Seeking Teen Pen Pal with IgAN

[Guest guest]

Hi -

My 12 year old daughter has IgAN and I am seeking an email pen pal for her

that also has IgAN. As a concerned mom, I'd like to talk to the parent of

the respondant before I give my daughter's email address. Please respond

to this email or call me at the number listed below.

My daughter doesn't know anyone else with IgAN and it will be helpful for

her to have someone to talk to that knows first hand what she is going through.

Thanks for your support.

Kate Koziol, CTC

Fusion Marketing and Public Relations

a K Squared Communications Company

www.fusionmarketingpr.com

www.ksqrd.com

kkoziol@...

[Guest guest]

Welcome to the group Kate. Glad to see you made your way here. I do hope

some of the IgAN mothers (or fathers, but we do seem to have mostly mothers

here) will contact you. Let us know how it goes.

Pierre

Seeking Teen Pen Pal with IgAN

>

> Hi -

> My 12 year old daughter has IgAN and I am seeking an email pen pal for her

> that also has IgAN. As a concerned mom, I'd like to talk to the parent of

> the respondant before I give my daughter's email address. Please respond

> to this email or call me at the number listed below.

>

> My daughter doesn't know anyone else with IgAN and it will be helpful for

> her to have someone to talk to that knows first hand what she is going

through.

>

> Thanks for your support.

>

> Kate Koziol, CTC

> Fusion Marketing and Public Relations

> a K Squared Communications Company

> www.fusionmarketingpr.com

> www.ksqrd.com

> kkoziol@...

[Guest guest]

Welcome to the group Kate. Glad to see you made your way here. I do hope

some of the IgAN mothers (or fathers, but we do seem to have mostly mothers

here) will contact you. Let us know how it goes.

Pierre

Seeking Teen Pen Pal with IgAN

>

> Hi -

> My 12 year old daughter has IgAN and I am seeking an email pen pal for her

> that also has IgAN. As a concerned mom, I'd like to talk to the parent of

> the respondant before I give my daughter's email address. Please respond

> to this email or call me at the number listed below.

>

> My daughter doesn't know anyone else with IgAN and it will be helpful for

> her to have someone to talk to that knows first hand what she is going

through.

>

> Thanks for your support.

>

> Kate Koziol, CTC

> Fusion Marketing and Public Relations

> a K Squared Communications Company

> www.fusionmarketingpr.com

> www.ksqrd.com

> kkoziol@...

[Guest guest]

Hi Kate. My daughter is just turned nine recently. You may be looking for

someone a little bit older and I don't know how my daughter would feel about

it. My daughter was diagnosed in March of this year through a biopsy. She

has been on two rounds of cytoxin (mild dose of chemo) and steroid therapy

since March. She's been through gaining about 30 pounds and we've been in

the hospital for ten days off and on. She's still on steroid treatment. We

are however down to 11 ml every other day. That's awesome compared to being

on 21 ml every day. Anyway, we're down to not having any protein in our

urine and we started out at 3+. So, after ten months, we are seeing great

improvements. It's hard seeing your child face so much. I feel so helpless

a lot of days. I don't know what kind of treatment your daughter is on, but

I'll say a prayer for her every day and you. Good luck and god bless.

Tara

Seeking Teen Pen Pal with IgAN

Hi -

My 12 year old daughter has IgAN and I am seeking an email pen pal for her

that also has IgAN. As a concerned mom, I'd like to talk to the parent of

the respondant before I give my daughter's email address. Please respond

to this email or call me at the number listed below.

My daughter doesn't know anyone else with IgAN and it will be helpful for

her to have someone to talk to that knows first hand what she is going

through.

Thanks for your support.

Kate Koziol, CTC

Fusion Marketing and Public Relations

a K Squared Communications Company

www.fusionmarketingpr.com

www.ksqrd.com

kkoziol@...

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi Kate. My daughter is just turned nine recently. You may be looking for

someone a little bit older and I don't know how my daughter would feel about

it. My daughter was diagnosed in March of this year through a biopsy. She

has been on two rounds of cytoxin (mild dose of chemo) and steroid therapy

since March. She's been through gaining about 30 pounds and we've been in

the hospital for ten days off and on. She's still on steroid treatment. We

are however down to 11 ml every other day. That's awesome compared to being

on 21 ml every day. Anyway, we're down to not having any protein in our

urine and we started out at 3+. So, after ten months, we are seeing great

improvements. It's hard seeing your child face so much. I feel so helpless

a lot of days. I don't know what kind of treatment your daughter is on, but

I'll say a prayer for her every day and you. Good luck and god bless.

Tara

Seeking Teen Pen Pal with IgAN

Hi -

My 12 year old daughter has IgAN and I am seeking an email pen pal for her

that also has IgAN. As a concerned mom, I'd like to talk to the parent of

the respondant before I give my daughter's email address. Please respond

to this email or call me at the number listed below.

My daughter doesn't know anyone else with IgAN and it will be helpful for

her to have someone to talk to that knows first hand what she is going

through.

Thanks for your support.

Kate Koziol, CTC

Fusion Marketing and Public Relations

a K Squared Communications Company

www.fusionmarketingpr.com

www.ksqrd.com

kkoziol@...

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you