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Guest guest
Posted

Rodrigo,

Good luck with your move and your new job. You have been through a lot, so

making some changes like moving out on your own is a positive step to moving

forward and getting on with living. I lived with my parents for awhile

after I got a divorce. Even though it helped a lot financially to live with

them, getting out on my own was the best thing I could have done for myself

mentally. I wish you all the best.

Leah

Winnipeg, MB

Age 37

FNA - June 12 (diagnosed as benign cyst)

Cyst Removed - Oct 4 (diagnosed with Pap Thyroid Cancer)

TT with Left Neck Dissection - Nov 29, 2002

currently off all meds and on LID

RAI Treatment March 11

WBS Mar 13 & 18 - Good Scan!

>

>Reply-To: Thyca

>To: <Thyca >

>Subject: Hi

>Date: Thu, 12 Jul 2001 00:19:42 -0300

>

>Hello, how is everyone doing?

>I've been a little out of the list because of working, studying, etc but

>i'm

>gonna be a bit more here in a couple o' days (i got a new job and i'm

>moving

>alone in a couple of days, maybe two weeks............ YEAHHHHHHH i'm free

>of the family!!!)

>Yeah I know some of you may think " what's wrong with this guy, what about

>his family??? " ...... well...... let's say " in healthy mind, healthy body.. "

>well I need to heal my mind, and that's what living alone will do.

>:-)

>I'm happy.

>

>Well, I don't know what to tell you so..... have a nice day tomorrow and be

>happy, that's what life's for.

>C-ya (someday)

>

>Rodrigo

>

>

>

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

  • 3 months later...
Guest guest
Posted

Hello Kandyis!

Glad you joined this group!

I am a chronic pain patient - having to take LOTS of med each day.

I can't do much, but I try to not eat too much. I am 33 years old.

I was put on a whole series of trial drugs several years ago, and gave me

no help, just cold sweating and weight gain.

I'm still now trying to get the last pounds off!

It can be done - even if you are in pain. That I KNOW!!!! And it doesn't

take much effort on the exercising part. You could get one of the " Ab

belts " that can help you even if you are on the sofa!

Feel free to post me privately if you wish:

chayton@...

Good luck, and hang in there. The comfort food isn't comfort - thought I

know how you feel!!!

Best wishes,

Chris

>i am new just joined my name is kandyis having a weight problem now i

>am on meds that can make me gaine what a cop out i try not to use

>that excuse i do try to walk every day i tried twice around the area

>yesterday but that really hurt me so back to once i do try to push

>from the table also its hard when you hurt nothing seems to help

>comfort foods do i have to get out of this thinking i just cant seem

>to do it . kandyis

>

>

>

>

Guest guest
Posted

hi i have fibromyalgia thryoid asthma i am on 10 mg predisone or 20

on bad days then i have panic and anxiety problems the doctor wont

even help me with the weight says i am to sick i know i am dont need

to be told alot i am 46 years old

kandyis

> Hello Kandyis!

>

> Glad you joined this group!

> I am a chronic pain patient - having to take LOTS of med each day.

> I can't do much, but I try to not eat too much. I am 33 years old.

> I was put on a whole series of trial drugs several years ago, and

gave me

> no help, just cold sweating and weight gain.

> I'm still now trying to get the last pounds off!

>

> It can be done - even if you are in pain. That I KNOW!!!! And it

doesn't

> take much effort on the exercising part. You could get one of

the " Ab

> belts " that can help you even if you are on the sofa!

>

> Feel free to post me privately if you wish:

> chayton@b...

>

> Good luck, and hang in there. The comfort food isn't comfort -

thought I

> know how you feel!!!

>

> Best wishes,

> Chris

>

> >i am new just joined my name is kandyis having a weight problem

now i

> >am on meds that can make me gaine what a cop out i try not to use

> >that excuse i do try to walk every day i tried twice around the

area

> >yesterday but that really hurt me so back to once i do try to push

> >from the table also its hard when you hurt nothing seems to help

> >comfort foods do i have to get out of this thinking i just cant

seem

> >to do it . kandyis

> >

> >

> >

> >

Guest guest
Posted

Kandyis,

Hi. I'm , 20 years old with fibromyalgia, anxiety, panic disorder, and

depression. I know how impossible it can seem to deal with illness, and trying

to lose weight. But it can be done. Start off really, really slow exercising.

Go outside, walk to your neighbor's house, walk home. Then do some simple

stretching. The next day, do it again. When you know you aren't on the verge

of relapsing, walk two houses down the street. Just keep adding on as slowly as

you need to.

At the same time, start cutting out junk food. You don't have to do it

instantly, start slowly. If you have a favorite fruit, find all the different

things you can do with it. Use a juicer, make a salad, make a smoothie, the

possibilities are endless.

Sorry if some of this is stuff you already know, once I start writing, it's hard

to stop.

Also, try finding another doctor. Maybe go to physical therapy, if your

insurance will pay for it. Good luck, I know you really need it. Oh yeah, are

you on meds for panic? Once I went on meds for panic and depression, I was able

to cope with pain better. And anxiety attacks cause shortness of breath, which

I'm sure you know. But if you can cope with the anxiety better, it will

probably help the asthma.

hi i have fibromyalgia thryoid asthma i am on 10 mg predisone or 20

on bad days then i have panic and anxiety problems the doctor wont

even help me with the weight says i am to sick i know i am dont need

to be told alot i am 46 years old

kandyis

Guest guest
Posted

hi thanks for understanding i went to physical therapy (sp) well i

had to stop this i tried excersing right now fm is so bad i cant

walking i do try every day i went around the area i walk twice 2 days

ago cant do that much like i use to. i am on anxiety meds it will

work in time. i do try to watch what i eat. will will loose just

takes time

kandyis

> Kandyis,

> Hi. I'm , 20 years old with fibromyalgia, anxiety, panic

disorder, and depression. I know how impossible it can seem to deal

with illness, and trying to lose weight. But it can be done. Start

off really, really slow exercising.

> Go outside, walk to your neighbor's house, walk home. Then do some

simple stretching. The next day, do it again. When you know you

aren't on the verge of relapsing, walk two houses down the street.

Just keep adding on as slowly as you need to.

> At the same time, start cutting out junk food. You don't have to

do it instantly, start slowly. If you have a favorite fruit, find

all the different things you can do with it. Use a juicer, make a

salad, make a smoothie, the possibilities are endless.

> Sorry if some of this is stuff you already know, once I start

writing, it's hard to stop.

> Also, try finding another doctor. Maybe go to physical therapy, if

your insurance will pay for it. Good luck, I know you really need

it. Oh yeah, are you on meds for panic? Once I went on meds for

panic and depression, I was able to cope with pain better. And

anxiety attacks cause shortness of breath, which I'm sure you know.

But if you can cope with the anxiety better, it will probably help

the asthma.

>

> hi i have fibromyalgia thryoid asthma i am on 10 mg predisone or

20

> on bad days then i have panic and anxiety problems the doctor

wont

> even help me with the weight says i am to sick i know i am dont

need

> to be told alot i am 46 years old

> kandyis

>

>

>

Guest guest
Posted

hi thanks for understanding i went to physical therapy (sp) well i

had to stop this i tried excersing right now fm is so bad i cant

walking i do try every day i went around the area i walk twice 2 days

ago cant do that much like i use to. i am on anxiety meds it will

work in time. i do try to watch what i eat. will will loose just

takes time

kandyis

> Kandyis,

> Hi. I'm , 20 years old with fibromyalgia, anxiety, panic

disorder, and depression. I know how impossible it can seem to deal

with illness, and trying to lose weight. But it can be done. Start

off really, really slow exercising.

> Go outside, walk to your neighbor's house, walk home. Then do some

simple stretching. The next day, do it again. When you know you

aren't on the verge of relapsing, walk two houses down the street.

Just keep adding on as slowly as you need to.

> At the same time, start cutting out junk food. You don't have to

do it instantly, start slowly. If you have a favorite fruit, find

all the different things you can do with it. Use a juicer, make a

salad, make a smoothie, the possibilities are endless.

> Sorry if some of this is stuff you already know, once I start

writing, it's hard to stop.

> Also, try finding another doctor. Maybe go to physical therapy, if

your insurance will pay for it. Good luck, I know you really need

it. Oh yeah, are you on meds for panic? Once I went on meds for

panic and depression, I was able to cope with pain better. And

anxiety attacks cause shortness of breath, which I'm sure you know.

But if you can cope with the anxiety better, it will probably help

the asthma.

>

> hi i have fibromyalgia thryoid asthma i am on 10 mg predisone or

20

> on bad days then i have panic and anxiety problems the doctor

wont

> even help me with the weight says i am to sick i know i am dont

need

> to be told alot i am 46 years old

> kandyis

>

>

>

  • 2 years later...
Guest guest
Posted

He said I was hypo because that's what happens when

you get thyroiditis. You are hyper for awhile and then

go hypo. Sometimes you can go off the medication and

sometimes you can't, he said. He based this on the

fact that my TSH was too high. I have been on the

alternating dosages for the past month now. He hasn't

ever mentioned my free T3 and T4 levels, but he has

tested me for them and he said they were normal. I

don't have the latest test results yet, he hasn't

mailed them to me yet. But everytime he's had them

tested he said they were in a normal range.

I had my TSH tested in December when I was taking .25

of the Synthroid and it came back as 3.19. He said

that was too high, so he increased me to 50. Left me

there for two weeks, which was the end of December to

the beginning of January, which is when I experienced

an immediate improvement in sleep, but I was still

tapering off the ativan at the time. I was tested

again around the 7th of January and my TSH was 2.04.

He wanted me to increase to 75 and then left me there

for another two weeks. Then I was tested again and at

2.00. About a week after being on the 75, I started to

really have trouble sleeping. So he said I could

alternate from 50 and 75, but he didn't want me to go

any lower because I wanted to get pregnant and he said

it wasn't safe because when you're pregnant,

apparently you need to increase your dosage.

So...I started alternating at that point and my sleep

got a little better, but it's still not completely

normal. Plus now I get heart palpitations at times,

etc. I actually notice that I get those symptoms on

days I take 75 in the morning instead of 50. I gave it

three weeks on the alternating and then I got tested

again. Then my TSH was 1.5, which he said was perfect

and to stay exactly as I am. That was earlier in the

week so I've been on the alternating dosages for about

a month now.

I hope this helps! Thanks!

Kathy

--- kats3boys wrote:

> The only problem is that I am still having some

> > hyperthyroid symptoms now. I get heart

> palpitations

> > with shortness of breath, flushing, and some

> > difficulty sleeping, although not as bad as it was

> > before. The doctor told me that I have to " deal

> with "

> > these symptoms because my TSH has to be between 1

> and

> > 2 in order to safely conceive and carry a baby to

> > term. He won't lower it, even though I feel I am

> > having some hyperthyroid symptoms.

>

> What is your Free t4 and Free T3 blood results? Did

> the doctor tell

> you why you were hypo? If you have results for your

> last few TSH

> tests can you post them along with current dose at

> the time? How

> long have you been alternating between 50mcg and 75

> mcg? Sorry more

> questions then answers I know.. but it is hard to

> give an answer

> with uot looking at the full picture and with your

> docs obvious

> obsession with the TSH range I am haivng a feeling

> that he has not

> looked at the bigger picture..

>

> Kats3boys

>

>

>

>

__________________________________________________

Guest guest
Posted

You also may want to try splitting your pills... sometimes even with armour I need to take my dosage in 1/2 tablet forms on my really hypo feeling days because for some reason my body absorbs it better. It keeps my body from trying to take in to much too quickly.

Also, see if you can find out and get copies of your lab results. Eventhough our bloodwork will show up in the normal range, it is really important to know that the range is just that... a range and doesn't work well for everyone. It does sound like your doctor cares more than a few other docs I've heard of. Which mean that they may be willing to listen a bit closer. The reason why your frees are so important is that they tell you what your body is converting. You may be getting enough hormone but may not be converting it properly from storage to active, etc.

Your TSH is a pituitary hormone and is not a thyroid hormone. It helps tell your pituitary/thyroid how much hormone to release and when.. so needless to say, if you are hypo/hyper, it will show. The t4, t3, free t4, free t3 are all thyroid hormones and are what your doctor should base your dosage off of.

Also, if you don't take a multivitamin (I can't remember) you will want to start doing that. Make sure it comes with iron and selenium (definitely get it with iron). Thyroid patients for some reason tend to run on the anemic side occasionally. Another thing you will want to do is take a b complex supplement. Not an herby one (as you may be allergic thus negating the point) but the straight mineral supplements. I take a liquid form so I can swallow it better. I can sooooo tell a difference when I don't take my vitamins.

Hopefully that will help you. Remember, we often want to know our doctors are doing everything they can to treat us, however they are fallible and often make mistakes. Show up at your next appointment with a list of symptoms you have daily (after 2+ years that is what made my doc listen to me). Also bring your basal body temperature reading (you can search the message archives for a link I posted a while back on that). Basal body temp will help you show your doc when your dosage is most optimal and help you see if you are still hypo. Make sure you take your pulse reading to. Take it when you first wake up in the morning, before you do anything else. Track your basal and pulse for a week straight then show your doc. Also keep a list of your symptoms, when they happen, and what you eat. And don't skip breakfast.. even if you have something small it will help fuel your body so your adrenal glands don't have as much to do when they first wake up. Don't drink caffeine (coffee or other high caffeine beverages for breakfast either) they will really screw you up. If you want something carbonated for breakfast, drink carbonated fruit juice.

Print out articles if you have to also. The thyroid is an amazing gland that has so much to do with the body's function that doctors haven't realized yet, but we need it working, to really have a good quality of life.

Make sure you get the tsh, t3, t4, free t3, free t4 levels all checked at the same time. Because they will vary from testing to testing, it is good to have them checked to make sure. When you get your levels, make sure you post the ranges to.

Something else you may want to look into, is that the symptoms you mentioned also are indicative that your adrenal glands are not functioning properly. When you are hypo for a long period of time, your adrenal glands try to pick up the slack of your body and it works until they start to have problems to (this can work vise versa as well... no one is really sure if the adrenals overtax the thyroid or if the thyroid overtaxes the adrenals). All of those symptoms I had when I was really really adrenally kaput. It is fixable if you avoid caffeine and all adrenal jump starters as well as the high fructose corn syrup foods. They really pummel your adrenals. You can take an adrenal supplement later on (have your doc test your cortisol & dhea-s levels first) and that will help level you out. When you are adrenally defficient, your body also has worse reactions to allergic substances.

It's really really common after switching around of the dosage that your adrenals don't sync up properly with your thyroid. I would recommend a dessicated adrenal hormone (not usually what you find in stores... they just offer herbs and b complex, you may be allergic to those herbs.. you never know).

I don't know if your doc has told you this or not but you also may be having allergic reactions. When you have allergic reactions to something with an autoimmune problem, especially thyroid related, it's not just runny noses and itchy eyes.... it can be weeks of hormone fluctuations and setbacks. Not good when you are trying to 'nail' your dosage down.

The best way to fix this is to have allergy tests done and figure out if you are allergic to anything. Everyone is probably getting tired of me bringing that up but I swear, once you see how much better your body can adjust without having to 'fight' all the time, you feel much better, and you heal quicker.

The reason we have adrenal glands are to combat allergic reactions with cortisol/steroid production and for adrenaline in fight/flight responses. Adrenal glands also help regulate our internal clocks. Terrible sleep is a symptom. Something I have also noticed from personal experience is that even when I don't have a physical reaction to an allergy substance, I will get emotional a few hours later... that is a result of my adrenal hormones being off kilter in my body... my levels show up in the normal range, but I can tell immensely when it happens. Do any of you have that happen also??

Good luck and I hope this helps.

Re: Re: HI

He said I was hypo because that's what happens whenyou get thyroiditis. You are hyper for awhile and thengo hypo. Sometimes you can go off the medication andsometimes you can't, he said. He based this on thefact that my TSH was too high. I have been on thealternating dosages for the past month now. He hasn'tever mentioned my free T3 and T4 levels, but he hastested me for them and he said they were normal. Idon't have the latest test results yet, he hasn'tmailed them to me yet. But everytime he's had themtested he said they were in a normal range. I had my TSH tested in December when I was taking .25of the Synthroid and it came back as 3.19. He saidthat was too high, so he increased me to 50. Left methere for two weeks, which was the end of December tothe beginning of January, which is when I experiencedan immediate improvement in sleep, but I was stilltapering off the ativan at the time. I was testedagain around the 7th of January and my TSH was 2.04.He wanted me to increase to 75 and then left me therefor another two weeks. Then I was tested again and at2.00. About a week after being on the 75, I started toreally have trouble sleeping. So he said I couldalternate from 50 and 75, but he didn't want me to goany lower because I wanted to get pregnant and he saidit wasn't safe because when you're pregnant,apparently you need to increase your dosage. So...I started alternating at that point and my sleepgot a little better, but it's still not completelynormal. Plus now I get heart palpitations at times,etc. I actually notice that I get those symptoms ondays I take 75 in the morning instead of 50. I gave itthree weeks on the alternating and then I got testedagain. Then my TSH was 1.5, which he said was perfectand to stay exactly as I am. That was earlier in theweek so I've been on the alternating dosages for abouta month now. I hope this helps! Thanks!Kathy --- kats3boys wrote:> The only problem is that I am still having some> > hyperthyroid symptoms now. I get heart> palpitations> > with shortness of breath, flushing, and some> > difficulty sleeping, although not as bad as it was> > before. The doctor told me that I have to "deal> with"> > these symptoms because my TSH has to be between 1> and> > 2 in order to safely conceive and carry a baby to> > term. He won't lower it, even though I feel I am> > having some hyperthyroid symptoms. > > What is your Free t4 and Free T3 blood results? Did> the doctor tell > you why you were hypo? If you have results for your> last few TSH > tests can you post them along with current dose at> the time? How > long have you been alternating between 50mcg and 75> mcg? Sorry more > questions then answers I know.. but it is hard to> give an answer > with uot looking at the full picture and with your> docs obvious > obsession with the TSH range I am haivng a feeling> that he has not > looked at the bigger picture..> > Kats3boys> > > > __________________________________________________

  • 2 weeks later...
Guest guest
Posted

Tempy, here is a link about psych symptoms that are part of thyroid

diseases. He is a psychiatrist who specializes in diagnosing

physical illnesses that present as psych symptoms.

http://www.drrichardhall.com/anxiety.htm Click on publications and

there's more articles connected to thyroid stuff.

US Jane

>

> Hi

>

> I went to docs yesterday..for thyroid visit.. dont know what i

went

> for though... They wont change the mdeication .. even though my

nodels

> are growing they saying if i got prego the medication couldhurt

the

> baby...Is that true??? My neck keeps swelling up.. its sore and

> painfull.. im really depressed.. anyway

> now im having panic attacks has that got anything to do with the

> thyroid??? or its just me... anyway they said come back next

year..

> stay there 10 mins i think..

> Tempy

>

Guest guest
Posted

Thanks Tempy ha scritto: The doctor(s) you're seeing don't know a blasted thing about thyroiddisorders, hands down. The baby's mother MUST have plenty of thyroidhormone to function well. What a bunch of idiots. Leave this bunch now,before they make you sicker even than what you are. Those panic attackshave EVERYthing to do with your thyroid disorder. Do you have Hashimoto'sDisease (one of the thyroid diseases that comes with it's own set ofantibodies) and the condition of hypothyroidism? There are differentthyroid diseases that cause hypo, but this one is the most common. Hi> Hi>> I went to docs yesterday..for thyroid visit.. dont know what i went> for though... They wont change the mdeication .. even though my nodels> are growing they saying if i got prego the medication couldhurt the> baby...Is that true??? My neck keeps swelling up.. its sore and> painfull.. im really depressed.. anyway> now im having panic attacks has that got anything to do with the> thyroid??? or its just me... anyway they said come back next year..> stay there 10 mins i think..> Tempy

Yahoo! Messenger with Voice: chiama da PC a telefono a tariffe esclusive

Guest guest
Posted

Thanks Meleese TempyMeleese ha scritto: Jeepers creepers, where do they get these people from ?? Looked back at your labs, sounds as if you need to dose by symptoms what do they expect to do if you were pregnant?? Go off meds?? You'd die!! You are only replacing what your body doesn't make any more, time for a new doc, go herehttp://thyroid.about.com/find a doc there.........Meleese xxx----- Original Message ----- > Hi>> I went to docs yesterday..for thyroid visit.. dont know what i went> for though... They wont change the mdeication .. even though my nodels> are growing they saying if i got prego

the medication couldhurt the> baby...Is that true??? My neck keeps swelling up.. its sore and> painfull.. im really depressed.. anyway> now im having panic attacks has that got anything to do with the> thyroid??? or its just me... anyway they said come back next year..> stay there 10 mins i think..> Tempy

Yahoo! Mail: gratis 1GB per i messaggi, antispam, antivirus, POP3

  • 4 weeks later...
Guest guest
Posted

I'm glad I could pass it along to you.

-med

Re: Hi

Thanks for the link, Med.... And for checking with me first....

The Virginia site that some of us knew about had to close yesterday, I'm happy that another one is available.

Topper ()Proud Group Owner

On Sun, 09 Apr 2006 23:35:58 -0000 "medstudent2be" writes:

Hello everyone, there is a link I found to a Virginia thyroid support site:http://health.groups.yahoo.com/group/thyroidsupportofva/Hope you like it....-med.

Guest guest
Posted

Glad that it missed you, Amber... sorry for the folks that it hit though....

Topper ()

On Mon, 10 Apr 2006 11:08:57 -0400 "Amber Sewell" writes:

Hey All!,

I live in Atlanta currently and a "something" touched down this Friday and got the subdivision right behind us which it started about 1000 ft away. No one was hurt but 20 houses were destroyed from trees as we live in a heavily wooded area. I road thru there and just could'nt not help thinking it could have been us, on top of everything else, but it was'nt. That was a wake up call for my "pity party". Our comcast was down all weekend so I'm late responding to your wonderful advice and comments..from my MS diagnosis. So Sorry!!!

Amber

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