Shydrager-MSA-Reversal- Acupuncture,etc (Sorry if this is posted twice)

[Guest guest]

Shyrager-MSA-Reversal 18 months-Alternative Medicine

March, 2001

FIRST I WOULD LIKE TO MAKE CLEAR A FEW THINGS: THIS IS OUR PERSONAL EXPERIENCE. I AM NOT PROFITING IN ANY WAY BY SHARING THIS INFORMATION, AND LASTLY, I AM NOT RECOMMENDING THAT ANYONE GO OFF THEIR MEDICATIONS OR TAKE ANY OTHER ACTION.

I want to tell you about my husband Al Soeffker, 74. diagnosed with Multiple System Atrophy-aka Shydrager Syndrome in 1996 at the VA Medical Center in Minneapolis, Minnesota. Symptoms early 1990s. Second opinion the same, prognosis 7-11 years terminal . I contacted Nee at NIH, Mayo Clinics Research Dept and numerous sources, prognosis the same. At the time of diagnosis his Neurologist put him on Levadopa-Carbidopa and Fludrocortisone. After three weeks he started having severe hallucinations, I complained about this but was told, “it will help”. Not true in his case. He has a very low tolerance to any form of Western prescriptions or over the counter Medications. I believe this issue should be addressed before prescriptions are written, (I am so brilliant, after the fact ). Although it has been 17 months since I took him off these drugs, the hallucinations continue, they are a huge problem and severely affect our daily lives. In Sept, 1999 it was obvious that his system was rapidly deteriorating. Incontinence, both bladder and bowel, slurred speech, could not rise from chair nor get on or off bed, rigidity, could not walk unassisted, low blood pressure drooling, iris atrophy,- etc. (saw gold on edges of objects- I later attributed this to the fact that in a very short time he had cataracts in both eyes which needed to be removed as soon as possible. After surgery in June and August of 2000- this was gone). . I was DESPERATE and I decided to look for help from Alternative Medicine. I made a lot of calls and then my dear friend, Jeanine, told me of an amazing woman who has treated her daughter for severe Myopia. Lora states that,” my vision is greatly improved, stabilized and I feel confident that it will continue to improve.” (info upon request-Lora) She is Colet, Lahoz. BSN., R.N., MS., (Nursing Sciences), L.ac., Owner of the eastwest clinics in White Bear Lake, Minnesota. web site is www.eastwest-mn.com email is eastwest@.... Because of her Western Medical Education and her Eastern Medicine Training she told me that she uses a combination of both when treating her patients. On Sept.13,1999, when I told her he had Multiple System Atrophy, AKA. Shydrager Syndrome, she said’ ’I CAN HELP’ She took his medical history. First treatment we had great difficulty getting Al on the Acupuncture table. The plan of treatment was two Acupuncture treatments weekly, she used needles and Electro Stimulation. She used 60-90 needles, each treatment. ( I counted them from time to time.) Cleanses and Supplements Colet said that , “if one part of the body is sick the whole body is sick”, thus she treats the whole body. After that first treatment we helped him sit on an armless chair and while we were discussing his future treatments he rose from the chair unaided. To say that I was shocked is putting it mildly, and I felt such hope for the first time since 1996.

The reversal of his symptoms was rapid, in my opinion, the incontinence was reversed in four treatments, ( it took four more treatments before he was totally at ease) After six treatments he rose from a kneeling position on our pontoon boat by holding the handrail. The drooling she had under control in two treatments. About every three months or so when I notice a bit of drool, she treats it and then once again it is under control.

I asked Colet to send me info as to how she dealt with the drooling problem.

She responded - Marge, for the drooling problems that Al exhibited as part of the MSA Syndrome, I used

the following points in pairs-L14, GB20 and St.7. In the beginning I connected L14 and GB20 with

electro Acupuncture Stimulation. The frequency set at intermittent and the intensity between 2-4. To find an Acupuncturist I would suggest that you find a Four Year Acupuncture College, most major cities have one, and ask them for a Graduate Referral. Again, I feel very strongly that the method of treating the whole body as Colet does is the reason for Al’s success, plus Supplements and Cleanses. His case history as written by her will soon be on her Web site: www.eastwest-mn.com When I asked Colet about his low blood pressure she said ”I can lower high blood pressure, I can surely raise low blood pressure. She raised it to 117-78, dropping by 6 points after rising from a sitting position. It has remained stable for 17 months except for an interesting episode.. He continued taking treatments until Jan. of 2000. On Jan. 10 we flew to Florida, I soon discovered that his blood pressure was low, I did the salt tablet routine again to no avail. I decided to go back to Minnesota for four days in Feb., twin Grandsons Hockey Tournament,( good excuse) and I wanted to have Colet fix the blood pressure problem. He had four treatments, his blood pressure returned to 117-78 and has remained so to this day. (did not affect subsequent flights) Does altitude affect blood pressure, I am sure it does in some cases. Incidentally when Colet was taking his medical history, I told her he was wearing hearing aids and not happy with the results produced. and refused to wear them any longer.(two sets at $3000 per set) she said “I will work on that.” He hears better now without the hearing aids than he ever did with them. He converses well, other symptoms reversed. Colet believes that Al had a Systemic Candida infection for many years that was undiagnosed and therefore not treated. Colet believes that this Candida weakened his system and predisposed him to developing MSA. Colet believes a major part of his recovery was due to him using herbal Anti Fungals to remove infection. I agree. Some things take longer for Al to do, but, he is 74 and he is ALIVE after going through all of this. I thank God and Colet for this.. These past 17 months that he has been off the Meds he has become aware of the fact that he has hallucinations and yet he cannot comprehend that they are only that when he is hallucinating.. Sorry if this sounds strange. This troubles him deeply. When we are in Minnesota, from April thru November, Al continues to take Acupuncture Treatments and he is on Cleanses and Supplements. During the earlier part of Al’s treatments , Colet suggested that we could cut back on the number of treatments, twice a week, I chose to continue in this manner due to the fact that I was concerned that a reversal of his great progress might occur. In July of 2001 we decided to have just one treatment per week. During the winter months Al and I workout at a fitness center, one hour a day, six days a week. Al rides the bike there for 15 minutes, tread mill 15 minutes and the last 30 minutes he uses weights. Once the muscles are loosened it is important to exercise. In October of 2000, I was at the VA Med Center for a routine Cardiology appointment for Al, I spoke with Theresa Atkinson in Neurology, re: Al’s case, I wanted someone to know about this reversal so that other patients with MSA might benefit from our experience. She wanted us to see Dr. Ashe, he had a conference to attend, she also wanted Dr. Khalaf Bushara to see us. However he was busy all day . I thanked her and left. Shortly after that we were summoned to Dr. Busharas office. He reconfirmed that Al has MSA, listened to my story and DID NOT PASS OUT AT THE MENTION OF ALTERNATIVE MEDICINE. (Neither had Norheim, R.N., M.S., -Nurse Practitioner at the VA Med Center, when I was complaining about Al‘s hallucinations.) I thank Dr. Jack Drucker, Chief of Staff for having these individuals on his staff who have “an open mind.” I ended my conversation, with Dr. Bushara, by telling him of my intention to contact NIH again. He said that he had come to Mpls from the National Institute of Neurological Disease and Stroke in Bethseda, Md. He then asked, could we, would we travel? I said, yes.

He then sent correspondence to Dr. Mark Hallet at NINDS asking that he see Al. However I feel strongly that Colet Lahoz is the person who should be heard, I believe that only with her protocols should anyone try this method of treatment. Colet has had success treating patients with nerve diseases. She has documented cases of Multiple Sclerosis reversals, also reversal of Fibromyalgia. THIS IS NOT A CURE, just a reversal of his symptoms, his recovery is amazing.

This has been successful for us and I wanted to share this with other MSA patients. Al & Marge Soeffker

Winter -Westbay Point & Moorings, 6500 Flotilla Drive, #141, Holmes Beach FL 34217.-1464 PH/FAX

Summer -14323-74th St. NW. ndale, MN. 55302-3460 PH/FAX

E-mail - msoeffker@...