Re: update on Jan's doc visit

[Guest guest]

Hang in there, Jan! Docs suck, but no docs suck worse! Be persistent and you will find the right one! Know that we're sending you lots of Love!

Love,

Jeri & Gregg

[Guest guest]

Hang in there, Jan! Docs suck, but no docs suck worse! Be persistent and you will find the right one! Know that we're sending you lots of Love!

Love,

Jeri & Gregg

[Guest guest]

Hi Jan - I am so sorry that your appt. didn't go well. I think you

were very strong to make that appt. and go at all. Me, I hate the

thought of seeing new drs. and getting all psyched up before I go

and then just ending up with a big let-down. (Sorry about the

pessimistic attitude guys, I am just being truthful about how I feel

these days, I guess.}

I know we should always keep looking for the right drs. out there,

but right now I don't have the mental capacity, if you know what I

mean!! I am not feeling sorry for myself, I am just talking from

the heart right now , that's all.

But enough about me, Jan, just try and pick yourself up after the

disappointment and make that appt with Dr. Soskel, (is he a sarcoid

specialist, I think I have heard his name mentioned here before?)

Like Aisha says, just try and be aggressive and keep on looking for

the right doc, the one who will finally work with you! (Listen to

me preaching, you would think I would practice what I preach! HA!)

YOu can email me if you want to talk. I am still here for you.

Hang in there, okay? Luv, Debbie

> Well guys I just got back from the doc appointment at

Vanderbilt and the doc I seen is not interested in doing any such

test on me as a matter of fact she said they aren't being performed

oin humans they are being performed on samples randomly from various

recipients she said and that no one is being treated from the

finding personally I think she is full of crap......

> She told me she was not a sarc expert and that she is a go

by the book kinda doc she's not one to try new things, she sat there

and we talked for a while and she looked up article on the internet

but she was just not interested in my case.

> The only bright conclusion she had was I need a sarc expert

to handle my case.

> She said she thought that sooner or later they will foind

out that sarc is a viral type disease, that it is caught from

something.

> But she said right now there is no one being treated

effectively for sarc that my best bet is to seek a sarc expert and

follow his reccomendations which she said will probably be what i'm

already on she said all i can do right now is treat the symptoms.

> So the appointment was a huge disappointment.

> So needless to say I have to find a new doc I guess I need

to reschedule my appoinment with Dr Soskel in memphis I wasn't able

to keep the one I had with him before. My pcp i'm sure won't refer

me to another ID doc and it may be worthless anyways I don't

know.....I'm so confused guys...... I have no one here to talk to I

sure can't talk to my kids they don't even think i'm that sick much

less try to explain this.

> I thank God I have my sarc family to turn too you don't

know how much I appreciate you all.

>

> Clueless............

> Time is a very precious gift of God;

> so precious that it's only given to us

> moment by moment..............

>

> ~~~~~~Amelia Barr

>

> Jan Bovitz

>

>

>

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[Guest guest]

Thanks Jeri and Gregg and I hope things are going better for you guys as well.

I have an appointment in march on the 4th with Dr soskel in memphis he is a sarc specialist so hopefully things will get better for me. I hope!!

Take care and have a great day.

Time is a very precious gift of God;so precious that it's only given to usmoment by moment..............

~~~~~~Amelia Barr

Jan