Re: Visit to the LSU Eye Clinic

[Guest guest]

Sue Ellen were you tested for nystagmus at an ENT ?This is a gittering of the

eyes when you focus .you cant detect this by yourself they do a special test

..GEO

Visit to the LSU Eye Clinic

Hi everybody,

I visited the LSU Eye Clinic last week to have my vision problems (burning

eyes, blurring vision, changes in vision) checked and the neuro-ophthmalogist

looked at my eyes and had following comments:

1. He was familiar with PLS and did not believe there was eye involvement.

2. They stuck these pieces of paper in my eyes to see how dry they were. My

eyes were dry and felt it was caused by meds, mainly Baclofen, Zanaflex,

Imipramine HCl and Detrol. Recommended I reconsider the ITB as that should

eliminate oral Baclofen and Zanaflex.

3. My eyes do not fully shut when I am relaxed with them shut and this causes

additional dryness. Dr. had suspected dryness is why I tore my corneas at NIH 2

years ago - the cornea stuck to my eyelids when I woke in the morning.

4. Provided me with 4 samples of eye lubricants to try at home and to use

them for 3 weeks and come back to see corneal specialist. Said I might need

punctal plugs (sp?) if that did not take care of it. They plug your tear ducts.

5. Said my pupils were dilated (Dr. Floeter had also commented on this 2

weeks ago) and asked me to track it in relation to blurring vision. Does anyone

else have that? So far they don't seem to gbe related.

6. Lubricants did not seem to help and by Tues. my eyes were burning more.

Called clinic and they made appt. for Thurs. for corneal specialist. He looked

at them again, also commented on dilated pupils and said I needed the plugs and

they were installed that afternoon. I go back for another visit in 3 months.

Some of blurring was caused by double vision so I don't know how this fixes

that.

7. My eyes are feeling much better but am still using drops. Burning is much

reduced and worst blurring/fogging is gone. Am still watching that.

8. Forgot to ask why my eyes tear up when I have yawning spells.

Serious tearing and burning can occur when the cornea tears (my experience) so

don't fiddle around if your eyes are burning. See a Dr.!

Regards, Sue Ellen

[Guest guest]

GEO,

While I don't remember Dr. Calkwood at LSU mentioning nystagmus, Dr. Floeter

provided me with a copy of her findings from my visit and it listed " no

nystagmus " .

Regards, Sue Ellen

[Guest guest]

Hi Sue Ellen,

Thank you for your update and information. I guess a regular ophthalmologist

would not be able to pick this up right? I just had my eyes checked and he just

gave me a new prescription. Well, I'll have to wait until next year and ask for

a neuro-ophthalmologist. Thanks again.

God Bless

Yolanda

Visit to the LSU Eye Clinic

Hi everybody,

I visited the LSU Eye Clinic last week to have my vision problems (burning

eyes, blurring vision, changes in vision) checked and the neuro-ophthmalogist

looked at my eyes and had following comments:

1. He was familiar with PLS and did not believe there was eye involvement.

2. They stuck these pieces of paper in my eyes to see how dry they were. My

eyes were dry and felt it was caused by meds, mainly Baclofen, Zanaflex,

Imipramine HCl and Detrol. Recommended I reconsider the ITB as that should

eliminate oral Baclofen and Zanaflex.

3. My eyes do not fully shut when I am relaxed with them shut and this causes

additional dryness. Dr. had suspected dryness is why I tore my corneas at NIH 2

years ago - the cornea stuck to my eyelids when I woke in the morning.

4. Provided me with 4 samples of eye lubricants to try at home and to use

them for 3 weeks and come back to see corneal specialist. Said I might need

punctal plugs (sp?) if that did not take care of it. They plug your tear ducts.

5. Said my pupils were dilated (Dr. Floeter had also commented on this 2

weeks ago) and asked me to track it in relation to blurring vision. Does anyone

else have that? So far they don't seem to gbe related.

6. Lubricants did not seem to help and by Tues. my eyes were burning more.

Called clinic and they made appt. for Thurs. for corneal specialist. He looked

at them again, also commented on dilated pupils and said I needed the plugs and

they were installed that afternoon. I go back for another visit in 3 months.

Some of blurring was caused by double vision so I don't know how this fixes

that.

7. My eyes are feeling much better but am still using drops. Burning is much

reduced and worst blurring/fogging is gone. Am still watching that.

8. Forgot to ask why my eyes tear up when I have yawning spells.

Serious tearing and burning can occur when the cornea tears (my experience) so

don't fiddle around if your eyes are burning. See a Dr.!

Regards, Sue Ellen