Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Aisha, we were told not to bother you ...that you were too sick to be bothered and so that is what we did. Somehow this is a terrible misunderstanding....I even wrote you a note this weekend and was going to post it in the mail. Well, I will still send it...and hope you will forgive us for somehow screwing this up. All we can do is ask your forgiveness ..... love S.Aisha Elderwyn wrote: Dear All, I'm making some changes in the way that I am involved with this list in my life. Firstly, Rose and , I'd like to thank you for being the only people in the entire community to even bother answering my post despite how busy you were. I appreciate your love and support. I also really needed your love and support. I have posted messages to offer advice (as I always used to do) and now that I need help because I am in a flare and am taking & starting medication that is scary, there is no support for me. That hurts guys. I once used to love participating in this list, but now when I come here I feel like I do not belong. Am I just supposed to answer questions and support others? Sorry but to me a support group is for everyone, including me and I can't take this. I've given so much to many, and I feel that right now when I need support I'm getting just about nothing in return. It just stresses me out now. And I hate that, so I'm making the changes needed in my life to remove the stress. I have decided it is in my best interests to only be involved in this community in an administrative way. I won't be posting about my illness on the list. If you want to keep in touch you are welcome to read & comment in my journal or write to me as this is my email address. Sometimes though change is often good and needed in our lives. Often it is this change that we need. Be well & know I care.Love Aisha. Aisha Elderwyn Email: tofufae@... Yahoo: tofufae Aol IM: tofufae Journal: http://aisha.livejournal.com "There will always be someone better or worse off than you, but that makes no difference to how you are feeling right now. How you are feeling is valid and important. Remember we are all equal." Find local movie times and trailers on Yahoo! Movies.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Aisha, we were told not to bother you ...that you were too sick to be bothered and so that is what we did. Somehow this is a terrible misunderstanding....I even wrote you a note this weekend and was going to post it in the mail. Well, I will still send it...and hope you will forgive us for somehow screwing this up. All we can do is ask your forgiveness ..... love S.Aisha Elderwyn wrote: Dear All, I'm making some changes in the way that I am involved with this list in my life. Firstly, Rose and , I'd like to thank you for being the only people in the entire community to even bother answering my post despite how busy you were. I appreciate your love and support. I also really needed your love and support. I have posted messages to offer advice (as I always used to do) and now that I need help because I am in a flare and am taking & starting medication that is scary, there is no support for me. That hurts guys. I once used to love participating in this list, but now when I come here I feel like I do not belong. Am I just supposed to answer questions and support others? Sorry but to me a support group is for everyone, including me and I can't take this. I've given so much to many, and I feel that right now when I need support I'm getting just about nothing in return. It just stresses me out now. And I hate that, so I'm making the changes needed in my life to remove the stress. I have decided it is in my best interests to only be involved in this community in an administrative way. I won't be posting about my illness on the list. If you want to keep in touch you are welcome to read & comment in my journal or write to me as this is my email address. Sometimes though change is often good and needed in our lives. Often it is this change that we need. Be well & know I care.Love Aisha. Aisha Elderwyn Email: tofufae@... Yahoo: tofufae Aol IM: tofufae Journal: http://aisha.livejournal.com "There will always be someone better or worse off than you, but that makes no difference to how you are feeling right now. How you are feeling is valid and important. Remember we are all equal." Find local movie times and trailers on Yahoo! Movies.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Aisha, I have only posted a couple of times and you are the only one I remember who answered or replied to them. I would have written to you, but someone posted on here that you were not to be bothered and we would be updated as to your situation. At the time, I thought that was the time you needed everyone's support the most, but I believe we all wanted to honor your wishes. I wish you well and hope you understand the misunderstanding that happened. You have a lot of friends on this support site and would hate to see you go it alone. Thinking of you. Cheryl Engel > Dear All, > I'm making some changes in the way that I am involved with this list in my life. > Firstly, Rose and , I'd like to thank you for being the only people in the entire community to even bother answering my post despite how busy you were. I appreciate your love and support. I also really needed your love and support. > I have posted messages to offer advice (as I always used to do) and now that I need help because I am in a flare and am taking & starting medication that is scary, there is no support for me. That hurts guys. I once used to love participating in this list, but now when I come here I feel like I do not belong. > Am I just supposed to answer questions and support others? Sorry but to me a support group is for everyone, including me and I can't take this. I've given so much to many, and I feel that right now when I need support I'm getting just about nothing in return. It just stresses me out now. And I hate that, so I'm making the changes needed in my life to remove the stress. > I have decided it is in my best interests to only be involved in this community in an administrative way. I won't be posting about my illness on the list. If you want to keep in touch you are welcome to read & comment in my journal or write to me as this is my email address. > Sometimes though change is often good and needed in our lives. Often it is this change that we need. > Be well & know I care. > Love Aisha. > > > > > Aisha Elderwyn > Email: tofufae@y... > Yahoo: tofufae > Aol IM: tofufae > Journal: http://aisha.livejournal.com > > " There will always be someone better or worse off than you, but that makes no difference to how you are feeling right now. How you are feeling is valid and important. Remember we are all equal. " > > > > > > --------------------------------- > Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Aisha, Sweetheart! The only reason I haven't answered your posts is because it was my understanding that you didn't want contact right now! I'm so sorry if that wasn't the case - I've been sending you Love every day, even though I haven't said anything! Not for ANY reason would I want you to feel I don't care! You have a special place in my Heart at all times! Because I've been working 10-14 hour days, now, I've not had a lot of time to read the posts, so maybe I'm behind the times... Please, though, never doubt that you're Loved and supported! I hope this flare is short and that meds can be found that will make a world of difference in how you feel! Love, Jeri Quote Link to comment Share on other sites More sharing options...
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