Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Sometimes my toe joint(s) get so swollen during a flare up it can cause my toe joints or ankles to hurt and feel like they are jammed. Just my experience. Cortnee ksamedifference <ksamedifference@...> wrote: Has anyone had or heard of your big toe hurting like a really bad cramp w/o an actual cramp and/or it switching to your like archilles tendon? I'm having a heck of a time with it. My toe is a lot better but, the tendon or that area anyhow is crappy! I've had the problem with my toe b4 but never with the back of my ankle. Just wondering....Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 What drugs are you taking, ? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] question >I just got a call from my rheumy, and he told me my chest xray from couple > days ago is showing I have Right upper lobe pneumonia. Is this common for > people with RA? I don't feel sick like that. I have had pneumonia in the > past and its a feeling you just don't ever forget. But this is different. > I > just feel like I may have a cold or something. No fever either. Just > around > 99- 99.4 Before it was up to 104. > > Just wondering if this is something that we get more frequent and easier. > > > > BTW: Today is the first day of fall. So Happy Fall everyone! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 prednisone 4mg 2 daily and plaquinil. I have only been on these meds just over a week. Last week was my first visit with my rheumy and officially diagnosed with RA -- Re: [ ] question What drugs are you taking, ? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] question >I just got a call from my rheumy, and he told me my chest xray from couple > days ago is showing I have Right upper lobe pneumonia. Is this common for > people with RA? I don't feel sick like that. I have had pneumonia in the > past and its a feeling you just don't ever forget. But this is different. > I > just feel like I may have a cold or something. No fever either. Just > around > 99- 99.4 Before it was up to 104. > > Just wondering if this is something that we get more frequent and easier. > > > > BTW: Today is the first day of fall. So Happy Fall everyone! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 , have you told your rheumatologist exactly how bad the pain is and how it is interfering with your daily functioning? He/she might increase the MTX or add another DMARD. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] question >i have been diagnosed with ra but i have a question about the pain > there is times when i will have severe pain in my knees and i can > bairly walk and i have to take major pain meds to just take the edge > off of the pain and then the next day i feel drained and not able to > do anything (i also have pain in my hands just started about 10 > months ago) > > Like yesterday i eas having such bad pain i thought about getting > out the cruches to help me walk because of the pain and then this > morming i feel like i'm in a fog and i feel like me arms and legs > are like cement and they are stiff but not to much pain today (so > far) is this normal or not or is it something different then ra the > medications that i'm on right now is mtx 2.5 mg i take 5 tablets > weekly and folic acid 1mg daily and elavil 25 mg at night and > vicoden es or tyl #3 for the pain when needed > > > > sorry for the questions in advance > > melissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 not yet this is the first time sence i have been seeing him ( 3 months ) that it has been this bad. and today is starting to get to the same way that yesterday was but he mentioned that if this doesn't work next month when i come in we will talk about adding injections( i have no clue what kind ) > , have you told your rheumatologist exactly how bad the pain is and > how it is interfering with your daily functioning? He/she might increase the > MTX or add another DMARD. > > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 , I am brand new to RA (July diagnosis, March is when the pain started) My MD just gave me a pain med and referred me to a rheumatologist. I was put on prednisone to get my pain controlled, plus Relafen for pain and swelling and Tramadal for pain and Arava. The prednisone was a godsend (although temporary) until the Arava could get to work. I am also now on Enberel injections and weaning off of the Prednisone. My Dr. was an angel from heaven. My body was completely racked with pain and I had a newborn baby to take care of. I could barely walk or move my arms, hands knees or shoulders. I thought that I would die. She said we would could get this all under control and that I would have a normal life again. I still have some stiffness on some mornings but not always. If your Dr. doensn't understand your pain (which I thought no one could) you should find one that does. There is relief for us out there. I am afraid of the pain coming back but for now my life is completely livable and enjoyable again. Good luck, Abby > > i have been diagnosed with ra but i have a question about the pain > there is times when i will have severe pain in my knees and i can > bairly walk and i have to take major pain meds to just take the edge > off of the pain and then the next day i feel drained and not able to > do anything (i also have pain in my hands just started about 10 > months ago) > > Like yesterday i eas having such bad pain i thought about getting > out the cruches to help me walk because of the pain and then this > morming i feel like i'm in a fog and i feel like me arms and legs > are like cement and they are stiff but not to much pain today (so > far) is this normal or not or is it something different then ra the > medications that i'm on right now is mtx 2.5 mg i take 5 tablets > weekly and folic acid 1mg daily and elavil 25 mg at night and > vicoden es or tyl #3 for the pain when needed > > > > sorry for the questions in advance > > melissa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 I have a question....sometimes....I feel a bit out of sync here...I am the adopted mom of 3 kids. These kids were damaged by drugs and alcohol before birth....the vaccinations after birth....and a substantial....incredible would be a better word....amount of abuse..any kind you can think of...and some of this you would have to be pretty creative to think of. Are there other parents like me here??? Some of their problems seem so odd...I know that a lot aren't but sometimes I feel like the lone ranger here.....oops I guess Tonto...since I am an Indian.....lol Sometimes I feel lost and like we will never get thru this....I have 3 older kids at home who are effected by vaccines They try to help...but sometimes these problems...esp the rages and the selfishness that is so extreme are sooooooooo wearing....on the little kiddos...the older ones..and me. Sometimes we seem to be in a pit so deep that I can't find a way out of this for us.... There is no support in place and I am relying on a few people on the web for support. I am sorry if this seems like a major whine....the holidays are coming....and they are always and all ways so difficult. I know that this is important...so I fight every day to keep on keeping on...right now I am just in a bad spot...and would like to hear from others that have kiddos that have recovered or that are doing this with these kinds of kiddos... I would never want to give them up...but I am scared I won't be able to help them or will mess it up. (snuffle snuffle) Ok I am thru with my whine. :-) Thanks for listening. Ronni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 This may give you some more ideas. _SENSORY INTEGRATION ACTIVITIES_ (http://www.juststeve.com/a/OTResources/siact.htm) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 One of the best things the teacher ever did was put my son in front of the classroom with only one peer sitting next to him. He is not in complete isolation, but is not distracted by others who are moving about. He can see/hear the teacher MUCH better. He is mainstreamed for even the tests, so having less distraction has kept his grades at a satisfactory level. > > I'm writing up concerns reguarding O.T. and sensory issues (again) and > I dont want to leave anything out. I was woundering if anyone can > write in some of their concerns with their childs sensory or O.T. > issues so, if it relates, I can add to my list. I have a list started > but don't want to leave anything out. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Thank you, I think they are working on this site. ppanda65@... wrote: This may give you some more ideas. _SENSORY INTEGRATION ACTIVITIES_ (http://www.juststeve.com/a/OTResources/siact.htm) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Does your son have any concerns with sensory issues? example, does he like to jump on things, tight hugs, don't like tags on his shirt, other? any with OT? problems tying his shoes, zippers, writing, other? thanks LJL <laura6307@...> wrote: One of the best things the teacher ever did was put my son in front of the classroom with only one peer sitting next to him. He is not in complete isolation, but is not distracted by others who are moving about. He can see/hear the teacher MUCH better. He is mainstreamed for even the tests, so having less distraction has kept his grades at a satisfactory level. > > I'm writing up concerns reguarding O.T. and sensory issues (again) and > I dont want to leave anything out. I was woundering if anyone can > write in some of their concerns with their childs sensory or O.T. > issues so, if it relates, I can add to my list. I have a list started > but don't want to leave anything out. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Noise is his biggest distractor. He can't concentrate. He has problems with his privates - he feels every sensation on his penis - he cannot stand it unless it is in one position, and he has no problem with others viewing him adjusting it. His lips bug him, so he has his hands constantly near his mouth. He can't tie his shoes. In fact, it has only been recently that he has wiped his own behind. > > Does your son have any concerns with sensory issues? example, does he like to jump on things, tight hugs, don't like tags on his shirt, other? any with OT? problems tying his shoes, zippers, writing, other? thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 My son does not want to tie his shoes, so he leaves them tied and slips them onto his feet. if they come untied, that's how they will stay. He has trouble using a fork & knife at the same time, he will get frustrated. he also has trouble with transitions, Has high tolerance to pain. while doing a puzzle, he won't turn the piece to make it fit. craves physical sensations, like strong hugs, likes very fast movement, rides a bike fast without any concern for safety, rollercosters, and Rollerblades at fast speed. While in the shower, will let the water hit his chest in the same spot until I tell him to finish washing. Can stay in a pool for hours. I've never met anyone with some of the concerns your son has. That sounds like a tough one. Can it be the detergent you use for his clothes or the clothes are not soft enough? LJL <laura6307@...> wrote: Noise is his biggest distractor. He can't concentrate. He has problems with his privates - he feels every sensation on his penis - he cannot stand it unless it is in one position, and he has no problem with others viewing him adjusting it. His lips bug him, so he has his hands constantly near his mouth. He can't tie his shoes. In fact, it has only been recently that he has wiped his own behind. > > Does your son have any concerns with sensory issues? example, does he like to jump on things, tight hugs, don't like tags on his shirt, other? any with OT? problems tying his shoes, zippers, writing, other? thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 It is hard to get everything in one IEP meeting. My sons needs change pretty frequently so I usually call an IEP meeting whenever I notice changes. I don't know how the school likes it but oh well, That's what works for us. It is your right to call on IEP whenever you need to make changes that are worth calling one for if you know what I mean. Your doing everything you can. Write a parents concerns sheet out if you have time and make copies for everyone in the meeting. When they ask you do you have parental concerns which they will it's the law that they ask, just start going through your list. Until they are addressed don't let them move forward. Check them of one by one when you know they are included in the IEP. If the meeting takes longer than they expected don't feel rushed. You can always ask that they reconveine until your satisfied. Let us know how it goes and I will pray for you and your family. Try and relax. I know easier said than done. You'll do just fine and will learn more and More in time just like we all have. Take Care! Ann ( ) Question I'm writing up concerns reguarding O.T. and sensory issues (again) and I dont want to leave anything out. I was woundering if anyone can write in some of their concerns with their childs sensory or O.T. issues so, if it relates, I can add to my list. I have a list started but don't want to leave anything out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 This site was helpful. Thanks,Ann Re: ( ) Question This may give you some more ideas. _SENSORY INTEGRATION ACTIVITIES_ (http://www.juststeve.com/a/OTResources/siact.htm) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Your son sounds exactly like mine, Jordan. It definitely sounds like he has sensory issues. Check out the websites some else posted. They are very good. And he probably will benefit from OT therapy. Ann Re: ( ) Re: Question My son does not want to tie his shoes, so he leaves them tied and slips them onto his feet. if they come untied, that's how they will stay. He has trouble using a fork & knife at the same time, he will get frustrated. he also has trouble with transitions, Has high tolerance to pain. while doing a puzzle, he won't turn the piece to make it fit. craves physical sensations, like strong hugs, likes very fast movement, rides a bike fast without any concern for safety, rollercosters, and Rollerblades at fast speed. While in the shower, will let the water hit his chest in the same spot until I tell him to finish washing. Can stay in a pool for hours. I've never met anyone with some of the concerns your son has. That sounds like a tough one. Can it be the detergent you use for his clothes or the clothes are not soft enough? LJL <laura6307@...> wrote: Noise is his biggest distractor. He can't concentrate. He has problems with his privates - he feels every sensation on his penis - he cannot stand it unless it is in one position, and he has no problem with others viewing him adjusting it. His lips bug him, so he has his hands constantly near his mouth. He can't tie his shoes. In fact, it has only been recently that he has wiped his own behind. > > Does your son have any concerns with sensory issues? example, does he like to jump on things, tight hugs, don't like tags on his shirt, other? any with OT? problems tying his shoes, zippers, writing, other? thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I am not sure. We have tried every version of underwear out there, different detergents, and baby powder when it is really bad. He says 'it is sticky' so the baby powder at least works temporarily. We watched him in a music program last night. You know, I really should not complain. He did everything all the other kids did! Yet, he also touched his privates once and had his fingers in his mouth, too. At least I knew I was surrounded by people who knew he has autism and were not finger pointing. > > I've never met anyone with some of the concerns your son has. That sounds like a tough one. Can it be the detergent you use for his clothes or the clothes are not soft enough? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Dear , I wish I had a lot of suggestions to officer, But right now I don't. I do hope other people write in with suggestions. How old is your son? I'm worried that when he gets in older grades and with different children, they " will " point fingers and they will tease. that might cause your son not to want to go to school and even more social problems. I know your must of tried so many things. Have you had him check out by his medical doctor to rule out any medical concerns: urine infection, boy problems? I'm sure you even tried different material underwear. What about silk? and very loose, like boxers? I'm sure you tried that too. That must be so very uncomfortable for your son. again, I do hope people write in with suggestions. Happy Holidays - Rose LJL <laura6307@...> wrote: I am not sure. We have tried every version of underwear out there, different detergents, and baby powder when it is really bad. He says 'it is sticky' so the baby powder at least works temporarily. We watched him in a music program last night. You know, I really should not complain. He did everything all the other kids did! Yet, he also touched his privates once and had his fingers in his mouth, too. At least I knew I was surrounded by people who knew he has autism and were not finger pointing. > > I've never met anyone with some of the concerns your son has. That sounds like a tough one. Can it be the detergent you use for his clothes or the clothes are not soft enough? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Rose, Ethan has a secondary diagnosis of OCD, and his neuro doc thought the penis touching was a sensory issue that because we made a big deal out of it made it worse in that it makes him think about his penis more. I dunno. He does not seem to want his penis to stick to his testicles. We have asked him to position it upwards, which drives him nuts. He wants it in one position, and that position has it touching his testicles, which then get 'sticky'. I have asked the school staff to let me know what the other kids are doing, and they first told me they had not witnessed it, and then upon observation acknowledged it was happening but told me the kids appear unaware. I am hoping that Ethan will get past this by next near. He took a solid year to work his way through the finger up the nose stage in preschool. Thanks, > > Dear , > I wish I had a lot of suggestions to officer, But right now I don't. I do hope other people write in with suggestions. How old is your son? I'm worried that when he gets in older grades and with different children, they " will " point fingers and they will tease. that might cause your son not to want to go to school and even more social problems. I know your must of tried so many things. Have you had him check out by his medical doctor to rule out any medical concerns: urine infection, boy problems? I'm sure you even tried different material underwear. What about silk? and very loose, like boxers? I'm sure you tried that too. That must be so very uncomfortable for your son. again, I do hope people write in with suggestions. Happy Holidays - Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 , I also hope this will pass too. best wishes, Happy Holidays -Rose. LJL <laura6307@...> wrote: Rose, Ethan has a secondary diagnosis of OCD, and his neuro doc thought the penis touching was a sensory issue that because we made a big deal out of it made it worse in that it makes him think about his penis more. I dunno. He does not seem to want his penis to stick to his testicles. We have asked him to position it upwards, which drives him nuts. He wants it in one position, and that position has it touching his testicles, which then get 'sticky'. I have asked the school staff to let me know what the other kids are doing, and they first told me they had not witnessed it, and then upon observation acknowledged it was happening but told me the kids appear unaware. I am hoping that Ethan will get past this by next near. He took a solid year to work his way through the finger up the nose stage in preschool. Thanks, > > Dear , > I wish I had a lot of suggestions to officer, But right now I don't. I do hope other people write in with suggestions. How old is your son? I'm worried that when he gets in older grades and with different children, they " will " point fingers and they will tease. that might cause your son not to want to go to school and even more social problems. I know your must of tried so many things. Have you had him check out by his medical doctor to rule out any medical concerns: urine infection, boy problems? I'm sure you even tried different material underwear. What about silk? and very loose, like boxers? I'm sure you tried that too. That must be so very uncomfortable for your son. again, I do hope people write in with suggestions. Happy Holidays - Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 , corn starch might work better than the baby powder. So - does he wear briefs (guessing from what you said)? I guess he doesn't like boxers. One of my sons went through a " thing " where he began buying pants that I felt were too baggy, and it was all due to the feeling in " that " area. I wasn't seeing his penis anymore by that age (late elementary school) and in my mind was wondering was he " gifted " in that area or something, LOL! Anyway, I recall just shrugging and letting him get what he wanted and it finally passed, but I'd say it lasted a school year. > > I am not sure. We have tried every version of underwear out there, > different detergents, and baby powder when it is really bad. He > says 'it is sticky' so the baby powder at least works temporarily. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Yes, he wears briefs. Boxers caused all kinds of other problems in addition to his penis 'flopping'. I'll try corn starch. Thanks! > > , corn starch might work better than the baby powder. So - does > he wear briefs (guessing from what you said)? I guess he doesn't > like boxers. > > One of my sons went through a " thing " where he began buying pants > that I felt were too baggy, and it was all due to the feeling > in " that " area. I wasn't seeing his penis anymore by that age (late > elementary school) and in my mind was wondering was he " gifted " in > that area or something, LOL! Anyway, I recall just shrugging and > letting him get what he wanted and it finally passed, but I'd say it > lasted a school year. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 I only have and aim so if you can get on any of these please feel free to chat with me..I know how it is to need to talk to someone..darker_goddess <darker_goddess@...> wrote: Hey if anyone has MSN chat please add me. My email is Little_devil_with_a_halo@...my messenger is not working so please add me. I really kinda need someone to talk toJan Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 > I don't understand something. Cancer seems to be the hardest disease > of all to cure for mainstream medicine. But Hulda does it in a > matter of days...weeks at most. I read a serious review of the cases presented in one of her books, and some of the claimed successes were apparently inconclusive on follow-up. Duncan Crow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 I find that Dr. 's suggestion to clean up the body, which makes it obviously stronger, makes perfect sense in all instances. In the case of cancer though some cells have stopped going through apoptosis, the process where they die and get replaced every four months or so, and just reproduce without limit or order. I figure that at that level perhaps the body can use some help in restarting this orderly death and replacement process. I had tried ellagic acid among the rest but saw no tangible results. I am told that a pale white discharge from the growth may be a sign that the cancer is dying and puking its little guts out. I have started seeing this out of my bladder cancer now that I take a combination of Cantron, chlorophyll and Paw Paw, and use an EM+ plasma device. I plan to continue using a modified version of Dr. 's 21 day cancer regimen (everything except for vitamins A, C, D and E, selenium and thyroid support capsules), and use this for its duration, give my body a couple of weeks rest, then start it over. I have began to gain weight (and someone who is " terminal " and going through a nasty chemo drug cocktail like me should be still losing weight) and my energy level is better every day. I speak daily through email to DOZENS of former cancer sufferers, people who had been told to get their affairs in order. And even I myself had been told that I would not see this past summer. Instead now the oncologist casually mentions that I may be termed " cancer free " or close to " cancer free " come the middle of February. Cancer may be indeed cured within days, but a terminal case like me might just need to hedge his bets. Luigi Re: Question >> I don't understand something. Cancer seems to be the hardest disease >> of all to cure for mainstream medicine. But Hulda does it in a >> matter of days...weeks at most. > > I read a serious review of the cases presented in one of > her books, and some of the claimed successes were apparently > inconclusive on follow-up. > > Duncan Crow > > > > Quote Link to comment Share on other sites More sharing options...
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