Mike

[Guest guest]

Hi MIke I'm Jan and have been out for a while...I have Hep too...I think I already told you that but just excuse my CRS ok?? hahaha...Please feel free to join in anytime..We do joke around alot in here to break the tension and stress but when we really need questions answered someone in here can help us out...I don't think I got the e-mail telling where you were from..I am from Cajun Land..Louisiana...R U married and got kids or anything?? Stay in touch with us ok..We'd love to hear from ya..The more you get to know us the more you'll understand our forgetting the subject line...LOL

[Guest guest]

LESLI,

I had 3 dogs up unti nov. 2 when Abby.. a lab i rescued as a puppy was killed by a car.. Thats what put me over the edge.. My wife couldnt have children so our dogs were like our kids to us.There is nothng in the world I wouldnt do for my dogs.. I love them.. I still have a daschund and another rescued dog... a pit boston terrier cross.. he was a challenge.. but he is the sweetest dog now.. This is a page I set up for my dog Abby..I loved her so much.. click on the flashing star in the upper right corner and u will see her pic

http://www.in-memory-of-pets.com/personalcandle.asp?ID=26561

ill attach pics of the other two

Hugz,

Mike

[Guest guest]

Mike? Down boy! LOL And lots of luck with your ACTIVATION! LOL

) Jackie

[Guest guest]

OK I am now BIONIC. What a difference. As the audiologist crumpled some paper

it sounded like a banjo. WEIRD ! Then I heard a train go by, something I tuned

out years ago when I was hearing since I work for the RR. But to hear them again

like that WOW! In a couple weeks he'll boost me up some more, not too much to

overload the brain at once he said. I love it.

Mike

Med-El Tempo

Alive 5/30/03

Re:Mike

Mike? Down boy! LOL And lots of luck with your ACTIVATION! LOL

) Jackie

[Guest guest]

Congrats Mike,

Glad you love them but the best is yet to come....Sharon Myers

Mike <mike308@...> wrote:

OK I am now BIONIC. What a difference. As the audiologist crumpled some paper

it sounded like a banjo. WEIRD ! Then I heard a train go by, something I tuned

out years ago when I was hearing since I work for the RR. But to hear them again

like that WOW! In a couple weeks he'll boost me up some more, not too much to

overload the brain at once he said. I love it.

Mike

Med-El Tempo

Alive 5/30/03

Re:Mike

Mike? Down boy! LOL And lots of luck with your ACTIVATION! LOL

) Jackie

[Guest guest]

congratulations Mike!!!!

hearing is amazing huh??? it took me months to hear a train and when i

did i was soooo excited .... clickety clack clickety clack woooo woooo

welcome to bionic-land where men and them women folks get turned on

and tuned in

susan

[Guest guest]

Wow, I forgot that there are other trains out there besides subways!! A NYC

subway would never go clickety clack...more like a huge rumble and lots of

horrible sqeals. Kind of like a bad hook-up day with every ride! LOL

In a message dated 5/30/2003 9:13:37 PM Eastern Standard Time,

Starrgazingnite@... writes:

>

> hearing is amazing huh??? it took me months to hear a train and when i

> did i was soooo excited .... clickety clack clickety clack woooo woooo

>

> welcome to bionic-land where men and them women folks get turned on

> and tuned in

>

[Guest guest]

In a message dated 5/30/03 9:20:48 PM, Ci92000@... writes:

> Kind of like a bad hook-up day with every ride!  LOL

>

LOL LOL i have never heard a subway gotta get myself to that there

big city to hear this one one day maybe!!! LOL

susan

[Guest guest]

Mike,

This is wonderful. Everyone has a different

experience and yours was the train. I really enjoyed

reading that as I could tell that it had special

meaning for you.

Congratulations! Indeed - you are now bionic. I'm

glad you love it!

Alice

--- Mike <mike308@...> wrote:

> OK I am now BIONIC. What a difference. As the

> audiologist crumpled some paper it sounded like a

> banjo. WEIRD ! Then I heard a train go by,

> something I tuned out years ago when I was hearing

> since I work for the RR. But to hear them again like

> that WOW! In a couple weeks he'll boost me up some

> more, not too much to overload the brain at once he

> said. I love it.

> Mike

> Med-El Tempo

> Alive 5/30/03

> Re:Mike

>

>

> Mike? Down boy! LOL And lots of luck with your

> ACTIVATION! LOL

> ) Jackie

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

Mike,

I love how you signed alive 5/30/03 below your name and Med-El Tempo. That

is so true about our getting some hearing back..it can bring us feelings of

being more complete and connected. Alive is also a good description for hookup

because your CI came to life and began giving you sound.

It almost seems like your Tempo is living up to its name if your audi's

crumpling paper sounds like a banjo! The train passing is almost like a special

greeting back into the hearing world for you since you work for the RR. Please

keep us tuned in to more new sounds you hear, musical or otherwise.

Congratulations on joining us!

M., age 37, Sacramento, CA

R ear N24C surgery 04/03/03

Hookup with SPrint BWP 05/07/03

Getting 3G BTE 06/25/03

[Guest guest]

Hi Folks, I'm new on here altho I had my CI since 4/96 and think it is one of

the greatest invention. I have 6 children and 7 grandchildren and had never

heard a babies heart beat or first cry until my last grandson was ready to

arrive and be born in Sept. 1996. My daughter was so happy she cried, I just

beamed because I was so happy. While I can't hear the doorbell, my 3 dogs let

me know when someone is on the property or at the door, you can tell how please

they are that they are helping me. I really enjoy the notes that you write to

each other and the information you have passed on to each other has really made

me wonder if I'm not missing out on some of the things my CI could help me with.

OH, I have nerve deafness, came on when I was 9, my parents would not let me

leave home or learn to sign, so I learned lip reading on my own and graduated

from high school. I had my CI at House Ear Clinic in LA. Every time my

son-in-law visits us from LA, he asks if I still have my CI on, guess he didn't

believe I would use it daily, but I love hearing all the sound, be it my

youngest grandson, who doesn't talk, he yeals, which means we will never lose

him....tee hee.

Congratuate to everyone on getting their ears working, it is so wonderful.

Selma Burch

Re: Re:Mike

congratulations Mike!!!!

hearing is amazing huh??? it took me months to hear a train and when i

did i was soooo excited .... clickety clack clickety clack woooo woooo

welcome to bionic-land where men and them women folks get turned on

and tuned in

susan

[Guest guest]

Welcome Selma

I had my implant in Aug of 1996 and our 4th Grandchild was born the following

May.I had not heard a newborn baby cry either and when we walked into the room

shortly after his birth he was crying lustily!The nurse told me to sit in the

rocker and she placed him in my arms.I just sat there listening to him!!I didn't

try to make him stop..there would be plenty of time later!!I was also amazed

that I could hear every squeek that his little body made!!

Now he is 6 yrs old and those cries have turned into the most precious

giggles!he loves to laugh and he likes grandma to laugh too!!We are so blessed

to be able to hear these little guys!!

Love Dora

Re: Re:Mike

congratulations Mike!!!!

hearing is amazing huh??? it took me months to hear a train and when i

did i was soooo excited .... clickety clack clickety clack woooo woooo

welcome to bionic-land where men and them women folks get turned on

and tuned in

susan

[Guest guest]

Well I do have some hearing in my other ear so it isn't like I was totally deaf,

but a lot of sounds were missing. I think I did better music wise before the

implant but I can still hear it pretty good. . . . .was jamming to Van Halen on

the way home from work this morning. I have a pretty extensive collection of

classic rock mp3's. . . over 600 songs.

Mike

Med-El Tempo+

Alive and Kicking out the JAMS 5/30/03

Re: Re:Mike

Mike,

I love how you signed alive 5/30/03 below your name and Med-El Tempo. That

is so true about our getting some hearing back..it can bring us feelings of

being more complete and connected. Alive is also a good description for

hookup

because your CI came to life and began giving you sound.

It almost seems like your Tempo is living up to its name if your audi's

crumpling paper sounds like a banjo! The train passing is almost like a

special

greeting back into the hearing world for you since you work for the RR.

Please

keep us tuned in to more new sounds you hear, musical or otherwise.

Congratulations on joining us!

M., age 37, Sacramento, CA

R ear N24C surgery 04/03/03

Hookup with SPrint BWP 05/07/03

Getting 3G BTE 06/25/03

[Guest guest]

Thank you Doris for the welcome, I feel the same way you do, very lucky to have

heard my Jake's first cry. I don't mind that he is a loud little guy, I'm just

glad that he is a very happy 6 yr. old. and one of the first things he says to

me when he comes over is " Will you fix me a tosted cheese sandwich, Nana? " , of

course I do. But I wish I could have heard the first crys of Nicky, Cole,

Kristoffer, Ely and . We lost the 7th little one at birth, so I never saw

him. These are the grandsons. Jake is in 1st grade and his teacher doesn't

mind how loud he is, at least he isn't afraid to talk in class, as I was.

Sammye had him in the birthing room, so different from when I had my babies and

such a beautiful room too, I was sitting in the rocking chair and the doctor

placed him in my arms after he was born, such a tiny little one, it sure took us

a long time to find out what we missed, didn't it but worth the wait.

How did you like your first 4th of July fireworks? I was so amazed at the

popping of the displays in the sky, I kept trying to find out which one I had

just heard go off. Due to my rare deafness, I will never understand speech, but

must lipread to understand what is being said. That is one reason I am so happy

just to be able to hear sounds, any sound is fine with me. I can tell which

dog is barking, something I never was able to do before. And the sound of their

feet moving over the tile floor is a wonder to me.

Hugs,

Selma

Re: Re:Mike

congratulations Mike!!!!

hearing is amazing huh??? it took me months to hear a train and when i

did i was soooo excited .... clickety clack clickety clack woooo woooo

welcome to bionic-land where men and them women folks get turned on

and tuned in

susan

[Guest guest]

Welcome to the group! Yes the CI is the greatest invention because when I got

mine it was like an adventure to listening all the sounds around me ,still

is.The first thing I heard was the car signal and I was eating chips and said to

my hubby " it sounds awfully crunchy " lol.But when I heard my kids voices it was

great. Still getting my CI moments and learning to listen without lipreading and

would like to hear on the phone as well. You had mentioned that you were the

only deaf child in your place ,well I was the only deaf child in my place too

and I can understand how you feel but I got a lot of help from my mother and my

best friend who is hearing helped me a lot at school.We proved to them we can do

it as well as they can. I did finish high school too,it was hard but I did it.

Enjoy your grandchildren.

Re: Re:Mike

congratulations Mike!!!!

hearing is amazing huh??? it took me months to hear a train and when i

did i was soooo excited .... clickety clack clickety clack woooo woooo

welcome to bionic-land where men and them women folks get turned on

and tuned in

susan

[Guest guest]

It so nice to have you Mike. I'm a sub in the DeSoto ISD and the kids all need

to be on something! I'm kidding just a little, but i could certainly see where

if we aren't careful someone would try to put them on something. They are so

rude and disrespectful. My husband is a Dallas Fireman.

Take care,

Connie

MICHAEL VETERAMO <latteach@...> wrote:

Hello: I live in the city and teach high school for DISD.......Mike

oops-question

omg....clean should be keen. im having a bad day, i need to know if

any of you have felt this.

they increased my mood stabiliser dose (i dont want to be on it) to

my bodys max dosage. And since ive felt like my head is going to

explode out of my head, feel like everything is jumping up and

down,sea sick. dizzy. brain zaps. everytime i move my head i want to

throw up, irritable, i can hardly read what im writing. I had bad

inco-ordination and someone had to escort me to the train station

because i looked like i was seriously drunk, walking from side to

side,walking into parked cars. My fear was walking into a moving

car. wasnt able to pick things up etc. Im slurring my words

sometimes, stuttering the next. Get so irritable and aggressive.

Brain zaps and pins and needles too, basically everything covered in

the umbrella of parethesia. I've spoke to someone else who said he

got like that on 60mg paxil, but they just reduced it. I need to

know if anyone else has felt like this, i know what im on now isnt

an ssri, but it would be just usefull to know if you felt like this,

and if it got less over time or what. I cant really function like

this at all,it kind feels like withdrawal, its only happened since i

raised my dose again, ive been through worse withdrawing from the

ssri's...so if it will get better and go off, i dont mind

Thanks in advance to all of you

love ya much

Jeni

For example, they were only too

> clean to put you on the family planning extra list>

------------------------------------------------------------------------------

[Guest guest]

It so nice to have you Mike. I'm a sub in the DeSoto ISD and the kids all need

to be on something! I'm kidding just a little, but i could certainly see where

if we aren't careful someone would try to put them on something. They are so

rude and disrespectful. My husband is a Dallas Fireman.

Take care,

Connie

MICHAEL VETERAMO <latteach@...> wrote:

Hello: I live in the city and teach high school for DISD.......Mike

oops-question

omg....clean should be keen. im having a bad day, i need to know if

any of you have felt this.

they increased my mood stabiliser dose (i dont want to be on it) to

my bodys max dosage. And since ive felt like my head is going to

explode out of my head, feel like everything is jumping up and

down,sea sick. dizzy. brain zaps. everytime i move my head i want to

throw up, irritable, i can hardly read what im writing. I had bad

inco-ordination and someone had to escort me to the train station

because i looked like i was seriously drunk, walking from side to

side,walking into parked cars. My fear was walking into a moving

car. wasnt able to pick things up etc. Im slurring my words

sometimes, stuttering the next. Get so irritable and aggressive.

Brain zaps and pins and needles too, basically everything covered in

the umbrella of parethesia. I've spoke to someone else who said he

got like that on 60mg paxil, but they just reduced it. I need to

know if anyone else has felt like this, i know what im on now isnt

an ssri, but it would be just usefull to know if you felt like this,

and if it got less over time or what. I cant really function like

this at all,it kind feels like withdrawal, its only happened since i

raised my dose again, ive been through worse withdrawing from the

ssri's...so if it will get better and go off, i dont mind

Thanks in advance to all of you

love ya much

Jeni

For example, they were only too

> clean to put you on the family planning extra list>

------------------------------------------------------------------------------

[Guest guest]

; just thought i'd let you know that I tried adding

one capful of magnesium citrate liquid to a drink that had

a small amount of biotin in it-along with the other bs. He does not have

that bad reaction-though did have a little chest tightness. I will find and

fax those test results you asked for today.

Re: [ ] Re: TD-DMPS/Buttar posting

> Jo,

>

> At 09:28 AM 6/4/2004 -0400, you wrote:

> > We then added

> >ALA every 3 hours during the day and every 4 hours at night on the same

> >schedule. He lost all language, developed very strange OCD behaviors,

> >and yeast

> >which had never been a huge problem went out of control. We had to stop

> >because

> >he got really sick. We lost a whole year and nothing we did brought him

> >back.

>

> I think there is some possibility that the ALA was preventing the

> utilization of biotin and/or pantothenic acid because all three vitamins

> compete for transport into cells via the SMVT transporter. When I was

> posting about biotin so much in the last year, many parents said that

> biotin improved their child's OCD, but also, too much biotin seemed to

> induce it! The dose seems to be very important, and may vary from child

to

> child, but it seems critical to keep all three substrates of that

> transporter in proper balance.

>

> What might be affected neurologically? The basal ganglia seem to maintain

> a store of biotin for the brain. Biotin is there not by itself, but in a

> complex called acetyl-CoA carboxylase. To form that complex, you need

> panthothenic acid (the third substrate of SMVT) and cysteine and adenosine

> diphosphate. The three units come together to form Coenzyme A. You can't

> use biotin without CoA, but CoA won't form without having enough cysteine

> available inside the cell. Where do you get the cysteine? Maybe from

> metallothionein, but only after it has been unloaded of its metals and

> acted upon by cysteine proteases...digesting enzymes tailor made to act in

> lysosomes.

>

> Lipoic acid is one of the molecules which can unload metallothionein,

> helping to free its 20 cysteines to go to work for the sulfur system, but

> like the other molecules with this sort of " unloading " role, there may be

a

> tissue specficity to it. Lipoic acid may be able to unload some metals

> from metallothionein better than some others, and it may be able to work

in

> a different set of cells compared to the cell types where DMSA was

helping.

> Maybe your child didn't need THAT particular set of metallothionein to be

> unloaded, because of which metal the metallothionein was holding, or

> because of the cell type which was its main target. The research in this

> area has been limited in its sophistocation and thoroughness,

> unfortunately. I don't know if you got to hear me at AutismOne since you

> were so dutifully minding the NAA tables, but I introduced a little bit of

> this there, talking about how metallothionein may work at a level of

> complex regulation of sulfur supply that we have missed before now.

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

Thanks Cindi!

Hey, Syracuse is only like......8 hours away (heheheh), can't you

guys make a teeny tiny side trip? LMAO Have a GREAT weekend!

Mike (no witty remarks come to mind)

> Glad you are OK, Mike - sorry you have A, but glad you are with

us! Cindi, going to NY tomorrow to the inlaws (Syracuse, sorry!)

[Guest guest]

Hiya Buffy,

So, you ARE laughing AT me!!!! HA I knew it!

@ (The Achalasian Formerly Known As Mike)

> Glad to hear that you are ok! We've all been in those moods and

I'm

> sure things will get better. We all miss your words of wisdoms and

> your funny ways! We like to laugh... at others and at ourselves.

> Deb

[Guest guest]

Will do Deb! Surgery is set for Jan 12th. I REALLY hope I see you

there!

Mike

>

> Hey Mike,

>

> Congratualtions on your good news. Glad to hear you are finally

> going to take care of yourself. I know you are skeptical but

you've

> made the right decision.

> If you happen to run into Dr. Salky at Mt. Sinai.. he's the head of

> the lap. surgical center.. please send him my regards and tell him

> that I am doing well.

> He's the one that did my surgery.

> Let me know when your surgery is set for.. maybe I'll make it in to

> say hello!

> Deb

[Guest guest]

Glad to hear that all went well. Tell Mike we will keep the pizza ovens up and warm for him.

Mueller IV

[Guest guest]

Colleen

Thanks for the update on Mike glad to hear all went well. I totally

agree with the husbands don't listen . Tell Mike I wish him a speedy

recovery and soon he will be on his way to easier eating Penny

>

> just wanted to let you all know ...mikeys doing fine. the surgery

> went well. hopefully he's getting out today. he was in a lot of

pain

> last night but hes up and walking. he wasnt thrilled with waking

up

> on the vent but after a little pain killer and a cute intern he

was

> feeling in much better spirits LOL. thank you all for being there

> for him. thank you even more for giving him the boot in he butt to

> finally do something about it.(men never listen to their wives...)

> hes complaining he wants pizza(typical). i told him to settle for

> Quik and in 3 weeks i'll but him whatever he wants. thanks again-

> colleen

[Guest guest]

Colleen,

Thanks for the info on Mike!

Please let him know that we are thinking about him and can't wait to hear how he's coming along!

The best to you both,

Jan in Northern KY

[Guest guest]

Hi Colleen,

Good to hear from you. I just had my achalasia surgery at Mt. Sinai

5 months ago. That is good that Mike is up and walking. He will

forget the pain a bit when he finds out that he can eat a steak the

first day discharged!! He might have to wait for bread for awhile.

Hope the barium swallow goes OK. Please keep us up to date.

Ginny

-- In achalasia , " mrsmikey818 " <mrsmikey818@y...>

wrote:

>

> just wanted to let you all know ...mikeys doing fine. the surgery

> went well. hopefully he's getting out today. he was in a lot of

pain

> last night but hes up and walking. he wasnt thrilled with waking up

> on the vent but after a little pain killer and a cute intern he

was

> feeling in much better spirits LOL. thank you all for being there

> for him. thank you even more for giving him the boot in he butt to

> finally do something about it.(men never listen to their wives...)

> hes complaining he wants pizza(typical). i told him to settle for

> Quik and in 3 weeks i'll but him whatever he wants. thanks again-

> colleen