[Fwd: Re: Welcome to nosurgery4clubfoot]

[Guest guest]

--- Re: Welcome to nosurgery4clubfoot

Date: Fri, 2 Jan 2004 14:12:50 -0500

To: nosurgery4clubfoot Moderator

<nosurgery4clubfoot-owner >

References: <10730701.w86 >

I'm a pregnant mom who will be giving birth to a wonderful, loved baby girl

who will most likely have club feet. I'm looking for support and

information from others who have been there and have tips, hints and such.

Thanks for approving my involvement.

Chris

[Guest guest]

Welcome Ed. It is my understanding that if you child has no other

disabilities or syndromes that can be connected to CF than it is idiopathic. It

doesn't

really matter because for the most part Ponseti method treatment is the same

unless there is something else that may be congenital that would need to be

corrected (missing a bone, ligaments etc) where surgery is required anyway.

I don't know of any doctors in the ines that practices Ponseti, but

maybe someone else can answer that. I would urge you to try to find a Ponseti

trained dr. if at all possible.

Good Luck

Joanne and Alaya 8-22-01

[Guest guest]

Hi Ed,

I think clubfeet can be both congenital and idiopathic

at the same time:

Congenital means: " present at birth " .

Idiopathic means: " arising from an unkown cause " .

I think idiopathic also means that there are no other

deformities/symptoms present.

Sorry but I don't know of any doctor in the

Philippines...

All the best,

--- McLaughlin wrote: >

Hello,

>

> I am Ed Cayetano from the Philippines. I have a 3

> week old son born with

> bilateral clubfeet. The orthopaedic surgeon

> referred to us says that my son

> has idiopathic clubfeet and not congenital clubfeet.

> My son Marco was

> immediately put on casts on his 2nd day and we've

> had 3 cast changes

> already.

>

> >From what I have researched on the internet so far

> (still have a lot to go),

> I think the Ponseti method is the way to go - but it

> seems our doctor is

> unaware of this method.

>

> I would like to post questions to the group, or can

> I do it here now?

>

> Some immediate questions are:

>

> 1. How does one know for sure if its not congenital

> clubfeet but rather

> idiopathic?

> 2. Do you know / recommend any doctors here in the

> Philippines who

> practices the Ponseti method?

>

> Thanks.

>

> Ed

>

>

>

>

>

>

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