Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Tracie, You are so right and was just my thought, However, my "wonderful" local Pulm doc, found out that they are now treating sarcoid with Remicade at Nat. Jewish Hosp. in Denver. However that's where the doc I saw told me I was just "depressed". (I say give her this disease, and see if she is NOT depressed!) Anyway he talked to the neuro in Denver I saw last year, and she wants to repeat the NeuroPsyh testing, and the EMG, before recommending any other tx then what I'm on. I have a question for those of you who might have the answer. from my medical days I have this theory, but want your opinion?? Here goes: What would an EMG show, if the neuro pain comes from the brain? How will stimulating the nerves below tell anything? My memory is so bad these days. I find that if "I SEE IT" I remember better, now does that make sense? Re: Remicade study Marla,If it turns out that you're part of the placebo group then you can always drop out of the study. You'd probably know by whether or not you're seeing any changes in whats going on.Tracie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Here goes: What would an EMG show, if the neuro pain comes from the brain? How will stimulating the nerves below tell anything? Marla, What the testing showed on me, is that the signals from my muscles to my brain and the reaction to the signal is delayed. That is, it takes alot longer for me to react to say- burning my hand on the wood stove. Most people yank that hand away, I tend to go-- that's burning. . . I need to move my hand away. . . Ok, hand move away. (I have recent scars to prove it.) Also, my problem solving, multi=tasking, personality, hearing-- (there's no problem structurally in my ears, but the sound signal doesn't go all the way thru my brain.) are all compromised. This came out when we did the repeat the story back to me stuff, and when I was asked to do multi-level thinking stuff. Also, when they did the count backwards from 97 or whatever test, I flunked. (Numbers were always a strong point.) The stuff that required short-term memory also sucked. But in answer to your question-- its the delayed or interrupted reaction that the test shows. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Tracie, My brain just doesn't work the same anymore, when I read this it made sense, I thank you. Yes I didn't do well with the neuro pysch last time. I'm not sure I'm going to do these tests again right now, as I am still fighting the hosp in Denver over $1800 from my spinal tap that they say they won't pay because it was billed as an outpt hosp visit, when in fact it was a clinic visit. I HATE dealing with these insurance companies!! For those of you that have seen "finding Nemo" my new nick name is DORY, and my motto for 2004 is "just keep swimming". I cannot multitask anymore either, I can't even talk and write anymore. And I was an RN in labor and del. (just keep swimming, ok, as long as I have someone to show me the way). Love and prayers to all, Marla Re: Question?? Here goes: What would an EMG show, if the neuro pain comes from the brain? How will stimulating the nerves below tell anything? Marla,What the testing showed on me, is that the signals from my muscles to my brain and the reaction to the signal is delayed. That is, it takes alot longer for me to react to say- burning my hand on the wood stove. Most people yank that hand away, I tend to go-- that's burning. . . I need to move my hand away. . . Ok, hand move away. (I have recent scars to prove it.) Also, my problem solving, multi=tasking, personality, hearing-- (there's no problem structurally in my ears, but the sound signal doesn't go all the way thru my brain.) are all compromised. This came out when we did the repeat the story back to me stuff, and when I was asked to do multi-level thinking stuff. Also, when they did the count backwards from 97 or whatever test, I flunked. (Numbers were always a strong point.) The stuff that required short-term memory also sucked. But in answer to your question-- its the delayed or interrupted reaction that the test shows. Tracie~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 just keep swimming, ok, as long as I have someone to show me the way). Marla, pretty scary when you're Labor & Delivery nurse gets confused as to which way that baby should be paddling. (Is the ultimate goal the breast stroke?) Whoa! I am so sorry that you're going thru this-- but like you say--just keep swimming. (Love the movie!) Tracie Quote Link to comment Share on other sites More sharing options...
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