Re: Pudendal l Neuralgia and Alcocks Canal.... Sacral Injury

[Guest guest]

Gwen,

The tailbone issues is a major core issue and may be the orriginal

start up cause.

very likely that the pelvis has also become asymmetrical and

hypo-mobile as well.

Look for a practitioner who is Expert in Muscle Energy Technique,

Counterstrain

and pelvic floor dysfunction.

Tom Ockler P.T.

www.tomocklerpt.com

snofyre00 wrote:

I accidentally knocked my tail bone inward, when I was only 19 yrs

old.

Several times in my life, I have suffered episodic, severe pain in

one leg. No attending drs ever made any connection to my tailbone

injury, nor checked to see if my coccyx was fractured.

In my research I see that

A. Pelvic floor muscle spasms can be a result

of entrapment of the sciatic nerve, as it passes through the

buttock muscles.

B. Sacroliac joint joint inflammation can lead to

pain in the buttock.

C. A fractured tailbone can produce tension in

the pelvic floor aned cause the bone to swing foward.

The last concern I have is the:

D Alcock canal syndrome where the

pudenal nerve and blood vessls can become squeezed between

lagiaments and a muscle cross.

How I obtain testing for these conditions, in order to rule them

out? Where type of Dr is knowledgable about this?

Medical sites list "image guided

pudenal never blocks "as the most importanat diagnostic test

followling a history and phhysical exmainiaion.

Has anyone had this done and where does one go to get it? I have had

IC for 10 yrs, and came down the vulvody/vestibulis

and pelvic muscle spams that travel clear up to my face 2 yrs ago.

I have been diagnosed with vulvodyn/vestib. but wondering if my

tailbone injury may be at the core.

If anyone has had experiences with this or can help with referrals

or resources, I would be so very grateful.

Gwen (snofyre00)

or JGcgullaol

[Guest guest]

Gwen,

The tailbone issues is a major core issue and may be the orriginal

start up cause.

very likely that the pelvis has also become asymmetrical and

hypo-mobile as well.

Look for a practitioner who is Expert in Muscle Energy Technique,

Counterstrain

and pelvic floor dysfunction.

Tom Ockler P.T.

www.tomocklerpt.com

snofyre00 wrote:

I accidentally knocked my tail bone inward, when I was only 19 yrs

old.

Several times in my life, I have suffered episodic, severe pain in

one leg. No attending drs ever made any connection to my tailbone

injury, nor checked to see if my coccyx was fractured.

In my research I see that

A. Pelvic floor muscle spasms can be a result

of entrapment of the sciatic nerve, as it passes through the

buttock muscles.

B. Sacroliac joint joint inflammation can lead to

pain in the buttock.

C. A fractured tailbone can produce tension in

the pelvic floor aned cause the bone to swing foward.

The last concern I have is the:

D Alcock canal syndrome where the

pudenal nerve and blood vessls can become squeezed between

lagiaments and a muscle cross.

How I obtain testing for these conditions, in order to rule them

out? Where type of Dr is knowledgable about this?

Medical sites list "image guided

pudenal never blocks "as the most importanat diagnostic test

followling a history and phhysical exmainiaion.

Has anyone had this done and where does one go to get it? I have had

IC for 10 yrs, and came down the vulvody/vestibulis

and pelvic muscle spams that travel clear up to my face 2 yrs ago.

I have been diagnosed with vulvodyn/vestib. but wondering if my

tailbone injury may be at the core.

If anyone has had experiences with this or can help with referrals

or resources, I would be so very grateful.

Gwen (snofyre00)

or JGcgullaol

[Guest guest]

Hi Tom, Do you know if AMy Stein in NYC uses these techniques or anyone else in the NYC area for that matter? I think Molly mentioned that AMy STein is a very good pelvic floor PT. I saw Pam on, but she bascially did some general PT stuff and then went into integrative manual therapy which to me seemed a lot like just laying on of hands. I hardly felt her hands move at all. It didn't work for me. Have you ever heard of integrative manual therapy? Thanks, Sandi

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[Guest guest]

Tom: Many thanks for you for your quick response. Am in alot of pain these days. Would that practrictioner you mentioned, be in a neurology dept? I have no idea what dept or dr...etc? to contact, in regards to this. I AM however, getting a very good pelvic floor therapist, but would like to have the nerve block test for pudenal neuralgia. This test would need to be a medical dr, I assume? I live in Iowa and pretty much only have access to U. of Iowa. I am pretty sure they do NOT this type of specialist, except a general neurology dept.. I am however, about 4 hrs from Chicago - have Aetna Insurance and am NOT under an HMO plan. So, specific ideas to go after? Such as a pudenal neuralgia association or something similar to obtain a referral to a practioner (dr? or whatever ) who is knowledable in this area? My sincere apolgies to bother you again, but once I get some informational referrals, I go gung ho from there, myself. Again... My thanks J. Gwen Siegel, MA, NCC 9392 Glenmark Drive Burlington, IA 52601 **Member of National IC and

Vulvodynia Assoc. " K. Ockler" wrote: Gwen,The tailbone issues is a major core issue and may be the orriginal start up cause.very likely that the pelvis has also become asymmetrical and hypo-mobile as well.Look for a practitioner who is Expert in Muscle Energy Technique, Counterstrain and pelvic floor dysfunction.Tom Ockler P.T.www.tomocklerpt.comsnofyre00 wrote: I accidentally knocked my tail bone inward, when I was only 19 yrs old. Several times in my life, I have suffered episodic, severe pain in one leg. No attending drs ever made any connection to my tailbone injury, nor checked to see if my coccyx was fractured.In my research I see that A. Pelvic floor muscle spasms can be a result of entrapment of the sciatic nerve, as it passes through thebuttock muscles. B. Sacroliac joint joint inflammation can lead to pain in the buttock. C. A fractured tailbone can produce tension in the pelvic floor aned cause the bone to swing foward.The last concern I have is the:D Alcock canal syndrome where the pudenal nerve and blood vessls can become squeezed between lagiaments and a muscle cross.How I obtain testing for these conditions, in order

to rule them out? Where type of Dr is knowledgable about this? Medical sites list "image guided pudenal never blocks "as the most importanat diagnostic test followling a history and phhysical exmainiaion.Has anyone had this done and where does one go to get it? I have had IC for 10 yrs, and came down the vulvody/vestibulis and pelvic muscle spams that travel clear up to my face 2 yrs ago. I have been diagnosed with vulvodyn/vestib. but wondering if my tailbone injury may be at the core.If anyone has had experiences with this or can help with referrals or resources, I would be so very grateful.Gwen (snofyre00) or JGcgullaol

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[Guest guest]

Hi, I know you did not ask for my opinion, however, I would see a PT a few times before you subject yourself to the pudendal nerve motor latency test. I had pudendal neuralgia and I didn't need the test. I knew from a few sessions of PT that I had a good shot at getting well and I did. Since you are only 4 hours from Chicago, it may be worth your while to see Rhonda Kotarinos for an evaluation and I'm sure she could recommend some good doctors and will probably give you her opinion about the test. It would be worth the trip to see her, she is the best. That way you'll know what to expect from a GOOD PT before you waste too much money on a mediocre one as I did. love, MollySnofyre wrote: Tom: Many thanks for you for your quick response. Am in alot of pain these days. Would that practrictioner you mentioned, be in a neurology dept? I have no idea what dept or dr...etc? to contact, in regards to this. I AM however, getting a very good pelvic floor therapist, but would like to have the nerve block test for pudenal neuralgia. This test would need to be a medical dr, I assume? I live in Iowa and pretty much only have access to U. of Iowa. I am pretty sure they do NOT this type of specialist, except a general neurology dept.. I am however, about 4 hrs from Chicago - have Aetna Insurance and am NOT under an HMO plan. So, specific ideas to go after? Such as a pudenal neuralgia association or something similar to obtain a referral to a practioner (dr? or whatever ) who is knowledable in this area? My sincere apolgies to bother you again, but once I get some informational referrals, I go gung ho from there, myself. Again... My thanks

J. Gwen Siegel, MA, NCC 9392 Glenmark Drive Burlington, IA 52601 **Member of National IC and Vulvodynia Assoc. " K. Ockler" wrote: Gwen,The tailbone issues is a major core issue and may be the orriginal start up cause.very likely that the pelvis has also become asymmetrical and hypo-mobile as well.Look for a practitioner who is Expert in Muscle Energy Technique, Counterstrain and pelvic floor dysfunction.Tom Ockler P.T.www.tomocklerpt.comsnofyre00 wrote: I accidentally knocked my tail bone inward, when I was only 19 yrs old. Several times in my life, I have suffered episodic, severe pain in one leg. No attending drs ever made any connection to my tailbone injury, nor checked to see if my coccyx was fractured.In my research I see that A. Pelvic floor muscle spasms can be a result of entrapment of the sciatic nerve, as it passes through thebuttock muscles. B. Sacroliac joint joint inflammation can lead to pain in the buttock. C. A fractured tailbone can produce tension in the pelvic floor aned cause the bone to swing foward.The last concern I have is the:D Alcock canal syndrome where the pudenal nerve and blood vessls can become squeezed between lagiaments and a muscle cross.How I obtain testing for these conditions, in order to rule

them out? Where type of Dr is knowledgable about this? Medical sites list "image guided pudenal never blocks "as the most importanat diagnostic test followling a history and phhysical exmainiaion.Has anyone had this done and where does one go to get it? I have had IC for 10 yrs, and came down the vulvody/vestibulis and pelvic muscle spams that travel clear up to my face 2 yrs ago. I have been diagnosed with vulvodyn/vestib. but wondering if my tailbone injury may be at the core.If anyone has had experiences with this or can help with referrals or resources, I would be so very grateful.Gwen (snofyre00) or JGcgullaol Get your email and more, right on the new Yahoo.com

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[Guest guest]

Hi Sandy,

Can you tell me which techniques you are talking about please.

EFT? or Muscle Energy?

The term Integrative Manual Therapy is a bit of a catch all term.

Nowadays, seems like everyone what s to put their own exclusive name on

the same old techniques.

For Muscle Energy and Counterstrain,You may have to just get on the

phone and start calling clinics asking if anyone on staff is expert in

the techniques.

If you are talking about EFT the website has a locator on it to find

experienced practitioners in your area.

I would guess NYC has many of them.

Let me know if you need more specific info.

TKOPT

www.tomockerpt.com

Sandi Sharp wrote:

Hi Tom,

Do you know if AMy Stein in NYC uses these techniques or anyone

else in the NYC area for that matter? I think Molly mentioned that AMy

STein is a very good pelvic floor PT. I saw Pam on, but she

bascially did some general PT stuff and then went into integrative

manual therapy which to me seemed a lot like just laying on of hands.

I hardly felt her hands move at all. It didn't work for me. Have

you ever heard of integrative manual therapy?

Thanks,

Sandi

Stay in the know. Pulse on the new Yahoo.com.

Check it out.

[Guest guest]

Gwen,

The practitoner I would be referring to is a Physical Therapist with

very special training.

unfortunately, Very few of us birds in the country. Occasionally you

may find an Osteopathic Physician D.O.

With some of this training.

The Nerve block would be a vulvar pain specialist / neurologist.

If your PF therrapist does not know hwo to balance the pelvis, sacrum

and eleiminate the triggers the pain will persist.

I also recommend learning EFT for the brain based emotional comonnent

to the pain.

TKOPT

Snofyre wrote:

Tom:

Many thanks for you for your quick response. Am in alot

of pain these days.

Would that practrictioner you mentioned, be in a

neurology dept? I have no idea what dept or dr...etc? to contact, in

regards to this.

I AM however, getting a very good pelvic floor

therapist, but would like to have the nerve block test for pudenal

neuralgia. This test would need to be a medical dr, I assume?

I live in Iowa and pretty much only have access to U. of

Iowa. I am pretty sure they do NOT this type of specialist, except a

general neurology dept..

I am however, about 4 hrs from Chicago - have Aetna

Insurance and am NOT under an HMO plan.

So, specific ideas to go after?

Such as a pudenal neuralgia association or something

similar to obtain a referral to a practioner (dr? or whatever ) who is

knowledable in this area?

My sincere apolgies to bother you again, but once I get

some informational referrals, I go gung ho from there, myself.

Again... My thanks

J. Gwen Siegel, MA, NCC

9392 Glenmark Drive

Burlington, IA 52601

**Member of National IC and Vulvodynia Assoc.

" K. Ockler" wrote:

Gwen,

The tailbone issues is a major core issue and may be the orriginal

start up cause.

very likely that the pelvis has also become asymmetrical and

hypo-mobile as well.

Look for a practitioner who is Expert in Muscle Energy Technique,

Counterstrain

and pelvic floor dysfunction.

Tom Ockler P.T.

www.tomocklerpt.com

snofyre00 wrote:

I accidentally knocked my tail bone inward, when I was only

19 yrs

old.

Several times in my life, I have suffered episodic, severe pain in

one leg. No attending drs ever made any connection to my tailbone

injury, nor checked to see if my coccyx was fractured.

In my research I see that

A. Pelvic floor muscle spasms can be a result

of entrapment of the sciatic nerve, as it passes through the

buttock muscles.

B. Sacroliac joint joint inflammation can lead to

pain in the buttock.

C. A fractured tailbone can produce tension in

the pelvic floor aned cause the bone to swing foward.

The last concern I have is the:

D Alcock canal syndrome where the

pudenal nerve and blood vessls can become squeezed between

lagiaments and a muscle cross.

How I obtain testing for these conditions, in order to rule them

out? Where type of Dr is knowledgable about this?

Medical sites list "image guided

pudenal never blocks "as the most importanat diagnostic test

followling a history and phhysical exmainiaion.

Has anyone had this done and where does one go to get it? I have had

IC for 10 yrs, and came down the vulvody/vestibulis

and pelvic muscle spams that travel clear up to my face 2 yrs ago.

I have been diagnosed with vulvodyn/vestib. but wondering if my

tailbone injury may be at the core.

If anyone has had experiences with this or can help with referrals

or resources, I would be so very grateful.

Gwen (snofyre00)

or JGcgullaol

Get your email and more, right on the

new Yahoo.com

[Guest guest]

Hi Tom, I went to Center for Integrative Manual Therapy in Bloomfield CT. It was founded by Sharon Weiselfish Giamatteo and her husband Tom Giamatteo. She is a Phd in PT and he is a chiropractor. They basically combine a little basic PT with all these thousands of protocols Sharon developed. It has had some amazing success in treating all kinds of resistant problems - but it didn't really help me at all and was not covered by ins. Their homework was for the patient to do these templates. Let's say for v pain the patient would put one hand on the vulva and the other on the kidneys or liver and leave it there for 20 minutes. Then one minght put her hand on her thigh and the other hand on her forehead. SOmetimes you could get more than one person working on you at the same time. I never felt anything more than hands placed on top of me. It sounded like

a combination of PT and accupressure. I think their website is www.centerimt.com. If you go there you will see a picture on the top right corner showing exactly what they do. They put their hands on these certain spots of the body and leave them there for 10 to 20 minutes or so. They say they feel energy from those spots and they repel it or work with it. I couldn't feel their hands move. IS this muscle energy work? Can you tell me more about muscle energy work? THANKS, Sandi

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[Guest guest]

That is NOTHING like good pelvic physical therapy. They manipulate connective tissue and trigger points and stretch your pelvic floor.Sandi Sharp wrote: Hi Tom, I went to Center for Integrative Manual Therapy in Bloomfield CT. It was founded by Sharon Weiselfish Giamatteo and her husband Tom Giamatteo. She is a Phd in PT and he is a chiropractor. They basically combine a little basic PT with all these thousands of protocols Sharon

developed. It has had some amazing success in treating all kinds of resistant problems - but it didn't really help me at all and was not covered by ins. Their homework was for the patient to do these templates. Let's say for v pain the patient would put one hand on the vulva and the other on the kidneys or liver and leave it there for 20 minutes. Then one minght put her hand on her thigh and the other hand on her forehead. SOmetimes you could get more than one person working on you at the same time. I never felt anything more than hands placed on top of me. It sounded like a combination of PT and accupressure. I think their website is www.centerimt.com. If you go there you will see a picture on the top right corner showing exactly what they do. They put their hands on these certain spots of the body and leave them there for 10 to 20

minutes or so. They say they feel energy from those spots and they repel it or work with it. I couldn't feel their hands move. IS this muscle energy work? Can you tell me more about muscle energy work? THANKS, Sandi Stay in the know. Pulse on the new Yahoo.com. Check it out.

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[Guest guest]

HI Molly, Thanks. Pam MOrrison did do some of the traditional pelvic floor work but then lead me toward that integrative manual therapy. SHe did look for trigger points, align the pelvis and do stretches. I know my pain comes from the nerves coming right out of the sacrum. WHen the v pain gets worse I get a stretchy line of nerve pain that runs from my sacrum on my left side out to my hip and butt. Then the p floor starts to ache and then the skin stings really bad. A backrub of the sacrum flares up the pain even worse so I know that in addition to the fibro/neurotoxin problem I also have p floor nerve problems. I have done so much PT - I saw Dr. Glazer for biofeedback and Pam who is supposed to be a top expert in pelvic floor work, as well as Pts at Physical therapy for women closer to my home. That doesn't even count the PTs years ago who just had me do

general hip and groin exercises. Do you think AMy stein would be better? Ever heard of anyone seeing Amy? THANKS, Sandi

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[Guest guest]

No Sandi, this is definitely not Muscle Energy.

What is very odd is, I am very familiar with Sharron and Tom's work and

they are the ones who wrote

the early Muscle Energy Manuals that I learned from. It sounds to me

that they are trying some other techniques

and doing a good bit of experimenting on the patients to assist in

thier research.

If enough people say they don't get anywhere they will re-think it's

use and try something else .

What is too bad is that Sharron or Tom did not try to do the Muscle

Energy on you.

They helped write the book on it!!!!!

YOu were in one of the few places in the country that has the skill and

knowlege to help you and they did not do the correct stuff...

That really sucks if you pardon my french.

Did Sharron or Tom treat you or was it one of their underlings?

TKOPT

Sandi Sharp wrote:

Hi Tom,

I went to Center for Integrative Manual Therapy in Bloomfield

CT. It was founded by Sharon Weiselfish Giamatteo and her husband Tom

Giamatteo. She is a Phd in PT and he is a chiropractor. They

basically combine a little basic PT with all these thousands of

protocols Sharon developed. It has had some amazing success in

treating all kinds of resistant problems - but it didn't really help me

at all and was not covered by ins.

Their homework was for the patient to do these templates. Let's

say for v pain the patient would put one hand on the vulva and the

other on the kidneys or liver and leave it there for 20 minutes. Then

one minght put her hand on her thigh and the other hand on her

forehead. SOmetimes you could get more than one person working on you

at the same time. I never felt anything more than hands placed on top

of me. It sounded like a combination of PT and accupressure. I think

their website is www.centerimt.com.

If you go there you will see a picture on the top right corner showing

exactly what they do. They put their hands on these certain spots of

the body and leave them there for 10 to 20 minutes or so. They say

they feel energy from those spots and they repel it or work with it. I

couldn't feel their hands move. IS this muscle energy work? Can you

tell me more about muscle energy work?

THANKS,

Sandi

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Check it out.