Guest guest Posted November 16, 2001 Report Share Posted November 16, 2001 Hi All, I thought I would share this post with you from someone from the mastocytosis egroup. I thought some of you might relate to what she has to say and the movie she suggests sounds very good and I will try to find it myself. Love, ~Alena's Mom Hi everyone ~ I believe nothing happens in my life is by accident & the events of tonight let me know this in a very special way. The last 3 years have been extremely hard for me because of my developing sensitivity to the environment ~ chemicals, odors, heat, cold, dust, molds, spores, etc. I've also developed allergic reactions to medications I've taken all my life, as well as most foods. It seems that smells are now my biggest trigger. After my ER visit I slept all afternoon so I was unable to sleep tonight. I decided to watch a cable movie, which is called "Safe" with nne . It's an independent film, one I've never seen before. The film addressed a woman's journey into the world of Multiple Chemical Sensitivities & her battle to gain understanding of the enemy within. Her doctor says it's in her head. Her husband doesn't understand. Friends avoid her. She feels abandoned & lost. Sound familiar? The parallels between her battles & those fought by masto patients are obvious. I'm not talking similarity in symptoms, even though they exist, but similarity in the emotions we feel & the losses we suffer because of our disease. If you watch this movie you'll see the parallels clearly. I urge you to get a copy from your local video store. If they don't have it, ask them to order it for you. Do a search & try to find it online. This is an excellent film for support groups to watch & discuss. I'm going to try & tape the movie the next time it comes on. There's more to learn from this movie that I missed tonight because I was too busy relating it to my own life. The movie's slow in spots because the director successfully attempts to build empathy for the character. It's an emotional ride because it hits so close to home so have Kleenex handy. It ends with nne looking at herself in the mirror, saying, "I love you....I love you..." Accepting who we are now, disability and all, is the beginning of the healing process. I hope you'll find the movie as enlightening as I did ~ and God bless those who thought this subject worthy of their talents. (((hugs))) Jane Quote Link to comment Share on other sites More sharing options...
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