Re: Molly Ring - PT

[Guest guest]

Hi Sally, I'm glad that I could be of help. However, please be careful in thinking about the vestibulectomy. At least have PT before you have the surgery if you do. Also, please keep looking for a PT in your area. Perhaps email www.pelvicpainrehab.com and see if they've trained anyone. love, Mollysally_bibb wrote: Hi Molly - a while back you responded to one of my e-mails

about PT. It got me thinking again and I put it on my list. You know, that never ending list of things I'm researching, people I'm calling, things I'm checking back on, etc. I called one of our local PT offices asked if anyone worked with pelvic pain. The PT who called me back does not do myofacial release, which was the technique that the PT in Seattle used that helped me before. But, she told me that she had a good friend in town who has vvs and who she was sure would be willing to talk to me. This woman has had a successful vestibulectomy. I was amazed - somebody in my same town! I have never actually met any woman face-to-face with anything like what I have. My first connection with people with these problems is through this group and I am so grateful for all of you. But, it's very cool to think that there is someone here I could actually met and talk with. Anyway, I just wanted to thank you for your

encouragement to check back into PT because, even though I didn't find anyone here who can do much for me, I did find a very unexpected local resource. I also think that I am going back to the Seattle PT the next time I get there and just get a reassessment and stay in touch with that avenue of treatment. It just goes to show that you never know what you'll find out when you make an inquiry. I can't give up on my list! Something's out there. Sally

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Hi Molly - I appreciate your point about the surgery. That would be

a very big step for me, because I'm a " murphy's law " kind of person.

I was just so glad to find someone local to talk to, although I

haven't actually talked to her yet. I live in Juneau, Alaska -

fairly isolated town of 30,000. No PTs in this town who can deal

with this problem. It requires travel to Seattle, I'm afraid, which

means that there's no chance of regular visits.

> Hi Molly - a while back you responded to one of my e-

mails about

> PT. It got me thinking again and I put it on my list. You know,

> that never ending list of things I'm researching, people I'm

> calling, things I'm checking back on, etc. I called one of our

> local PT offices asked if anyone worked with pelvic pain. The PT

> who called me back does not do myofacial release, which was the

> technique that the PT in Seattle used that helped me before. But,

> she told me that she had a good friend in town who has vvs and who

> she was sure would be willing to talk to me. This woman has had a

> successful vestibulectomy. I was amazed - somebody in my same

> town! I have never actually met any woman face-to-face with

> anything like what I have. My first connection with people with

> these problems is through this group and I am so grateful for all

of

> you. But, it's very cool to think that there is someone here I

> could actually met and talk with. Anyway, I just wanted to thank

> you for your encouragement to check back into PT because, even

> though I didn't find anyone here who can do much for me, I did find

> a very unexpected local resource. I also think that I am going back

> to the Seattle PT the next time I get there and just get a

> reassessment and stay in touch with that avenue of treatment. It

> just goes to show that you never know what you'll find out when you

> make an inquiry. I can't give up on my list! Something's out

> there.

>

> Sally

>

>

>

>

>

>

> ---------------------------------

> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

[Guest guest]

Hi Sally, Wow, you live in Alaska? What do you do for work if you can work? Do you have a boyfriend or husband? Is it possible that sometime he could travel to Seattle and be trained on how to do PT on you? My husband still does PT on me about once a month. love, Mollysally_bibb wrote: Hi Molly - I appreciate your point about the surgery. That would be a very big step for me, because I'm a "murphy's

law" kind of person. I was just so glad to find someone local to talk to, although I haven't actually talked to her yet. I live in Juneau, Alaska - fairly isolated town of 30,000. No PTs in this town who can deal with this problem. It requires travel to Seattle, I'm afraid, which means that there's no chance of regular visits. > Hi Molly - a while back you responded to one

of my e-mails about > PT. It got me thinking again and I put it on my list. You know, > that never ending list of things I'm researching, people I'm > calling, things I'm checking back on, etc. I called one of our > local PT offices asked if anyone worked with pelvic pain. The PT > who called me back does not do myofacial release, which was the > technique that the PT in Seattle used that helped me before. But, > she told me that she had a good friend in town who has vvs and who > she was sure would be willing to talk to me. This woman has had a > successful vestibulectomy. I was amazed - somebody in my same > town! I have never actually met any woman face-to-face with > anything like what I have. My first connection with people with > these problems is through this group and I am so grateful for all of > you. But, it's very cool to think that there is someone here I >

could actually met and talk with. Anyway, I just wanted to thank > you for your encouragement to check back into PT because, even > though I didn't find anyone here who can do much for me, I did find > a very unexpected local resource. I also think that I am going back > to the Seattle PT the next time I get there and just get a > reassessment and stay in touch with that avenue of treatment. It > just goes to show that you never know what you'll find out when you > make an inquiry. I can't give up on my list! Something's out > there. > > Sally > > > > > > > ---------------------------------> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.>

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Hi Sally, Wow, you live in Alaska? What do you do for work if you can work? Do you have a boyfriend or husband? Is it possible that sometime he could travel to Seattle and be trained on how to do PT on you? My husband still does PT on me about once a month. love, Mollysally_bibb wrote: Hi Molly - I appreciate your point about the surgery. That would be a very big step for me, because I'm a "murphy's

law" kind of person. I was just so glad to find someone local to talk to, although I haven't actually talked to her yet. I live in Juneau, Alaska - fairly isolated town of 30,000. No PTs in this town who can deal with this problem. It requires travel to Seattle, I'm afraid, which means that there's no chance of regular visits. > Hi Molly - a while back you responded to one

of my e-mails about > PT. It got me thinking again and I put it on my list. You know, > that never ending list of things I'm researching, people I'm > calling, things I'm checking back on, etc. I called one of our > local PT offices asked if anyone worked with pelvic pain. The PT > who called me back does not do myofacial release, which was the > technique that the PT in Seattle used that helped me before. But, > she told me that she had a good friend in town who has vvs and who > she was sure would be willing to talk to me. This woman has had a > successful vestibulectomy. I was amazed - somebody in my same > town! I have never actually met any woman face-to-face with > anything like what I have. My first connection with people with > these problems is through this group and I am so grateful for all of > you. But, it's very cool to think that there is someone here I >

could actually met and talk with. Anyway, I just wanted to thank > you for your encouragement to check back into PT because, even > though I didn't find anyone here who can do much for me, I did find > a very unexpected local resource. I also think that I am going back > to the Seattle PT the next time I get there and just get a > reassessment and stay in touch with that avenue of treatment. It > just goes to show that you never know what you'll find out when you > make an inquiry. I can't give up on my list! Something's out > there. > > Sally > > > > > > > ---------------------------------> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.>

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Hi Sally, Wow, you live in Alaska? What do you do for work if you can work? Do you have a boyfriend or husband? Is it possible that sometime he could travel to Seattle and be trained on how to do PT on you? My husband still does PT on me about once a month. love, Mollysally_bibb wrote: Hi Molly - I appreciate your point about the surgery. That would be a very big step for me, because I'm a "murphy's

law" kind of person. I was just so glad to find someone local to talk to, although I haven't actually talked to her yet. I live in Juneau, Alaska - fairly isolated town of 30,000. No PTs in this town who can deal with this problem. It requires travel to Seattle, I'm afraid, which means that there's no chance of regular visits. > Hi Molly - a while back you responded to one

of my e-mails about > PT. It got me thinking again and I put it on my list. You know, > that never ending list of things I'm researching, people I'm > calling, things I'm checking back on, etc. I called one of our > local PT offices asked if anyone worked with pelvic pain. The PT > who called me back does not do myofacial release, which was the > technique that the PT in Seattle used that helped me before. But, > she told me that she had a good friend in town who has vvs and who > she was sure would be willing to talk to me. This woman has had a > successful vestibulectomy. I was amazed - somebody in my same > town! I have never actually met any woman face-to-face with > anything like what I have. My first connection with people with > these problems is through this group and I am so grateful for all of > you. But, it's very cool to think that there is someone here I >

could actually met and talk with. Anyway, I just wanted to thank > you for your encouragement to check back into PT because, even > though I didn't find anyone here who can do much for me, I did find > a very unexpected local resource. I also think that I am going back > to the Seattle PT the next time I get there and just get a > reassessment and stay in touch with that avenue of treatment. It > just goes to show that you never know what you'll find out when you > make an inquiry. I can't give up on my list! Something's out > there. > > Sally > > > > > > > ---------------------------------> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.>

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Unfortunately, one of the other things I have to cope with is that my

husband is a very quiet and self-contained person who is suffering a

lot from the fact that sex is painful for me and my interest in sex is

bascially zero. He is unable to talk to me about, unwilling to go to

counseling (although I'm not sure that would help us anyway), etc. So,

I kind of have to laugh at the idea of him getting trained to help me

with PT. He's a good guy and I'm pretty committed to our marriage and

so his he - but he doesn't do much to make any of this easier on me.

It's not a great situation stress-wise for me. I feel guilty and

resentful and it's kind of hard to see anything get much better in the

future. I also know that even if I find a solution to the vvs, the

residual of years of this stress on our relationship is going to be a

hard thing to overcome. Oh well - this is probably some part of the

picture for all of us - and that's what makes a condition that affects

sex so complicated.

> Is it possible that sometime he could travel to Seattle and be

>trained on how to do PT on you? My husband still does PT on me about

>once a month.

>

[Guest guest]

Unfortunately, one of the other things I have to cope with is that my

husband is a very quiet and self-contained person who is suffering a

lot from the fact that sex is painful for me and my interest in sex is

bascially zero. He is unable to talk to me about, unwilling to go to

counseling (although I'm not sure that would help us anyway), etc. So,

I kind of have to laugh at the idea of him getting trained to help me

with PT. He's a good guy and I'm pretty committed to our marriage and

so his he - but he doesn't do much to make any of this easier on me.

It's not a great situation stress-wise for me. I feel guilty and

resentful and it's kind of hard to see anything get much better in the

future. I also know that even if I find a solution to the vvs, the

residual of years of this stress on our relationship is going to be a

hard thing to overcome. Oh well - this is probably some part of the

picture for all of us - and that's what makes a condition that affects

sex so complicated.

> Is it possible that sometime he could travel to Seattle and be

>trained on how to do PT on you? My husband still does PT on me about

>once a month.

>

[Guest guest]

Unfortunately, one of the other things I have to cope with is that my

husband is a very quiet and self-contained person who is suffering a

lot from the fact that sex is painful for me and my interest in sex is

bascially zero. He is unable to talk to me about, unwilling to go to

counseling (although I'm not sure that would help us anyway), etc. So,

I kind of have to laugh at the idea of him getting trained to help me

with PT. He's a good guy and I'm pretty committed to our marriage and

so his he - but he doesn't do much to make any of this easier on me.

It's not a great situation stress-wise for me. I feel guilty and

resentful and it's kind of hard to see anything get much better in the

future. I also know that even if I find a solution to the vvs, the

residual of years of this stress on our relationship is going to be a

hard thing to overcome. Oh well - this is probably some part of the

picture for all of us - and that's what makes a condition that affects

sex so complicated.

> Is it possible that sometime he could travel to Seattle and be

>trained on how to do PT on you? My husband still does PT on me about

>once a month.

>

[Guest guest]

Hi Sally, When my husband learned to do PT on me it brought us so much closer together. He could actually FEEL the problems inside of me. He would press on trigger points and feel them go away, he would stretch rock hard tight muscles and feel them stretch and relax. He would do skin rolling where I couldn't reach and feel the connective tissue soften. He became involved and excited in our progress. It was really a special thing. He would look forward to doing PT to see what progress we'd made. Of course as you know I was diligent about doing PT on myself also. I skin rolled everywhere I could reach and I also did internal PT. I hated every second of it. love, Mollysally_bibb wrote: Unfortunately, one of the other things I have to cope with is that my husband is a very quiet and self-contained person who is suffering a lot from the fact that sex is painful for me and my interest in sex is bascially zero. He is unable to talk to me about, unwilling to go to counseling (although I'm not sure that would help us anyway), etc. So, I kind of have to laugh at the idea of him getting trained to help me with PT. He's a good guy and I'm pretty committed to our marriage and so his he - but he doesn't do much to make any of this easier on me. It's not a great situation stress-wise

for me. I feel guilty and resentful and it's kind of hard to see anything get much better in the future. I also know that even if I find a solution to the vvs, the residual of years of this stress on our relationship is going to be a hard thing to overcome. Oh well - this is probably some part of the picture for all of us - and that's what makes a condition that affects sex so complicated. > Is it possible that sometime he could travel to Seattle and be >trained on how to do PT on you? My husband still does PT on me about >once a month.>

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Hi, it's me again. The practitioners who are getting people well seem to agree that the patients who excell and do the best are those who are absolutely driven and obsessed with doing PT well and often. And of course those with involved husbands do the best. My friend Beth had vulvodynia for six years and tried everything. Then she got the book a headache in the pelvis and it made so much sense to her that she went to see Dr. Weiss and his then PT . Her husband learned to do PT and they were dedicated. Three months later they went back to San Fran and the difference and improvement was amazing. Dr. Weiss was wishing her husband had his PT license so he could hire him!!! She just bought a Harley and passed her motorcycle safety course!!!! She and her husband have rebonded. love, Molly I'm sure she'd be happy to talk to you

if you are interested.sally_bibb wrote: Unfortunately, one of the other things I have to cope with is that my husband is a very quiet and self-contained person who is suffering a lot from the fact that sex is painful for me and my interest in sex is bascially zero. He is unable to talk to me about, unwilling to go to counseling (although I'm not sure that would help us anyway), etc. So, I kind of have to laugh at the idea of him getting trained to help me with PT. He's a

good guy and I'm pretty committed to our marriage and so his he - but he doesn't do much to make any of this easier on me. It's not a great situation stress-wise for me. I feel guilty and resentful and it's kind of hard to see anything get much better in the future. I also know that even if I find a solution to the vvs, the residual of years of this stress on our relationship is going to be a hard thing to overcome. Oh well - this is probably some part of the picture for all of us - and that's what makes a condition that affects sex so complicated. > Is it possible that sometime he could travel to Seattle and be >trained on how to do PT on you? My husband still does PT on me about >once a month.>

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

Hi, it's me again. The practitioners who are getting people well seem to agree that the patients who excell and do the best are those who are absolutely driven and obsessed with doing PT well and often. And of course those with involved husbands do the best. My friend Beth had vulvodynia for six years and tried everything. Then she got the book a headache in the pelvis and it made so much sense to her that she went to see Dr. Weiss and his then PT . Her husband learned to do PT and they were dedicated. Three months later they went back to San Fran and the difference and improvement was amazing. Dr. Weiss was wishing her husband had his PT license so he could hire him!!! She just bought a Harley and passed her motorcycle safety course!!!! She and her husband have rebonded. love, Molly I'm sure she'd be happy to talk to you

if you are interested.sally_bibb wrote: Unfortunately, one of the other things I have to cope with is that my husband is a very quiet and self-contained person who is suffering a lot from the fact that sex is painful for me and my interest in sex is bascially zero. He is unable to talk to me about, unwilling to go to counseling (although I'm not sure that would help us anyway), etc. So, I kind of have to laugh at the idea of him getting trained to help me with PT. He's a

good guy and I'm pretty committed to our marriage and so his he - but he doesn't do much to make any of this easier on me. It's not a great situation stress-wise for me. I feel guilty and resentful and it's kind of hard to see anything get much better in the future. I also know that even if I find a solution to the vvs, the residual of years of this stress on our relationship is going to be a hard thing to overcome. Oh well - this is probably some part of the picture for all of us - and that's what makes a condition that affects sex so complicated. > Is it possible that sometime he could travel to Seattle and be >trained on how to do PT on you? My husband still does PT on me about >once a month.>

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

Hi, it's me again. The practitioners who are getting people well seem to agree that the patients who excell and do the best are those who are absolutely driven and obsessed with doing PT well and often. And of course those with involved husbands do the best. My friend Beth had vulvodynia for six years and tried everything. Then she got the book a headache in the pelvis and it made so much sense to her that she went to see Dr. Weiss and his then PT . Her husband learned to do PT and they were dedicated. Three months later they went back to San Fran and the difference and improvement was amazing. Dr. Weiss was wishing her husband had his PT license so he could hire him!!! She just bought a Harley and passed her motorcycle safety course!!!! She and her husband have rebonded. love, Molly I'm sure she'd be happy to talk to you

if you are interested.sally_bibb wrote: Unfortunately, one of the other things I have to cope with is that my husband is a very quiet and self-contained person who is suffering a lot from the fact that sex is painful for me and my interest in sex is bascially zero. He is unable to talk to me about, unwilling to go to counseling (although I'm not sure that would help us anyway), etc. So, I kind of have to laugh at the idea of him getting trained to help me with PT. He's a

good guy and I'm pretty committed to our marriage and so his he - but he doesn't do much to make any of this easier on me. It's not a great situation stress-wise for me. I feel guilty and resentful and it's kind of hard to see anything get much better in the future. I also know that even if I find a solution to the vvs, the residual of years of this stress on our relationship is going to be a hard thing to overcome. Oh well - this is probably some part of the picture for all of us - and that's what makes a condition that affects sex so complicated. > Is it possible that sometime he could travel to Seattle and be >trained on how to do PT on you? My husband still does PT on me about >once a month.>

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

Hi Molly - thanks for all the information. I probably sound negative,

but I am definitely listening to everything and thinking about it.

I've tried a zillion things in the last couple of years and the only

two things that helped me were PT and estrogen cream - both pretty

early in my search for the answer and both only for a short while.

But, even that is enough to be worth another try.

One thing I have noticed is that the pain seems to have moved from the

first few years. It seemed like it used to be inside my vagina and

about 1/3 up, but now it definitely is very stingy right in the opening

at the 6 o'clock position.

What do you mean by skin rolling?

Sally

[Guest guest]

Hi Molly - thanks for all the information. I probably sound negative,

but I am definitely listening to everything and thinking about it.

I've tried a zillion things in the last couple of years and the only

two things that helped me were PT and estrogen cream - both pretty

early in my search for the answer and both only for a short while.

But, even that is enough to be worth another try.

One thing I have noticed is that the pain seems to have moved from the

first few years. It seemed like it used to be inside my vagina and

about 1/3 up, but now it definitely is very stingy right in the opening

at the 6 o'clock position.

What do you mean by skin rolling?

Sally