Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi Liz, Never have bothered to work out how time differences are accounted for by my mail program but your post shows the time as being 3.02 PM. Hopefully it was translated to Australian Eastern Standard Time meaning you probably sent it late Monday night your time because it is very important to take LDN in the late evening or very early morning to get the right effect due to how the body works. Hopefully I am unnecessarily concerned......... I seem to have levelled off showing a bit of improvement, but the important thing is that a very high percentage of people on it find that their (MS) progression stops. Not enough people are taking it yet for PLS so we can't say what effect it will have in general but I have high hopes. The other good thing is that there are virtually no side effects so people should be able to give it a try with no concerns. Liz Felizzola wrote: > Hello All, > > Good news, my father received the LDN in the mail today. He just took > his first pill about one hour ago. I will continue to share his > experience with LDN. > > I'd really like to hear how people are still doing on LDN or if there > are any side effects we should expect. > -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi Liz, Hope your dad improves on LDN. Be sure to keep us informed as several are interested. Thanks for sharing. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 TOTAL CONFUSION WHEN I WENT TO MY NEURO LAST WEEK I ASKED FOR LDN HE GAVE ME RX FOR 50MG WHICH I AM TO CUT IN HALF ON LDN WEBSITE IT SAYS 3-4.5MG MY DR DOES NOT KNOW ANSWER DOES LDN COME IN DIFFERENT STRENGTHS HELP!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 > DOES ANYONE WITH PLS/ALS WHO IS TAKING LDN HAVE ANY NEGATIVE AFFECTS' > I HAVE TOLD MY NEURO TO GIVE ME LDN, I DO NOT WANT TO MAKE AN ERROR > THANKS, ANNIE Annie~ I think all of us have had minimal side effects, if you want to call them that, when just beginning LDN. Things like stiffness, dizziness, nausea, drowsiness, etc. Just jump in and try it. What do you have to lose? That's what I've done and am already seeing some slight positives! Sally Quote Link to comment Share on other sites More sharing options...
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