Re: X-RAYS

[Guest guest]

JM it is Vitamin E you should be using.

Sharon

Re: Some feedback please Date: Fri, 04 Jun 2004 19:34:50 -0000

Toni,

X-rays are usually worthless for Sarcoidosis. Have you had a lung cat scan yet? They are usually the best to see sarcoid in the lungs. My pulmonary doc, who is wonderful, said that Gallium scans are too sensitive.

Hope this helps.

Cheryl

> Hi everyone,

Well following this continual cough that I have developed and have had for over 3 months now, I went and had a chest x-ray last Friday with no abnormal results showing up. Has anyone experienced this and if so why isn't it showing up? It doesn't help my cause when NOTHING is showing up for them to diagnose or treat!!!!!!! *SIGH* > > Cheers > Toni > OZ > j:)

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[Guest guest]

are you using the actual bottled Vitamin E oil, or the capsules you can take a pin and poke a hole in and get the oil that way? I think the capsules have more strength.

Sharon

Re: Some feedback please Date: Fri, 04 Jun 2004 19:34:50 -0000 Toni, X-rays are usually worthless for Sarcoidosis. Have you had a lung cat scan yet? They are usually the best to see sarcoid in the lungs. My pulmonary doc, who is wonderful, said that Gallium scans are too sensitive. Hope this helps. Cheryl > Hi everyone, Well following this continual cough that I have developed and have had for over 3 months now, I went and had a chest x-ray last Friday with no abnormal results showing up. Has anyone experienced this and if so why isn't it showing up? It doesn't help my cause when NOTHING is showing up for them to diagnose or treat!!!!!!! *SIGH* > > Cheers > Toni > OZ >

j:)

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[Guest guest]

Hi Joleen and Cheryl

Thanks for your advice. I have added it all to my list of things to

request when I go to the Dr. I wasn't aware that x-rays were not that

successful in sarc diagnosis. I did have a chest MRI quite a long time ago

probably more than 6-8 months now, that was before I developed this

constant annoying cough and now I find I am having difficulty breathing

sometimes and my chest is so damn tight all the time.

,

I soooooooo admire you for taking the stand with that quack. I think

that's something we should all perhaps start doing a little bit more of. I

know that I am because I am sick of being sick and tired. I want my life

back too.

Hey ,

Welcome back from your vacation. I hope you had the most terrific time. I

would love to see that part of the United States one day, just one thing

stops me......a little thing called money...he he he. Those family trips

sure can wear you out. I did one with my two boys and my mum a while ago

and I swore I'd never do it again either, though, now a little over a year

and a half later, the thought has crept back into my brain again, I must be

crazy....but the boys are older now might be a bit better but I doubt it

they still fight like cats and dogs.

Hey Rose

Sounds like your weekend with the kids was totally exhausting. I find that

if I have visitors even just for a day that I am sooo damn tired and

exhausted for the next few days that sometimes I don't think it's worth it,

and that's adults, I try and avoid having my nephews over for too long

because the kids just totally wreck me and they are too young too

understand other than that I am sick. I hate it! I miss the life I had

when I was well.

Luv

Toni

Brisbane, OZ

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[Guest guest]

I will check Wally World out.

I love Wal-Mart

Sharon

Re: Some feedback please Date: Fri, 04 Jun 2004 19:34:50 -0000 Toni, X-rays are usually worthless for Sarcoidosis. Have you had a lung cat scan yet? They are usually the best to see sarcoid in the lungs. My pulmonary doc, who is wonderful, said that Gallium scans are too sensitive. Hope this helps. Cheryl > Hi everyone, Well following this continual cough that I have developed and have had for over 3 months now, I went and had a chest x-ray last Friday with no abnormal results showing up. Has anyone experienced this and if so why isn't it showing up? It doesn't help my cause when NOTHING is showing up for them to diagnose or treat!!!!!!! *SIGH* > > Cheers > Toni > OZ > j:) ------------------------------------------------------------------------------ Getting married? Find great tips, tools and the latest trends at MSN Life Events. ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database