Re: question for anyone about weird feeling in neck...

March 10, 2006

Hi Sue. I would be the " person " mentioned in this post from Aussie

Jane. I am the other Jane, US Jane.

Yeh, go to an endo. Most family docs don't know enough about dxing

goiters, in my opinion.

All I have is my experience, and medical stuff I've read since on

the web, and learned from my endo, and others experiences with

thyroid cancer from the Thyca support list. But, had I known what I

know now, almost 3 yrs ago when during an annual physical, my family

doc noted one side of my thyroid was large, I would have pressed to

have a scan done of it. At the time, she ordered blood work, and

since it came back as normal per thyroid, nothing else was done.

And here's my story : there was a small spot on each side of my

thyroid that was pumping out thyroid juice overtime. The rest of my

thyroid had died, and some was turning to mush to be integrated into

the body, from being dead. All my blood work from almost 3 yrs ago,

up to surgery, showed measurable thyroid juice was normal. The most

noticeable sign I know now, that something was wrong with the

thyroid, was a year and a half of diarrhea. I didn't go to the doc

about that, until after a year and a half of it. Then shortly

after, my very large thyroid was found on a CT scan that was looking

for stuff in my abdomen, just accident it went up far enough to see

the thyroid. Diarrhea cleared up after the removal.

I had a diagnostic thyroid uptake scan, you go nuclear for that, it

showed all the thyroid was cold except for 2 small hyper spots.

That indicated a total thyroidectomy to my docs. Once opening me in

surgery, my surgeon said my lobes were the size of tangerines, that

since thyroid cancer grows slowly, it had been growing for years.

Even with lobes that large, my biopsy, 6 sticks on each side, missed

the cancer. The report said one side was benign, the other side

suspicious. The pathology report after removal found the cancer,

big areas of it.

I have not liked collars touching my neck, and now in retrospect,

can see it was cuz the pressure of the goiter. But it grew so

slowly and so gradually, that I didn't know it to be anything other

than the way things are. Drs thought I had a large neck. Now that

the inflammed dying thyroid is out, my neck has reduced quite a bit

in size, and apparently my face had been swollen too. Now that

swelling has gone down some, I have wrinkles ! I prided myself for

being 50 but not looking 50, but apparently the swelling kept

wrinkled at bay. oh sigh.

So, one thing I can do from my experience is to tell others, now, to

press for imaging of their thyroid if it enlarges. Before my

surgery, far too many docs quoted the statistics to me of how rarely

goiters are cancer, well, mine was.

If you want to hear any more from me, it's best to email me

privately, off list. Now that I have recovered from my surgery and

treatment, I don't go on the web that often any more.

If it happens to turn out to be cancer, or removal suggested, there

is the thyroid cancer support group. Their website is

www.thyca.org From there are links to the email support group.

And to all you others - last week I finally turned a major corner in

reoovering from all this, and the me I know, is back - mind clarity,

getting back to getting some tasks done during the day. It feels

sooo good, and hope there is more improvement. 4 months post TT.

US Jane

> >

> > Hi Aussie Jane

> >

> > LOL! Ok, I was just reading and trying to figure out

> > Who Tina was ! LOL...

> >

> > So you would get it checked out huh?

> > Boy so many appointments going on and I just saw her last

Friday, but

> > hadn¹t done Yoga since then kinda traded in my yoga mat for

> weights lately

> > To try and tone and lose weight... Darn it all...i will call

Monday

> and see

> > if

> > She will get me a lab referral for a sono....

> >

> > Thanks,

> > Sue

March 10, 2006

-Hi Tina ! I am in South Australia and its 37 celcius today ( 100 F)

Aussie Jane

-- In The_Thyroid_Support_Group , Tina Hummel

wrote:

>

> Hi Aussie Jane I am Tina. I live in Lebanon,Pennsylvania.

>

> jytdtp wrote: Hi Aussie Jane

>

> LOL! Ok, I was just reading and trying to figure out

> Who Tina was ! LOL...

>

> So you would get it checked out huh?

> Boy so many appointments going on and I just saw her last Friday, but

> hadn't done Yoga since then – kinda traded in my yoga mat for

weights lately

> To try and tone and lose weight... Darn it all...i will call Monday

and see if

> She will get me a lab referral for a sono....

>

> Thanks,

> Sue

>

> Hi Tina, I would get it checked. Better safe than sorry. I can't

> recall the name of the test but its exactly as you descibe as appears

> to be a Drs dx of growing size in a Goitre. Your Endo needs to be made

> aware.

>

March 10, 2006

Wow that is a temp it was about 48 degrees here it is getting warmer but it is taking longer than I would like I am a cold blooded person. I get teased all the time if it goes below 80 degrees I break out my parka. oh well at least I am comfy when it is that warm.So Tell me Jane tell me something is it as expensive to live there as it is in parts of the USA ? I know for a fact that parts of Canada is expensive. But there are alot of places in the USA that are high in taxes and stuff.California for one and Florida is another. I had a Nurse One time that worked at my Family Dr office andI would love to ask her questions just to hear her talk I love it ,it's just to cool. But she has long since moved on and I do miss her. Well I

just wanted to Introduce myself alittle bit since I was mistaken I guess for someone else. LOL That is okay I have the brain fog thing happeneing to. Tina aussi_jane wrote: -Hi Tina ! I am in South Australia and its 37

celcius today ( 100 F)Aussie Jane-- In The_Thyroid_Support_Group , Tina Hummel wrote:>> Hi Aussie Jane I am Tina. I live in Lebanon,Pennsylvania.> > jytdtp wrote: Hi Aussie Jane > > LOL! Ok, I was just reading and trying to figure out> Who Tina was ! LOL...> > So you would get it checked out huh?> Boy so many appointments going on and I just saw her last Friday, but> hadn't done Yoga since then – kinda traded in my yoga mat forweights lately> To try and tone and lose weight... Darn it all...i will call Mondayand see if > She will get me a lab referral for a sono.... > > Thanks,> Sue> > > > Hi Tina, I would get it checked. Better safe than sorry. I can't> recall the

name of the test but its exactly as you descibe as appears> to be a Drs dx of growing size in a Goitre. Your Endo needs to be made> aware.> > >

March 10, 2006

-Hi US Jane, Good to hear from you. Your story is one that I am

keeping focussed as all my Labs are so normal that my Drs are being

rude and unhelpful.

Nearly 3 hours since I did that test and Goitre is hurting so much.

And I thought it was a good day today. When I woke my voice was not

husky even.

Is that how your symptoms were ? Vague - and worse at times and better

at times ? My necklaces are getting tighter and I have always hated

tight necklines in jumpers.

I am still trying to find a Dr that can order the Scan. Do you mean it

has to be MRI as well ?

Aussie Jane

-- In The_Thyroid_Support_Group , " rjane1955 "

wrote:

>

> Hi Sue. I would be the " person " mentioned in this post from Aussie

> Jane. I am the other Jane, US Jane.

>

> Yeh, go to an endo. Most family docs don't know enough about dxing

> goiters, in my opinion.

>

> All I have is my experience, and medical stuff I've read since on

> the web, and learned from my endo, and others experiences with

> thyroid cancer from the Thyca support list. But, had I known what I

> know now, almost 3 yrs ago when during an annual physical, my family

> doc noted one side of my thyroid was large, I would have pressed to

> have a scan done of it. At the time, she ordered blood work, and

> since it came back as normal per thyroid, nothing else was done.

> And here's my story : there was a small spot on each side of my

> thyroid that was pumping out thyroid juice overtime. The rest of my

> thyroid had died, and some was turning to mush to be integrated into

> the body, from being dead. All my blood work from almost 3 yrs ago,

> up to surgery, showed measurable thyroid juice was normal. The most

> noticeable sign I know now, that something was wrong with the

> thyroid, was a year and a half of diarrhea. I didn't go to the doc

> about that, until after a year and a half of it. Then shortly

> after, my very large thyroid was found on a CT scan that was looking

> for stuff in my abdomen, just accident it went up far enough to see

> the thyroid. Diarrhea cleared up after the removal.

>

> I had a diagnostic thyroid uptake scan, you go nuclear for that, it

> showed all the thyroid was cold except for 2 small hyper spots.

> That indicated a total thyroidectomy to my docs. Once opening me in

> surgery, my surgeon said my lobes were the size of tangerines, that

> since thyroid cancer grows slowly, it had been growing for years.

> Even with lobes that large, my biopsy, 6 sticks on each side, missed

> the cancer. The report said one side was benign, the other side

> suspicious. The pathology report after removal found the cancer,

> big areas of it.

>

> I have not liked collars touching my neck, and now in retrospect,

> can see it was cuz the pressure of the goiter. But it grew so

> slowly and so gradually, that I didn't know it to be anything other

> than the way things are. Drs thought I had a large neck. Now that

> the inflammed dying thyroid is out, my neck has reduced quite a bit

> in size, and apparently my face had been swollen too. Now that

> swelling has gone down some, I have wrinkles ! I prided myself for

> being 50 but not looking 50, but apparently the swelling kept

> wrinkled at bay. oh sigh.

>

> So, one thing I can do from my experience is to tell others, now, to

> press for imaging of their thyroid if it enlarges. Before my

> surgery, far too many docs quoted the statistics to me of how rarely

> goiters are cancer, well, mine was.

>

> If you want to hear any more from me, it's best to email me

> privately, off list. Now that I have recovered from my surgery and

> treatment, I don't go on the web that often any more.

>

> If it happens to turn out to be cancer, or removal suggested, there

> is the thyroid cancer support group. Their website is

> www.thyca.org From there are links to the email support group.

>

> And to all you others - last week I finally turned a major corner in

> reoovering from all this, and the me I know, is back - mind clarity,

> getting back to getting some tasks done during the day. It feels

> sooo good, and hope there is more improvement. 4 months post TT.

>

> US Jane

>

> > >

> > > Hi Aussie Jane

> > >

> > > LOL! Ok, I was just reading and trying to figure out

> > > Who Tina was ! LOL...

> > >

> > > So you would get it checked out huh?

> > > Boy so many appointments going on and I just saw her last

> Friday, but

> > > hadn¹t done Yoga since then kinda traded in my yoga mat for

> > weights lately

> > > To try and tone and lose weight... Darn it all...i will call

> Monday

> > and see

> > > if

> > > She will get me a lab referral for a sono....

> > >

> > > Thanks,

> > > Sue

>

March 11, 2006

it definitely sounds like you have a goiter. mine is so large that my ent and gp can feel it. you still can't see it... i would try both... if one doc says no, and the other doc says yes, then you can get some where... be persistant. with me, when i see my doc soon, i get to tell my doc that i'm starting to have trouble swallowing things like medications and have to grind them up to take them. i also feel this popping in my throat whenever i swallow. you have to be really subtle yet informative with doctors... since my primary wants my thyroid to come out, he's obviously won't come as a shock...

as for you, go tell your doc or call their office & leave a message and say i've noticed this... blah blah, this is what happens when i do this blah blah, i want to come see you about it. make an appointment and list possible goiter (which to me sounds like you have) docs know if you have a goiter it's probably only a matter of time (especially with nodules) that it will need to come out. tell your doc how you feel, especially tell him if on the days your neck bothers you, you feel worse... for some reason when we talk in medically smart jargon they will sometimes ignore then we have to revert to stupid patient routine and then they get it *shrug*... lol.

good luck and keep me updated,

Re: question for anyone about weird feeling in neck...

March 11, 2006

I'm about a month out from my appointment with my ent to discuss removal/biopsy/uptake scans... I joked around a year or so ago that it needed to come out... I'll be really happy to get it out, I have a feeling my body will do better without it. Not that I don't love my thyroid gland... but my body just doesn't feel right... like it's got something inside it... last time I felt that I had my gall bladder removed (per my request which turns out was almost ready to burst) then I got diagnosed with PKD and now doc wants to remove the thyroid... maybe I should be one of those medical intuitives *sigh* of course.. it only seems to work for myself lol.

I'm not really scared at all... but you know, do you think it's a strange request when they take my thyroid out to tell them I want to see it afterwards? I want to see the little buggar that has been giving me all this trouble lol.

Re: question for anyone about weird feeling in neck...

Hi Sue. I would be the "person" mentioned in this post from Aussie Jane. I am the other Jane, US Jane. Yeh, go to an endo. Most family docs don't know enough about dxing goiters, in my opinion. All I have is my experience, and medical stuff I've read since on the web, and learned from my endo, and others experiences with thyroid cancer from the Thyca support list. But, had I known what I know now, almost 3 yrs ago when during an annual physical, my family doc noted one side of my thyroid was large, I would have pressed to have a scan done of it. At the time, she ordered blood work, and since it came back as normal per thyroid, nothing else was done. And here's my story : there was a small spot on each side of my thyroid that was pumping out thyroid juice overtime. The rest of my thyroid had died, and some was turning to mush to be integrated into the body, from being dead. All my blood work from almost 3 yrs ago, up to surgery, showed measurable thyroid juice was normal. The most noticeable sign I know now, that something was wrong with the thyroid, was a year and a half of diarrhea. I didn't go to the doc about that, until after a year and a half of it. Then shortly after, my very large thyroid was found on a CT scan that was looking for stuff in my abdomen, just accident it went up far enough to see the thyroid. Diarrhea cleared up after the removal. I had a diagnostic thyroid uptake scan, you go nuclear for that, it showed all the thyroid was cold except for 2 small hyper spots. That indicated a total thyroidectomy to my docs. Once opening me in surgery, my surgeon said my lobes were the size of tangerines, that since thyroid cancer grows slowly, it had been growing for years. Even with lobes that large, my biopsy, 6 sticks on each side, missed the cancer. The report said one side was benign, the other side suspicious. The pathology report after removal found the cancer, big areas of it. I have not liked collars touching my neck, and now in retrospect, can see it was cuz the pressure of the goiter. But it grew so slowly and so gradually, that I didn't know it to be anything other than the way things are. Drs thought I had a large neck. Now that the inflammed dying thyroid is out, my neck has reduced quite a bit in size, and apparently my face had been swollen too. Now that swelling has gone down some, I have wrinkles ! I prided myself for being 50 but not looking 50, but apparently the swelling kept wrinkled at bay. oh sigh. So, one thing I can do from my experience is to tell others, now, to press for imaging of their thyroid if it enlarges. Before my surgery, far too many docs quoted the statistics to me of how rarely goiters are cancer, well, mine was. If you want to hear any more from me, it's best to email me privately, off list. Now that I have recovered from my surgery and treatment, I don't go on the web that often any more. If it happens to turn out to be cancer, or removal suggested, there is the thyroid cancer support group. Their website is www.thyca.org From there are links to the email support group. And to all you others - last week I finally turned a major corner in reoovering from all this, and the me I know, is back - mind clarity, getting back to getting some tasks done during the day. It feels sooo good, and hope there is more improvement. 4 months post TT. US Jane> >> > Hi Aussie Jane > > > > LOL! Ok, I was just reading and trying to figure out> > Who Tina was ! LOL...> > > > So you would get it checked out huh?> > Boy so many appointments going on and I just saw her last Friday, but> > hadn¹t done Yoga since then kinda traded in my yoga mat for> weights lately> > To try and tone and lose weight... Darn it all...i will call Monday> and see> > if > > She will get me a lab referral for a sono....> > > > Thanks,> > Sue

March 11, 2006

was in a training class a few months back and the manual was written in Australia so the spelling was a bit different... everyone thought the manual was wrong until the instructor corrected them lol. I know what you mean though Tina, I love accents... I went to a party this past weekend where I got to hear a Brit, Welshman, and Scot talk.... oh I was in heaven lol. I guess it's because large parts of my family were from Ireland and Germany (both with heavy accents)... it was such fun though....

Re: Re: question for anyone about weird feeling in neck...

Wow that is a temp it was about 48 degrees here it is getting warmer but it is taking longer than I would like I am a cold blooded person. I get teased all the time if it goes below 80 degrees I break out my parka.

oh well at least I am comfy when it is that warm.So Tell me Jane tell me something is it as expensive to live there as it is in parts of the USA ?

I know for a fact that parts of Canada is expensive. But there are alot of places in the USA that are high in taxes and stuff.California for one and Florida is another. I had a Nurse One time that worked at my Family Dr office andI would love to ask her questions just to hear her talk I love it ,it's just to cool. But she has long since moved on and I do miss her.

Well I just wanted to Introduce myself alittle bit since I was mistaken I guess for someone else. LOL That is okay I have the brain fog thing happeneing to. Tina

aussi_jane wrote:

-Hi Tina ! I am in South Australia and its 37 celcius today ( 100 F)Aussie Jane-- In The_Thyroid_Support_Group , Tina Hummel wrote:>> Hi Aussie Jane I am Tina. I live in Lebanon,Pennsylvania.> > jytdtp wrote: Hi Aussie Jane > > LOL! Ok, I was just reading and trying to figure out> Who Tina was ! LOL...> > So you would get it checked out huh?> Boy so many appointments going on and I just saw her last Friday, but> hadn't done Yoga since then – kinda traded in my yoga mat forweights lately> To try and tone and lose weight... Darn it all...i will call Mondayand see if > She will get me a lab referral for a sono.... > > Thanks,> Sue> > > > Hi Tina, I would get it checked. Better safe than sorry. I can't> recall the name of the test but its exactly as you descibe as appears> to be a Drs dx of growing size in a Goitre. Your Endo needs to be made> aware.> > >

March 11, 2006

Go to your endo, talk to your primary care, talk to anyone who will listen. Please keep me updated... If only I could loan you my mostly open minded doc... *sigh*. Good luck aussie Jane, you fight and kick and scream at them... tell them you've got some friends across the pond who mean business! .

Re: question for anyoneabout weird feeling in neck...> > > > > >

March 11, 2006

Hi Jane,

My symptoms stop as soon as I lower my hand or release elevation of the arm.

I have had the ultrasound and uptake scans and when she felt my thyroid she said

It felt smaller and my general doc said that a few months ago as well...

I don’t have any nodules that show up on the two sonos I have had...

I will call Monday to let her know to see how she wants to deal with it

I am guessing a scan is in order.... They had nothing to biopsy last time since

No lumps are on my thyroid, just the enlarged side...

Sue

Hi Sue ( got it right this time !),

Well - I am getting a 2nd opinion re my 'tight' feeling. As someone

pointed out to me - her thyroid cancer had very few symptoms. Blood

tests normal, Scan normal, 6 biopies before it was found. Always

something to keep in mind if you have concerns.

Your symptoms sounded exactly what my Dr described to me and what she

was looking for. Apparently I was OK although I dispute that. 1 hour

15 mins since I did that test ( again) and throat Goitre is still

throbbing, and voice is husky. I don't think that is normal ....

How long do your symptoms take to disappear if you do that movement

during Yoga ?

Aussie Jane

>

> Hi Aussie Jane

>

> LOL! Ok, I was just reading and trying to figure out

> Who Tina was ! LOL...

>

> So you would get it checked out huh?

> Boy so many appointments going on and I just saw her last Friday, but

> hadn’t done Yoga since then – kinda traded in my yoga mat for

weights lately

> To try and tone and lose weight... Darn it all...i will call Monday

and see

> if

> She will get me a lab referral for a sono....

>

> Thanks,

> Sue

>

March 11, 2006

Does goiter and pressure mean cancer? Or can you have goiter and pressure with no cancer?

I have no nodules to biopsy.. Two sonos have shown this... I dunno what to do...

Thanks,