Re: Are any of ya'll on Oxygen?

[Guest guest]

Hi June

I am on oxygen at night although it was ordered for 24/7. The

contraption on my face made me too nervous during the day so I wouldn't

use it unless I had an attack which they prescribed it for. The attack

was on my diaphram which would stop working and I couldn't breethe at

all... it would last several seconds while I relaxed and it

started to work again.. It was very scary and why I didn't have panic

attacks....God knows.The nurse I have twice a week said patients usually

call 911...

When it started was when I started progressing with more spasms in my

legs and not able to sleep, I was on 20 mgs of baclofen a day....10 am &

10pm and the neuro upped it to 30mgs a day....10mgs 3 times a day...by

the 3rd day I was like a board and could barely stand up and couldn't

walk with my walker and the diaphram in my lungs was spazzing and

wouldn't work for several seconds as I said...I was put on valium and

taken off baclofen....I don't remember how long a period went by before

they started me on neurontin but it took weeks for me to become " normal "

again. It was a nightmare I don't want to go through again. The spasms

are gone and I can transport from chair to w/c and to bed without the

severe weakness I had thru that med change....I use oxygen at night yet

because it gives me c-somthing or other the Dr said...was never tested

like Charlie was so don't know my count. I'm sure this isn't the same

reason for oxygen but I'm sure there is a benefit for him and keep us

posted.

Many blessings

Jeanette

[Guest guest]

Hi June,

I am sorry to hear your husband Charlie is having troubles.

I really dont have troubles breathing except at times when I push myself way to

hard.

I would like to welcome you to a great sight to get ansewers and to make the

best of the best friends around. Hope we can help you. Sandy

Are any of ya'll on Oxygen?

Hi this is June and my husband Charlie Gray has PLS, but they just brought

out oxygen for him cause the therapist that comes 3 times a day to work out

with

him with the walker and etc. wanted him to be on oxygen at night ONLY cause

his oxygen drops to 83 or 84 during the night but during the day it is around

93 or 95. Would ya'll please respond what you think. Thanks, June

[Guest guest]

Did your husband have a sleep study done to see if he has sleep apnea?

Maybe that's why his saturation level is dropping when he sleeps. Might be

worth asking his Dr about if he's not had one done.

Are any of ya'll on Oxygen?

> Hi this is June and my husband Charlie Gray has PLS, but they just brought

> out oxygen for him cause the therapist that comes 3 times a day to work

out with

> him with the walker and etc. wanted him to be on oxygen at night ONLY

cause

> his oxygen drops to 83 or 84 during the night but during the day it is

around

> 93 or 95. Would ya'll please respond what you think. Thanks, June

>

>

>

[Guest guest]

Thank you Jeannette for your e-mail. I will show it to Charlie. He did not

use the oxygen last night - why I don't know unless he wanted to smoke one

last time during the night....ha ha cause he can't smoke during night with

oxygen

thank goodness. But he will try it I know sooner or later. He has been on

Baclofen and he also takes valium and vicodan for his spasms and legs. He had

to have 2 root canals done Thurs. so Friday he was quite miserable from having

to sit so long. Thanks, June

[Guest guest]

It can be done. I had a aunt who would have cigerette in one hand and the oxygen

mask in the other.

Re: Are any of ya'll on Oxygen?

Thank you Jeannette for your e-mail. I will show it to Charlie. He did not

use the oxygen last night - why I don't know unless he wanted to smoke one

last time during the night....ha ha cause he can't smoke during night with

oxygen

thank goodness. But he will try it I know sooner or later. He has been on

Baclofen and he also takes valium and vicodan for his spasms and legs. He had

to have 2 root canals done Thurs. so Friday he was quite miserable from having

to sit so long. Thanks, June