NCU Suzanne

[Guest guest]

Suzanne, Bless your heart. However, maybe somewhere in all that is an

answer for you. Love, ~Alena's Mom

Re: Digest Number 920

> Well, Hi Everyone. I just finished reading about 5 postings. I must have

> erased the others. I have missed you all so much.

>

> Thank you for the warm welcome. I am hurt to read that you have

been

> having a such a struggle again. But, please don't for one second think

that

> you are failing your daughter...you have been so marvelous. I loved what

> Terry said, I couldn't say it better. Continue to vent, we are here for

> you.

>

> I was saddened to hear that Patti is no longer with us. I valued her

> intuitiveness and her advise. I hope she will be able to join us again.

I

> don't have her address, does anyone?

>

> Every time I read about how someone is suffering with hives and trying to

> work I could cry. I find it difficult enough to be home and nurse the

hives

> all day, but to have to go to work or to school makes it very, very hard.

> My advise is to seek help from as many specialists as possible and try to

> have them coordiate the treatment. (easier said than done, but I am

working

> on that....ha)

>

> So are you ready for my tome? Anyone not wanting to read about my

> experiences in the last 26 days may wish to skip to the next. However, I

> may have some information that might help you.

>

> On June 1st I travelled to Seattle (from Juneau) and stayed with a good

> friend of mine there. As may of you recall I went there on a witch hunt

for

> urticaria. My 1st appointments were on July 2. I saw a female surgeon,

> Dr. Deb Wechter, who seemed very pleasant and competent, regarding a

> followup to a suspicious mass that had been spotted in a mammogram in my

> left breast. She of course scheduled an ultrasound and a needle biopsy

> which turned out to be infiltrating ductal carcinoma. I had surgery on

the

> 24th of July and she performed a lumpectomy and removed two lympth nodes

> (two incisions). Subsequently I will need radiation, but at present I am

> awaiting the pathology reports to determine whether I will need

chemotherapy

> (and what kind and how long) or the pill tamoxifen for 5 years. The mass,

> the surgeon said, was 2.2cm and popped right out, and you know what, the

> recovery has been easier that when I had a bilateral biopsy done 11 years

> ago. So she was great!!!!! However, I still have hives and they are

harder

> to control than before.

>

> But that is not the end of the story. On that same day I saw an

> Immunologist. Well, he seemed like a pile of fluff. All he wanted to do

> was put me on more meds and naturally taper me off the prednisone. Hmmm,

> actually a good idea to taper prednisone, but I hate to feel so goofy from

> more atarax and more zyrtec. Anyway, he did take 9 vials of blood. He

> promptly went on vacation which blew my mind. Here I had come down here

> for help and he was off ....geeesh! Anyway, he did redeem himself

somewhat

> because on his return of his vacation visit on the 18th of July he found

> through the blood tests that I had a little autoimmune process going on

with

> my thyroid....and here Myra is one for you....here is what the report

said:

>

> " TPO Ab @see fn IU/mL

> July 2, 0l 2.6 H*

>

> TPO Ab range is in children and adults-- less than 2.0

>

> The thyroid microsomal fraction is an impure preparation of the enzyme

> Thyroid Peroxidase (TPO). TPO is the antigen recognized by anti-thyroid

> microsomal antibodies (AMA) in 98 % of patients with elevated AMA. The

> Anti-TPO assay is a technically superior and more specific method for

> measuring the antibody.

>

> H = High *=Comment

> @ = TPO Ab Performed at Corning Nichols Institute, 33608 Ortega Hwy, San

> Capistrano, CA 92675 "

>

> So you can see I am still trying to figure this one out.

>

> Then on July 6th I saw a bio-dentist, Dr Mitch Marder. He was really

> interesting. He is young, seemed very clean cut, but also new age. He

took

> a history of me and then proceeded to test me with kineoslogy (wish I

could

> spell that right) and found that I was having problems with heavy metals.

> He did do an oral exam and listed teeth that could possibly be refilled

and

> whatnot and gave me the costs. Apparently my insurance will cover only

> $2,000 worth of repair a year, so it will take a while on this one. But,

> more importantly he said that he would not begin to work on me until my

> immune system improved (does this sound like catch 22?) He was most

> interested in working with any natropath that I might select. I really

> liked the guy, he is different and somehow I trusted him. I am going to

> stop right here and go pick some lettuce for salad. To be continued....

>

> Love, Suzanne

>

>

>

>

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