? And how > many that do have ,have iron problems.Also how many have had their > wells checked for purity ? How many are garden lovers? How many like > working in the yard?or did like working in the yard?How many had > hobbies that took you into the country?How many live in the country? > How many live around farms?How many have had in their lifetime > Anemia of some kind? Just Curious GEO > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Hey Geo, I know the planes are lowering to land, They aren't that loud as far as noise goes, but I don't know what level they are at exactly, I can see the windows on the plane, so it's not 35'000ft, maybe 15,000 ft. Have a good trip to Florida & see if you can catch me a real flamingo while you are there.LOL Jeannie/N.J. Check for Iron & Manganese,Antimony > > > Hey Group > Im curious. How many in this PLS group have wells? And how > many that do have ,have iron problems.Also how many have had their > wells checked for purity ? How many are garden lovers? How many like > working in the yard?or did like working in the yard?How many had > hobbies that took you into the country?How many live in the country? > How many live around farms?How many have had in their lifetime > Anemia of some kind? Just Curious GEO > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 HI GEO, IT'S BONNIE FROM OHIO. I DON'T WRITE TO OFTEN ANYMORE BUT I DID WANT TO ADD MY TWO CENTS IN ON YOUR SURVEY. DON OF COURSE WAS FIRST DX WITH PLS TO LATER BE CHANGED TO ALS. THIS IS A SUBJECT THAT HAS BEEN DISCUSSED BEFORE. NOT WELL WATER BUT OTHER POSSABLE CAUSES. DON WAS RAISED ON AN ISLAND IN LAKE ERIE UNTIL HIS 30 'S. WHEN HE CAME TO THE STATES HE WORKED ON THE TURNPIKE WITH ALL THE GASS AND DIESEL FUMES JUST ABOUT 1 MILE AWAY FOR OHIO LIQUID DISPOSAL PLANT WHERE THEY DUMPED EVERYTHING FROM ALL OVER THE STATES. INCLUDING THE TRASH FROM THREE MILE ISLAND. FROM THER HE WORKED IN A BATTERY FACTORY AND WAS EXPOSED TO LED. ALTHOUGHT THEY WERE ALWAYS CHECKING THEM. FROM THERE HE WORKED IN A BAKERY AND THEN A GOLF COURSE. CHEMICALS AND ALL AS A GROUNDS KEEPER. FROM THERE HE WORKED UNTILL HE COULDN'T ANYMORE. THERE THEY REBUILT PLASTIC INJECTION MACHINES. SO THE OLD MACHINES CAME IN AND THEY WERE WASHED DOWN WITH CHEMICALS. THE GUYS THAT DID THAT WORK HAD RESPRATORY MASKS. DON WAS A JANITOR AND THEY DIDN'T PROVIDE HIM WITH ANY THING FOR PROTECTION. THEY WOULD START WASHING WITHOUT WARNING AND HE WOULD RUN FOR THE FRONT OF THE FACTORY TO GET AWAY FROM IT. SOME PEOPLE THOUGHT THAT THEIR PLS STARTED FROM A TRAMA. WELL DON HAD THAT TOO. WHILE WORKING ON THE TURNPIKE HE HAD REPAIRED A TRUCK TIRE. WHEN HE WAS MOUNTING IT ON THE TRUCK IT EXPLODED AND THE PRESSURE THREW HIM 30 FEET AND THE SNAP RING THAT WAS ESTAMATED AT 90MPH HIT HIM. IF IT HAD NOT BEEN FOR IT BEING A VERY COLD WINTER NIGHT IT WOULD HAVE KILLED HIM. HE HAD ENOUGH LAYERS OF CLOTHING THAT IT CUT THROUGH ALL 5 LAYERS OF WARM CLOTHING AND JUST SKINNED HIS BELLY. OTHER WISE IT WOULD HAVE CUT HIM IN TWO. IT CUT HIS LEGS TO THE BONE AND BROKE HIS FOOT UP PRETTY GOOD. (IT DID DO SOME INTERNAL INJURIES) NOW IF WE COULD TRACK THIS DOWN AND PROVE WHICH EXPOSURE OR ACCIDENT CAUSED HIS ALS WE COULD HAVE EVERYTHING WE NEEDED EXCEPT FOR HEALTH. GEO, I WISH YOU LUCK IN YOUR HUNT. THERE ARE SO MANY POSSABILITIES THAT WE HAVE LOOKED AT OVER THE YEARS AND NO ONE HAS MADE ANY CONNECTION. I DO READ WHAT YOU POST. WHAT WE NEED TO DO IS PUSH FOR STEM CELL RESEARCH. I VOTED FOR THIS PRESIDENT BUT I'LL BE DARN IF I WILL GIVE HIM MY SUPPORT NOW AND I HAVE TOLD THE SURVEYERS ABOUT IT TOO. NOT TO MENTION CONGRESSMEN. SORRY IF THAT IS TO POLITICAL FOR THE GROUP BUT IT IS AN HONEST STATEMENT. LOVE BONNIE I HAVE MY ROPE TIED AND HANGING ON. Quote Link to comment Share on other sites More sharing options...
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