Re: Re question for Aussie jane

[Guest guest]

Hi Aussie Jane,

30 YEARS of a goiter with NO scan??holy cow!!!

Are you being treated for for hypo or hashis and if so,

What meds if any are you on?

How do you feel and how are your “numbers” i.e. TSH, t3f and t4?

Sue

Go to your endo, talk to your primary care, talk to anyone who will listen. Please keep me updated... If only I could loan you my mostly open minded doc... *sigh*. Good luck aussie Jane, you fight and kick and scream at them... tell them you've got some friends across the pond who mean business! .

Re: question for anyone about weird feeling in neck...

[Guest guest]

also... you can say.. okay, you don't think I have thyroid problems?.. well, what else can cause this?.. help me find out. Then they will be more open to trying everything else... you'll have to go around your arse to get to your elbow (so to speak) but it is worth a shot. Then you get the added benefit of saying HA! I told you so later on lol.

a.

Re: Re: Re question for Aussie jane

Hi Aussie Jane...I can see why the docs would deem you “normal” cuz you are In range... Geeez, you can’t find a doctor who WILL do a scan?It just makes no sense, I would be scared NOT to scanAn enlarged thyroid... Has anyone even FELT your neck/thyroid Area physically to confirm you have it...or — maybe youCan find something SIMILAR in symptoms toWarrant getting a neck scan? This sounds HORRIBLE!Yes, come across the pond — and get a scan -- Our doctors will take care of you and we will“take care” of your doc!!! :)Sue

-Hi Sue,Yup - that's right. I was 18 and that's what my family Dr said andnothing has ever been done since. Have had CFS, Fibro, chronicheadaches, weight issues. Not ONCE did my GP mention my Goitre.I wasdx as borderline low in 1978 and have had no followup or meds EVER.Had a TSH done last year and Endo said it was normal 1.4 ( 0.5 -3.7)Another Dr saw the same test and said I had 'low thyroid' Confused- but wonder if he dx on symptoms as well.Joined this List - eyes popped out with info. Went to GP armed withknowledge. Had to demand another TSH and ask 3x for Free T3 & Free T4. TSH 1.1 ( 0.5 - 3.7)FT4 13 ( 10 - 25)FT3 4.4 (3.1 - 5.4)In all the stress ( Dr was 'very' angry towards me) I forgot to getantibodies.Dr wanted me to have stomach scan for reflux (????)2 weeks later have sore lump most of the time, husky voice, tired ofcourse ( that is normal for me after 30 years) and trouble swallowing- food & fluids. said to go back to Dr and say I have friends across the pondthat I will send after her !Aussie Jane

[Guest guest]

-Well - Dr thought I had Reflux problems. Wants me to have stomach

barium scan. Trouble is - any fasting test done to me is major. I have

a severe Hypoglycemic problem. That is what Endo dx last year when he

did fist TSH test. I flunked the 5 hour GTT. Reactive Hypoglycemia he

calls it. If I don't eat every 3 hours I collapse.

Now wondering if its all related to Thyroid after all. But present

Goitre problem is Reflux according to my Dr. But then - she dx my Gall

attacks as stomach too ! It took me 3 visits to different Drs for 3rd

opinion before a gall bladder scan was done and that showed sludge !

lol. That was 17 years of misdx and Drs telling me I had nothing wrong

and it was a sore muscle.

I don't have any reflux symptoms and don't see why that test should be

done before the Thyroid scan. Less radiation the better and like to

have correct scans first time.

Aussie Jane

-- In The_Thyroid_Support_Group , " Teague "

wrote:

>

> Re: Re: Re question for Aussie

janealso... you can say.. okay, you don't think I have thyroid

problems?.. well, what else can cause this?.. help me find out. Then

they will be more open to trying everything else... you'll have to go

around your arse to get to your elbow (so to speak) but it is worth a

shot. Then you get the added benefit of saying HA! I told you so

later on lol.

>

> a.

> Re: Re: Re question for

Aussie jane

>

>

> Hi Aussie Jane...

>

> I can see why the docs would deem you " normal " cuz you are

> In range... Geeez, you can't find a doctor who WILL do a scan?

> It just makes no sense, I would be scared NOT to scan

> An enlarged thyroid... Has anyone even FELT your neck/thyroid

> Area physically to confirm you have it...or - maybe you

> Can find something SIMILAR in symptoms to

> Warrant getting a neck scan? This sounds HORRIBLE!

> Yes, come across the pond - and get a scan --

> Our doctors will take care of you and we will

> " take care " of your doc!!!

>

> Sue

>

>

>

>

>

> -Hi Sue,

> Yup - that's right. I was 18 and that's what my family Dr said and

> nothing has ever been done since. Have had CFS, Fibro, chronic

> headaches, weight issues. Not ONCE did my GP mention my Goitre.I was

> dx as borderline low in 1978 and have had no followup or meds EVER.

>

> Had a TSH done last year and Endo said it was normal 1.4 ( 0.5 -

> 3.7)Another Dr saw the same test and said I had 'low thyroid'

Confused

> - but wonder if he dx on symptoms as well.

>

> Joined this List - eyes popped out with info. Went to GP armed with

> knowledge. Had to demand another TSH and ask 3x for Free T3 &

Free T4.

>

> TSH 1.1 ( 0.5 - 3.7)

> FT4 13 ( 10 - 25)

> FT3 4.4 (3.1 - 5.4)

>

> In all the stress ( Dr was 'very' angry towards me) I forgot to get

> antibodies.Dr wanted me to have stomach scan for reflux (????)

>

> 2 weeks later have sore lump most of the time, husky voice, tired of

> course ( that is normal for me after 30 years) and trouble

swallowing

> - food & fluids.

>

> said to go back to Dr and say I have friends across the pond

> that I will send after her !

>

> Aussie Jane

>

>

>

>

>

>

[Guest guest]

>

> > TSH 1.1 ( 0.5 - 3.7)

> > FT4 13 ( 10 - 25)

> > FT3 4.4 (3.1 - 5.4)

> >

> > Aussie Jane

> >

JMO but there is nothing normal about a TSH of 1.1 when the T4 is 13

with a range of 10-25..Your TSH looks great..it is in the normal

range..and I am thinking this maybe your problem..your body is

sending out a weaker signal to the thyroid to produce thyroid

hormone and your body is happily doing its job..

To give you a hint what I mean, I have a goiter and although yes it

has been ultrasounded , no nodules, just enlarged..and visabley

noticable.. my TSH is 0.92..my T4 is 18( 11-19)..

If you look at others who post, those not on meds or just starting

meds you will notice a link between TSH and T4..I am not seeing that

link here..although conversion to T3 looks great considering how low

the T4 is..thinking maybe TBG?? It needs to be tested..estrogen?

Androgen and other hormones that can effect TBG and will also let

you know if it is pituary related or hormone related..

As a general guideline you want your TSH to be near 1..( with out

replacement..the medium average is 1.25..so your TSH looks

great..and if your doc keeps looking at your TSH, chances are not

much is going to change.

Most people feel the best with a T4 in the upper 2/3's of the range

so with the range your lab uses..a T4 between 18-22 would be

optimal...your labs show a T4 at 13??

Ask your doc if your TSH is fine why is your T4 so low? Make him

look for answers..

Kats3boys

[Guest guest]

Hi Kats3boys,

Food for thought. Not sure what you mean though - if my T4 is low how

can my TSH be happy & working. need an explanation before I see Dr and

start asking hard questions.I know what you mean though. It looks

'wrong' somehow.

Also - all the symptoms. And I can't swallow ! Jane

> >

>

> > > TSH 1.1 ( 0.5 - 3.7)

> > > FT4 13 ( 10 - 25)

> > > FT3 4.4 (3.1 - 5.4)

> > >

>

> > > Aussie Jane

> > >

> JMO but there is nothing normal about a TSH of 1.1 when the T4 is 13

> with a range of 10-25..Your TSH looks great..it is in the normal

> range..and I am thinking this maybe your problem..your body is

> sending out a weaker signal to the thyroid to produce thyroid

> hormone and your body is happily doing its job..

> To give you a hint what I mean, I have a goiter and although yes it

> has been ultrasounded , no nodules, just enlarged..and visabley

> noticable.. my TSH is 0.92..my T4 is 18( 11-19)..

> If you look at others who post, those not on meds or just starting

> meds you will notice a link between TSH and T4..I am not seeing that

> link here..although conversion to T3 looks great considering how low

> the T4 is..thinking maybe TBG?? It needs to be tested..estrogen?

> Androgen and other hormones that can effect TBG and will also let

> you know if it is pituary related or hormone related..

>

> As a general guideline you want your TSH to be near 1..( with out

> replacement..the medium average is 1.25..so your TSH looks

> great..and if your doc keeps looking at your TSH, chances are not

> much is going to change.

>

> Most people feel the best with a T4 in the upper 2/3's of the range

> so with the range your lab uses..a T4 between 18-22 would be

> optimal...your labs show a T4 at 13??

>

> Ask your doc if your TSH is fine why is your T4 so low? Make him

> look for answers..

>

> Kats3boys

>