Re: Hi, I am a new member to CF parents

[Guest guest]

Deb,

Thats a good tip about the tooth brushes. I replace them every three months

but was never quite sure on how to keep them clean in between.

Re: Hi, I am a new member to CF parents

> Sharon,

> I remember feeling the same way especially when we couldn't get rid of the

> psuedomonas. I would do and buy everything I could find that would say

> antibacterial. But you can't keep you daughter in a bubble psuedomonas is

> everywhere. The best prevention is good old fashion hand washing. I also

> think washing the sheets a lot help too. I had an adult CF person tell me

> that one and I think it makes sense because when the had psuedomonas and

the

> sleep at night and drawled on the pillows they would reinfect themselves.

> Also put tooth brushes in the dishwasher a lot of just soak them in hot

water

> helps to but you won't have to worry about that for a while. I hope this

has

> helped. Deb mom of w/CF, Lynzie wo/CF and Natalynn w/CF

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Hi Deb,

there is a big review about this subject in the files

http://groups.yahoo.com/group/cfparents/files/Research%

20etc/Staph1.pdf

If you don't like to read large scientific articles, here is an

actual abstract about the same subject, that explains the situation.

Dr. Ratjen is the chief doc at one of Germany's large CF centers and

he usually replies personally, when you e-mail him.

If your pulm owns a subscription to Pediatric Pulmonology

the article is in

Volume 31, Issue 1, 2001. Pages: 13-16

And those who have a subscription have access to the whole article in

pdf-format at

http://www3.interscience.wiley.com/cgi-bin/abstract/76508831/START

I would be very happy, if I could add the whole article to our list

files.

Fiona cultures positive for staph almost constantly for four years

now, we give antibiotics (a three week course of Panoral forte

(cefachlor)) only when her cough increases and becomes productive.

Pseudomonas haven't been found in her throat swabs so far, only

haemophilus influenza and beta-streptococcus.

Bye

Torsten

1: Pediatr Pulmonol 2001 Jan;31(1):13-6 Related Articles, Books,

LinkOut

Effect of continuous antistaphylococcal therapy on the rate of P.

aeruginosa acquisition in patients with cystic fibrosis.

Ratjen F, Comes G, K, Posselt HG, Wagner TO, Harms K; German

Board of the European Registry for Cystic Fibrosis (ERCF).

Children's Hospital, University of Essen, Hufelandstr. 55, D-45122

Essen, Germany. f.ratjen@...

SUMMARY. Continuous therapy with antistaphylococcal antibiotics is

advocated by some cystic fibrosis (CF) centers, but it is unclear

whether this strategy favors early colonization with P. aeruginosa.

We used the data base for the German Centers of the European Registry

for Cystic Fibrosis (ERCF) to assess the effect of continuous

antistaphyloccocal therapy on the rate of P. aeruginosa acquisition

in CF patients. Patients included in this analysis had to be < 18

years of age, P. aeruginosa-negative prior to entry in the ERCF, and

to have had at least 2 additional P. aeruginosa-negative respiratory

cultures while followed in the ERCF. Of the 639 patients fulfilling

these criteria, 48.2% received continuous antistaphyloccocal therapy,

40.4% intermittent antibiotic therapy, and 11.4% no antibiotic

therapy. There were no differences between the groups in body mass

index, as well as forced vital capacity (FVC) and forced expired

volume in 1 sec (FEV(1)) at baseline. The rate at which patients

acquired positive respiratory cultures for Staph. aureus was

significantly lower in the group receiving continuous

antistaphyloccocal antibiotic therapy than in those not receiving

such therapy. Patients receiving continuous antistaphyloccocal

antibiotic therapy had a significantly higher rate of P. aeruginosa

acquisition compared to patients receiving only intermittent or no

antibiotic therapy. This difference was especially apparent for

children younger than age 6 years. We conclude that continuous

therapy with antistapyloccocal antibiotics directed against Staph.

aureus increases the risk of colonization with P. aeruginosa. How

this affects the clinical outcome of these patients remains to be

determined. Copyright 2001 Wiley-Liss, Inc.

PMID: 11180669 [PubMed - indexed for MEDLINE]

> In a message dated 8/15/01 9:37:20 AM Central Daylight Time,

> aberdeen95@t... writes:

>

> << Regarding the staph, we have become used to it. Fiona cultures

it for

> four years now, it doesn't cause real problems and I think that it

> helps to keep the PA away from Fiona's lung. >>

>

> Torsten,

> Why do you say this? Because my oldest just did her first

bronchoscope and

> they found staph but No psuedomonas. Deb Mom of w/CF,

Lynzie wo/CF

> and Natalynn w/CF