Re: Molly, Clearpassages

[Guest guest]

I looked up Clearpassages recently - they seem to be

very expensive - and more focused on reproduction than

vulvodynia - actually, I have found an EXCELLENT PT an

hour from me who does pelvic floor work and have

cleared up much of that component. Now my last hurdle

is the dermatitis - oddly the NP at my new

specialist's office says it is not chronic, but

everything I read about it (lichen simplex CHRONICUS)

says it is. I called my dermatologist's office and ask

if they had ever successfully treated this, and the

answer was that it depends on what constitutes

" success. "

Have you had experience with Clearpassages? I read

something about it from the moderator of Glazer's site

- but it was more about his personal experience

meeting the people who started it than about the

therapy at the sites. My daughter has classic vv and I

would consider Clearpassages for her, if they have a

strong enough vv background and practice.

--- molly ring wrote:

> Hi there,

>

> Have you looked into www.clearpassagetherapies.com

> I think they are in Iowa and I have heard good

> things about them. Not to discourage you from

> seeing Tom, though.

>

>

>

> McTwirly wrote:

> ,

> BAck of entrance - this is where my squamous cell

> hyperplasia spots are, quite small, and the source

> of

> my problems. I have had PT for tight/sore pelvic

> floor/obturator/aductor muscles since the start of

> this (Nov) and my sacrum alignment is often out, so

> I

> think I've been proactive on that part but DO YOU

> HAVE

> SOME INFORMATION ABOUT possible treatments for the

> part of the vaginal opening closest to the rectum??

> I would consider seeing you in Minneapolis if you

> think this is a case you have experience in.

> My daugher (who has more classic vv) lives there and

> has seen a number of drs. unsuccessfully. She is

> currently pursuing acupuncture. But her case and

> mine

> are quite different. Mine is as you describe, at the

> opening and low, toward the rectum. I am menopausal

> and otherwise in good health, although I formerly

> was

> treated for fibromyalgia (and hence went directly to

> the PT when I discovered the pain/tension connection

> of vulvar conditions).

> I have not found anyone at the University of Iowa

> Vulvar Pain Clinic who seems to have ideas of what

> is

> best to try, and I have been rather on my own to

> come

> up with suggestions which we go through one at a

> time.

> It is, as you might guess, frustrating.

> - Zimmer

> Iowa

>

> --- " K. Ockler " wrote:

>

> > HI ,

> > Sorry for the confusing terms, your therapist

> might

> > be familiar with

> > them. Please ask her/ him if they have done these.

> > When you say the " back of my entrance " do you mean

> > the part of the

> > vaginal opening that is closest to the rectum.?

> > If so, you have told me a great deal about the

> > problem.

> > If you are close to the U of M then you are only

> > about 3 hours from my

> > office.

> > Sherry and I would be very interested to take a

> look

> > at what is going on?

> > Especially before you go and have surgery.

> > The fact that you have back and hip pain along

> with

> > these other symptoms

> > is significant.

> > I am anxious to hear about the back of the

> entrance

> > question.

> > Please let me know and do not hesitate to ask

> > further querstions.

> > You might want to call the office and talk to me

> or

> > Sherry.

> > She is a former VV sufferer (that is how we met)

> who

> > is now painfree

> > and, she is also my significant other.

> > She now works with me and is responsble for me

> being

> > involved in finding

> > an end to this rotten disorder.

> > Sherry has great intuition and insight into these

> > issues and is a wealth

> > of knowlege and simpathy having gone through it.

> > Let me know and call us if you have

> > questions..

> > TKO

> > jln03lg@... wrote:

> >

> > > Tom,

> > >

> > > Thank you so much to take the time writing me

> > back. I do not get pain

> > > with putting a finger in, if I keep if off of

> the

> > back of my entrance

> > > (i.e. my vvs triggerpoints). I have no pain deep

> > inside. You asked me

> > > the following questions, but I don't know what

> > they mean or involve:

> > >

> > > " Has your therapist tried a pelvic diaphragm

> > release? Has she used

> > > Counterstrain on the pelvic floor. "

> > >

> > > I will tell you that Dr. Hope Haefner of

> > University of Michigan is

> > > going to do a vestibulectomy on August 9, and I

> > just found out

> > > Wednesday. I cannot tell you the joy I feel at

> > this, because for so

> > > long, I have thought that I have the best shot

> of

> > success with surgery

> > > due to my symptoms. But I would still love to

> have

> > your feedback in

> > > the meantime. While I don't believe I have a

> > muscular problem causing

> > > my vulvar pain, I do acknowledge the pain in my

> > hips and low back.

> > > Thanks for all your time!

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

>

> __________________________________________________

>