RE: I REQUEST ALL OF YOUR FORGIVNESS AND HUMBELLY THANK YOU!!!

[Guest guest]

Bart,

There isn't anything to forgive - it wouldn't be right for support groups to

ignore others' hardships, and of course not everyday is going to be a good

one. Everyone of us feels like that at times, and the experiences change

every day.We can only wish for the best and take what comes.It could have

been anyone of us last Sunday trying to hold on for a bumpy ride. Between

life in general and these disorders you have a right to feel overwhelmed. By

no means should anyone apologize for that .

This is a community more like a family.Because we know from first hand

experience what life with motor neuron disorders is like we have a unique

understanding and are committed to lift each other up. That's how its

suppose to be.

When we read your post we took it seriously but we also knew that we did not

know enough information. In difficult times we can all say things stronger

than we mean them especially in email. We also knew that something

significant must be going on in your life and we need to help if we can.

I wish I could tell you that your story is unique. Unfortunately this list

has many broken dolls. They are broken not because of these disorders but

because they have been poorly handled by those who should have loved them

most. You can't endure pain that great and not have a lasting scar.I am sure

they will read your post and respond to you privately. Once again you will

discover you are not alone.

I personally believe that God is the ultimate parent and he wants his

children to chose him over Satan by their own choosing. The only way that is

possible is to give man free will. This free will is a choice between right

and wrong and this is why bad things happen to really great people.

So here are these beautiful broken dolls who stand defiant. They have

suffered the worst of man yet they stand for a God who cries for their pain

and rejoices in their praise. You are one of God's precious gifts that fills

his heart more than you could ever know. You have an incredible wife who

worries about you and shares the difficulties but thinks you are one heck of

a catch. What a blessing. You must be an awesome person to have someone who

carries such a brilliant torch for you.

Now here you are trying to reinvent yourself again and its not easy. Filing

bankruptcy is anew fashion trend here in the US we are up to our eyeballs in

debt. The lawyer was not that great but its a matter of time and that

headache will be gone and you are free to go about your life. Disability is

a huge financial hardship. We know all about that, and again, you're not

alone.Filing for SSDI you have a whole list to choose from. Its just playing

the game the governments way and it will come together.

As for the conference how much would it be for you to travel there on the

6th? It would be great for you to attend a conference to see a live in

person version of this list. What you take away is priceless. I wish we had

a scholarship program but we just are not big enough yet.At 2 years old we

are amazed we are this big. Even so we are not without power could you give

me a ballpark figure and where they should send the funds? Jimmy just said

he would give $200 to get you out of town. Would that help?

For now I wish you better days. And I thank you because with all that

adversity you are a great example of the human spirit.

As always Love and Admiration

Shell Fisch

_________________________________________________________________

Get a FREE online computer virus scan from McAfee when you click here.

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Bart,

There isn't anything to forgive - it wouldn't be right for support groups to

ignore others' hardships, and of course not everyday is going to be a good

one. Everyone of us feels like that at times, and the experiences change

every day.We can only wish for the best and take what comes.It could have

been anyone of us last Sunday trying to hold on for a bumpy ride. Between

life in general and these disorders you have a right to feel overwhelmed. By

no means should anyone apologize for that .

This is a community more like a family.Because we know from first hand

experience what life with motor neuron disorders is like we have a unique

understanding and are committed to lift each other up. That's how its

suppose to be.

When we read your post we took it seriously but we also knew that we did not

know enough information. In difficult times we can all say things stronger

than we mean them especially in email. We also knew that something

significant must be going on in your life and we need to help if we can.

I wish I could tell you that your story is unique. Unfortunately this list

has many broken dolls. They are broken not because of these disorders but

because they have been poorly handled by those who should have loved them

most. You can't endure pain that great and not have a lasting scar.I am sure

they will read your post and respond to you privately. Once again you will

discover you are not alone.

I personally believe that God is the ultimate parent and he wants his

children to chose him over Satan by their own choosing. The only way that is

possible is to give man free will. This free will is a choice between right

and wrong and this is why bad things happen to really great people.

So here are these beautiful broken dolls who stand defiant. They have

suffered the worst of man yet they stand for a God who cries for their pain

and rejoices in their praise. You are one of God's precious gifts that fills

his heart more than you could ever know. You have an incredible wife who

worries about you and shares the difficulties but thinks you are one heck of

a catch. What a blessing. You must be an awesome person to have someone who

carries such a brilliant torch for you.

Now here you are trying to reinvent yourself again and its not easy. Filing

bankruptcy is anew fashion trend here in the US we are up to our eyeballs in

debt. The lawyer was not that great but its a matter of time and that

headache will be gone and you are free to go about your life. Disability is

a huge financial hardship. We know all about that, and again, you're not

alone.Filing for SSDI you have a whole list to choose from. Its just playing

the game the governments way and it will come together.

As for the conference how much would it be for you to travel there on the

6th? It would be great for you to attend a conference to see a live in

person version of this list. What you take away is priceless. I wish we had

a scholarship program but we just are not big enough yet.At 2 years old we

are amazed we are this big. Even so we are not without power could you give

me a ballpark figure and where they should send the funds? Jimmy just said

he would give $200 to get you out of town. Would that help?

For now I wish you better days. And I thank you because with all that

adversity you are a great example of the human spirit.

As always Love and Admiration

Shell Fisch

_________________________________________________________________

Get a FREE online computer virus scan from McAfee when you click here.

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Bart

I have viewed this whole situation from the sidelines so to speak but

felt the need to drop you a note. Wasn't it wonderful finding out

there are good people attached to these e-mails?

I'm envious that you can take meds like Prozac. I cannot take ANY of

the SSRIs and must find different ways to pull myself up out of that

deep dark hole I can fall into.

While I am not Buddhist I have read the Dahlia Lama's Book of

Happiness and use many of the mental techniques mentioned to help.

I'm not saying that it's a quick fix but just one of many tools.

That book sits right beside another Life is an Attitude ( a humorous

piece on changing only your mental prospective on little things)

OK and if you must know when all else fails that daily face-washing

from by Beloved Jack dog works miracles.

Hang in There

Finding a way every day

Eva in WV

>

>

[Guest guest]

Bart,

This was written from the heart and I am sure most of appreciate the

bearing of the soul. We are privileged to have that type of confidence from

you. One thing I must say however is that FIGHT that feeling that you got

this disease because you are being punished. If you are then we all are and

you know first hand the spirit of many on this list. Do you really believe

that we are all so damned? If you are being punished for something, then

people who get ALS must really have been bad?

I don't want to get into a religious argument but if you feel you are being

punished it is so much easier to fall into depression and staying there

because " you deserve it " . I will leave this thought as an alternative, if

God gave you this, instead of punishment God gave it to you to test how you

will react. Maybe it's the equivalent of being thrown to the lions?

But back to you and your letter. Anyone who can write this is digging their

way out of " the pit " . It will be hard, I know I have been there and I'm

sure will slip back in now and then. But with the help of family, friends

and especially this list I and I know you will make it.

Hang in there Bart, we are here and keeping you in our thoughts.

dale

I REQUEST ALL OF YOUR FORGIVNESS AND HUMBELLY THANK

YOU!!!

> Ok Ya'll; I guess it is time for some explaining. First of all,

Thanks for everyone's concerns of my last written post on Sunday. I really

didn't know that you all cared as much for people whom you have never