Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Welcome to our group. Although there are a number of different methods of clubfoot treatment, this group was set up to encourage the use of the Ponseti " Non-Surgical " method of treatment. But other methods of treatment are also discussed here. Dr. Ponseti is from the University of Iowa and developed his method in 1950. The method has been mostly ignored by the medical community until the late 1990's. It is now in process of becoming the mainstream initial method of manipulation and casting. We are helping to discuss issues relating to understanding the method as is was designed by Dr. Ponseti and possible modifications to the method that other doctors may use. From watching the experiences of many, many parents on the internet over the past 4 years, modifications to the method can affect how easily a child adapts to the FAB, the rate of relapsing and how well it works without needing to do the surgery. We would be glad to try to answer any questions that you may have. and (3-17-99) http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/egbert.html > I don't know what to say here. I know that our doctor is one that > believs operation is the last thing. I would like to know what > methods are being used by your doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Hi welcome to the group. CF is going to be relatively easy after all you have been through. Feel free to ask whatever you'd like. Most of us here have children who have been treated by the Ponseti method. In my humble opinion I don't think there is really any other way. I will be praying for a safe and happy delivery. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Hi Chris. Welcome. My baby is now 5 months, and has bilateral cf. I was induced at 38 weeks because ultrasound showed he was small for gestational age, not related to the cf. but he is thank god healthy and adorable. Hope all goes just as well with you. 5 month old cf in DBB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Hi! I have been having strange problems for several years including muscle twitches, neurocardiogenic syncope, heart skips and palpitations, migrating numbness etc. It seemed to start when I was pregnant but looking back I had some symptoms prior to that. My 13 month son is not well either and now they think he has mito although we haven't gotten an official diagnosis. I have been talking to some of the parents on the mito board about him and we have an appointment with the genetics clinic tomorrow for him. What I was wondering is do they diagnose adults the same way (test urine organic acids and amino acids and then a muscle biopsy if those show elevations)? Are there mito docs for adults? I saw some people talking about going to see a pediatrician. I have heard that maybe I have MS, lupus, was actually treated for late stage neurological lyme which I never tested positive for, etc. Now I wonder if my son has mito if mine may be mito as well. Has anyone had a similar situation? Quote Link to comment Share on other sites More sharing options...
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