RE: Re: adjusting to life without the bar?

[Guest guest]

Pam,

That's great that Connor will nap without them. That's a start, I think.

My daughter was having such a hard time going for naps, and Dr. Herzenberg

had said she probably didn't need to wear them for naptime anymore, so I

told her she didn't have to wear them at naptime, but she was still unable

to settle down even without them on. Needless to say, she hasn't been

napping lately...It's been a tough adjustment.

I'm hoping she'll be done with the shoes soon...It seems like she had a mild

case. Also, she's on the last size shoes (8) and she never tolerated her

toes sticking out. Lately she's been complaining about the shoes and her

sleeping hasn't been that great. Usually an indicator that they're

uncomfortable...

I'm thinking that going to sleep won't be a problem because she's so

exhausted she just crashes. I'm more concerned about her waking in the night

and wanting them back on.

Unfortunately, we're going to find out tonight because just before bath time

she whacked her clubfoot on a metal closet door and couldn't put any weight

on it. It was a little swollen, and she was so distraught that we didn't put

her shoes on. The doctor said we could wait and see what it's like in the

morning....

Has anyone else's child injured their clubfoot and have to have it checked

out? did you go to the er, the pediatrician or the pediatric orthopedist?

I vaguely remember someone talking about a child who wouldn't walk for

several days, but I can't remember how it was resolved...

Thanks in advance for any insight you can give!

Joanne W. mom to Zoe (3-25-01, right clubfoot)

www.geocities.com/joannewalton2003/clubfootstory.html

Message: 5

Date: Fri, 30 Jan 2004 03:47:57 -0000

Subject: Re: adjusting to life without the bar?

Joanne,

I never thought I would say this, but I think that may be a minor

problem for also. He is ready to have his shoes on at bedtime

(if he is ready to go to bed:). He does nap in the afternoon without

them though. The thought of those feet without those shoes scares me!

How much longer do you think Zoe will be in them?

Pam and (8-12-01)

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[Guest guest]

,

Thanks so much for responding! What a wonderful story about the " bars " .

Lately Zoe's been complaining about wearing the shoes. then I made the

mistake of saying she's " almost done " , so she's been complaining more...I'm

sure once I tell her she can't wear them anymore, she'll want to! I'm going

to make sure that the doctor tells her directly that she doesn't have to

wear them anymore.

We're already planning a " Bye Bye Night Night Shoe Party " complete with a

night night shoe cake to celebrate this momentous occasion!

It's amazing how particular they get about routine things.

Warm regards,

Joanne

Message: 6

Date: Fri, 30 Jan 2004 04:12:07 -0000

Subject: Re: adjusting to life without the bar?

Hi, Joanne!

I can't help, exactly, because is still in the FAB. She's 3

years and 7 months, and will be wearing it till age 4. As it sounds

it must be the case with Zoe, she is one who tolerates it well. We

never had a problem adjusting at the beginning, no blisters, no

sleepless nights, and continuing with it has been easy; it's just a

part of her night routine. She has, from time to time, asked for it,

or brought it to me, and helped me put it on, especially when she was

very tired. She's particular about how it's done.. A pet peeve of

hers is if I miss an eyehole.. she makes me redo it. =-)

I do have to say, though, that recently.. within the last month or

so.. I'm getting more resistance from her than ever before. (Of

course I get resistance about other things that are non-negotiable

too.. such as putting her in her car seat, or not running away from

me in parking lots!) It's still only occasional, but, as she's gotten

older and more articulate, she is starting to argue with me. " I'm too

old for bars! No, not my bars! " (for some reason that's her name for

it.) And, in the morning, " Can I take my bars off now? " She

sometimes can undo the straps and laces herself, or gets her sister

to do it. But she's never taken it off when she wasn't supposed to,

and still has never missed a night.

So.. maybe at one point there would've been an adjustment for us,

but I don't think there will be now. We are definitely sticking to

continuing to age 4 anyway. Probably the one facing the biggest

adjustment will be ME! (Sometimes I've thought about adding up how

many times I've tied those shoes.. no doubt a head-spinning number.

=)

Sorry to go on so long.. guess it's something that's been on my mind

as well!

Best wishes,

and

6/29/00, left cf

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[Guest guest]

Theresa,

Thanks so much for sharing!! Very cute story.... I'm starting to feel better

about " the end " . I can't remember...did Jakob have a " mild " , " moderate " , or

" severe " case?

Perhaps that could be a poll question... Did your doctor rate the child's

foot as mild, moderate, severe, other, no rating. We did not receive a

rating, but based on what I've learned, it seems to be mild...

Zoe still couldn't stand on her foot this morning. It was swollen and hot to

the touch. We did end up going to the doctor today. (Can you believe they

had Sunday hours?!) He reassured us that it was just a " contusion " and that

she should be walking by tomorrow or Tuesday at the latest...

she does seem a lot better, but she's still afraid to try and stand on it.

Since there's still some swelling and tenderness, we probably won't put the

shoes on again tonight, but I'm concerned that after 2 nights of freedom

we're going to get a battle to get the shoes back on. I keep reiterating

that when her foot is better, she'll need to put the shoes back on...

Thanks again,

Joanne W.

Message: 10

Date: Sat, 31 Jan 2004 23:33:47 -0800

Subject: Re: RE: Re: adjusting to life without the bar?

Joanne,

Jakob didn't really complain about wearing his brace, but for a couple

months before he stopped wearing it, he'd tell us, " this foot doesn't

want to go in. It's dancing. " Once it was on though, he didn't

complain at all and wore it peacefully. He stopped wearing the DBB in

September 2001 (at about 3 years 7 months, so the same age A.'s

daughter is now). We kept telling him that if he didn't want to

wear it anymore, he'd have to tell Dr. Weinstein he didn't want to wear

it anymore.

For us, the transition to not wearing the DBB was smooth. He asked a

few times if he had to wear his brace (I think just to make sure we

wouldn't change our minds), but he slept fine without it. He has asked

a few times to try it on even as recently as within the last month.

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[Guest guest]

I am always so afraid that is going to hurt one of his feet!

I've often wondered who would I take him to. Hopefully I won't have

to answer that question! How is Zoe doing?

Pam and (8-12-01)

> Theresa,

>

> Thanks so much for sharing!! Very cute story.... I'm starting to

feel better

> about " the end " . I can't remember...did Jakob have

a " mild " , " moderate " , or

> " severe " case?

>

> Perhaps that could be a poll question... Did your doctor rate the

child's

> foot as mild, moderate, severe, other, no rating. We did not

receive a

> rating, but based on what I've learned, it seems to be mild...

>

> Zoe still couldn't stand on her foot this morning. It was swollen

and hot to

> the touch. We did end up going to the doctor today. (Can you

believe they

> had Sunday hours?!) He reassured us that it was just a " contusion "

and that

> she should be walking by tomorrow or Tuesday at the latest...

>

> she does seem a lot better, but she's still afraid to try and stand

on it.

>

> Since there's still some swelling and tenderness, we probably won't

put the

> shoes on again tonight, but I'm concerned that after 2 nights of

freedom

> we're going to get a battle to get the shoes back on. I keep

reiterating

> that when her foot is better, she'll need to put the shoes back

on...

>

> Thanks again,

> Joanne W.

> Message: 10

> Date: Sat, 31 Jan 2004 23:33:47 -0800

> From: McLaughlin <teresam@m...>

> Subject: Re: RE: Re: adjusting to life without the bar?

>

> Joanne,

>

> Jakob didn't really complain about wearing his brace, but for a

couple

> months before he stopped wearing it, he'd tell us, " this foot

doesn't

> want to go in. It's dancing. " Once it was on though, he didn't

> complain at all and wore it peacefully. He stopped wearing the DBB

in

> September 2001 (at about 3 years 7 months, so the same age

A.'s

> daughter is now). We kept telling him that if he didn't

want to

> wear it anymore, he'd have to tell Dr. Weinstein he didn't want to

wear

> it anymore.

>

> For us, the transition to not wearing the DBB was smooth. He asked

a

> few times if he had to wear his brace (I think just to make sure we

> wouldn't change our minds), but he slept fine without it. He has

asked

> a few times to try it on even as recently as within the last month.

>

>

>

> _________________________________________________________________

> Get a FREE online virus check for your PC here, from McAfee.

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963